This is My Truth - Vestibular Migraine - Update & My Story Summarised

Thanks for this! I've been chasing rainbows for months - Opthal, ENT, Cardio, Neuro, Psyche, Sleep doctor, even a witch doctor! Everyone can't tell me what's wrong and that I'm CLEAR (ENT-wise, Opthal-wise, etc). They'll say it might just be anxiety vertigo. I Googled it yesterday and I got "Vestibular Migraine" thanks to the Lord who lead me to that Google search, which let me to Youtube, and led me here! :)

Hi Matt. Glad you’re still doing the videos. I will listen over the weekend mate to the last two videos. Hope you can get around to the gym/exercise video soon. 👍 Really excited for this gym exercise video mate as you know. Tc

Thanks so much for the positive update! It gives me hope 🤗

Hey Matt nice to see you sharing positivity and knowledge . Glad to hear you are doing better everyday ! Find your CHAPPINESS

Glad you are doing well! I totally agree with going private/paying for treatment. After 6 months of being passed around by the NHS who had no clue what was wrong me, I paid to go private and had my vestibular migraine diagnosis instantly. I’m on venlafaxine now and it’s been two years. I was at about 95% recovery when I caught covid, it has put me back a bit but I know I’ll get there in the end!

You are like a mirror to me at times. It is a relief, I’m not alone.

Thank you for sharing. I have the same condition in a different form which has been diagnosed. I live in New York. I cannot have any alcohol or caffeine. Your use of the word derealization as well as your story about irregular breathing is consistent with my experience. They don’t tell you that. I so appreciate everything you’ve said. Good luck.

I have this with Wegener's Disease. Thank you for sharing your journey. Stay strong mate. 💪 Hope you're doing better now ( 1 year on). 😊

I too am on my second vestibular episode. The first was about 12 years ago. The second started beginning of June this year and is still active. I now have a diagnosis. Finding your channel is helpful and I really resonate with what you are sharing. So sorry to hear about your Mum. 💗

Thank you for sharing, and giving hope this can be managed. ❤

Big help! Thank you. My f instructor episode was 25 years ago. This time is worse. But thank you for your insight, a huge boost!

Glad to hear something positive. I have epilepsy and recently diagnosed as having lateral migraines, after that and meds I have started and still got vertigo. So still on my search for answers. Thanks SO much for your info. I now live in Spain so the system is different and I may have to save up to go private for somethings in other areas. Thanks again.

Thank you for sharing valuable information. I am from India and I really appreciate your efforts in making this video.

Having watched this I'm certain I have a vestibular migraine. A private ENT consultant also said she thinks it's a possibility but after hearing your symptoms, mine are identical. Fluctuations in blood pressure, weird voice, general dizziness 24/7. Thanks so much for sharing.

I have also a vestibular migraine. I used to have only an aura migraine, from 20 year old, with a mild headache, but this devilish thing joinef it 9 years ago. First dizzy spells and then the attacks started - they are preceded by fatigue, dizziness and an aura and bad sleep and then a really really bad vertigo that comes as a flash, I collapse to the floor and throw up, for three hours this world turning around and me feeling awful and throwing up, not being able to open my eyes, and then a crushing headache. 10 hours in all. And afterwards I am like having been run over by a truck. And dizzy spells for two weeks until the brain calms down. And photophobia yes. I wear dark glasses that protect from blue light. These artacks used to come more often but my neurologist -who luckily diagnosed me at once - found a medicine that I take to prevent the violent attacks (they are so wild that I have broken a rib vomiting) and they are now more mild and I have only a funny disoriented feeling and a mild headache if I succeed to take the med just before. These vestibular migraines are different in different people, I think. I suffer from motion sickness, too. They seem to be related.

Hi Matt, don’t know how I missed this, thank you for the update and I’m glad how well you’re doing, we first spoke in 2019.. my first episode being in the September so I’m 3 years in now.. approx 90% better with the occasional glitch… agree totally you need The Right medication combination.

Thank you for the video

Thanks for this summary of your experience with VM. It's really helpful to know which meds helped you along with the other aids...I was diagnosed with VM this May. It took 2.5 years. My VM hell started in Mar 2020 following a virus...initially I heard an engine noise, and had the sensation of motion..I felt like I was on a rocking boat some days, but most of the time I felt like the floor was vibrating. Then, I started having balance problems. Long story short, after ruling out serious stuff like a brain tumor, I was diagnosed with VM..My ENT suggested I read the book "Heal Your Headache" which I did (it's an excellent book) and he referred me to a neurologist. The neuro put me on Ajovy which was approved by the FDA (I live in the U.S.) in 2018 for migraine. It's a monoclonal antibody 30 day injection that inhibits CGRP. It's done nothing for me, but for some people it's a miracle med (It's actually a biologic). Since Ajovy is not working I'm going to do the elimination diet in Heal Your Headache to see if I have any food triggers...if that doesn't help, I'm going to try some meds. My vm's are chronic..I have 2 sometimes 3 days a week where I'm almost normal. The other days the symptoms range from not too bad to awful. On the worst days everything sounds louder than normal, and brighter, and the intensity of the vibrations correlates accordingly as do the balance issues. I don't let it stop me from going out. I'm afraid if I give in to the fear of walking into someone or falling etc, I'll get worse. It gives me hope to know that you have found help with the meds and special glasses. Thank you for taking the time and giving your effort to help people like me who are struggling...Having hope that things can/will get better makes all the difference in the world.

Thanks for the videos - comforting to know there is a path to mostly normal

I appreciate your positive outlook. Some yt videos on any vestibular disorders are downright toxic and should be banned