24/7 -Vestibular Migraine - Living With A Chronic Illness

I have never heard anyone describe the symptoms so well. That is almost exactly whats happening to me. All of the tests, multiple doctors, it's awful and I'm finally hearing someone else outside of me saying it outloud. Im in the US and have been suffering for 15 years. Probably before they even knew VM was a thing and didn't know what to do with me.

I also was diagnosed with Vestibular Migranes and the miracle for me was botox and a nerve block! My Neurologist stabbed my head with botox with a tiny needle about 40 times all over my scalp and a week later I received a nerve back at the lower portion of of my head. It made my life way better and brought my Vestibular disorder into remission! I have to go back every 3 months for botox.

"As you were, you'll be again." ❤

I'm now 4 and a half years into 24/7 vestibular migraines. Its brutal. I have a similar story. It feels like I'm going to faint every second that I'm alive and have never ending headaches, dizziness, light headedness and more. Its torture. But I have come a long way into coping with it. I'm back to work. I'm starting online school soon. I exercise a lot which helps indirectly. Makes my tolerance stronger and I think slightly helps the symptoms. But its usually temporary so I have to keep up with the exercise a lot. Eating healthy helps some too. I have tried tons and tons of medications and none have helped enough to really to be worth it for me. Vestibular physical therapy helps slightly but that is also temporary so you have to keep up with it

I've had debilitating migraines for 30 years. I'm 51 now. The hardest part is the loneliness and the people who should love and support you walk away. Having my dreams for my life just gone. It's stressful when you know one is coming on. Listening to your story made me feel less alone. Thanksfor your suggestions.

Definitely can empathize. I have had this condition for about 7 months now. Long journey but getting better. Taking Aimovig and Effexor together and my symptoms have improved about 80%. Some days are worse than others but there is a light at the end of the tunnel. For anyone suffering please keep the faith, there is hope.

I seem to be having these symptoms on a daily basis now. Most days I’ll wake up in the morning with this. Thank you for these videos. May you and your family have a wonderful Easter!

Thanks so much for posting this. I have been suffering with vertigo and other symptoms for around 10 months and have only recently been diagnosed with probable vestibular migraine and Persistent Postural Perceptual Dizziness (PPPD). Just hearing about others having similar symptoms is reassuring for me particularly during stressful moments which are happening everyday and making life unbearable. There are definitely some days when it all feels too much, but I'm trying to hang on in there and your story gives me courage. God bless everyone who is suffering with similar symptoms and thanks again Matt for highlighting a very hidden and not well understood illness.

Thank you for all your information , I have had this illness for 3 yrs , suddenly past 2 months severe vertigo and cluster migraines with it very debilitating, I am disabled due to autoimmune and epilepsy and now this ,I loved hearing your story so glad to hear we are not alone let us pray for each other and ask God to wrap his healing hand around you in a mighty mighty way God bless you ❤

I’ve had chronic vestibular migraines since I was 12. I’m now 17 and it just keeps getting worse and worse as I age and it’s horrendous. Its refreshing seeing it talked about

I just want to say thank you for making this video, I’m experiencing everything you are! Seriously you don’t know how much this helped me!

Just starting on the journey with Vistibular Migraine. Somedays it is 24/7. I feel better listening to you. Thanks

Great video, man. I suffer from VM too. I’m wishing you the best.

Just found your channel - fellow chronic VM sufferer here - thank you for sharing your story, looking forward to watching some of your other videos!

Very well explained and very very helpful, thank you!

Well done Matt. Our symptoms similar. Explained everything well. Thanks for sharing.

33 years with this and Menierre's. Pure and unadulterated torture..

Thanks for this video, you have a calming voice and manner. I have been recently diagnosed with VM and I can relate to a lot of the things you said. Doing my best to stay positive, and thanks for the quote.

Great share! THANK YOU 🤗 I had my first VM when I was 32! I thought I was dying. Many misdiagnoses & 30 years later… I’ve simply learned to not panic, rest & just let it pass. I only recently was able to self-diagnose this condition as VM & I feel so much better hearing stories from people such as yourself. I’m not alone & I’m not losing my mind! My last one has lingered for several days since the initial “spin”. And interestingly enough, this one did produce a headache. That was a first. I’m definitely going to take your advice on the “rockstar” glasses because you’re spot on about the shopping issue. Thanks again & praying for you & everyone who’s dealing with this blasted issue.

MATT...thank you. I plan to share this with my family & friends to help them understand my struggles. You described this shit perfectly & IT IS a bear! I also plan to check out the glasses you mentioned, maybe they can be of some help. I lost my job last Tuesday...due to this crap! Hope you're feeling better too!!