Men and Multiple Sclerosis - Is it Harder on the Guys?

Are you a man with MS?

Discovered your videos not long ago, and really appreciate your info, no-nonsense delivery and pleasant demeanor. Love these, and really helpful.

Hi Vicky Great video! Quite informative and insightful. I am a 34 year old male. I got diagnosed with RRMS on October 2023. I was on methylprednisone on both relapses which sent me to the hospital. I started right away with Ocrevus and PT. I am doing very well now as unlike most cases, I did not fell into depression but rather dealt with it in a stoic manner and had been determined and disciplined with my exercises and medications, eat a healthy diet 98% of the time, and occasionally use a cane when going out on the street, but I walk without a cane at home and in my flat complex. I am very determined and I also have autism, so having something is not new for me. Regards

DX’d at 44 with PPMS with only some balance issues and a bum ankle. Started Ocrevus ( only drug approved in Canada ) almost immediately. Within 2 years I was using a cane. Now almost 4 years later I am using a walker more and am struggling at that. Doing all the things needed but feel the progression is moving quickly. Here’s to hoping it plateaus soon. Great video. Thanks.

Ocrevus ® was the ONLY DMT offered in Toronto.Ocrevus exacerbated my MS so I stopped after the first 2 half-doses and later had HSCT in SEPTEMBER 2023 in Mexico. It is too soon to assess what effect HSCT had. I would say exercise has been by far the best treatment over pharmacological (point at 7:50 )

Diagnosed at age 58. Now age 69 and walking with a walker. I have PPMS.

yes to inflam-aging video! I'm 59, have had PPMS since somtime in my 50's though diagnosis was 2 years ago.

Nice video as always and all but if i may, what is a Talking Therapy where you list several stress management techniques ? Is it psycho-analysis stuff ? Like shrinks 'n all that ?

I had a neurostim unit. I tried for 2 year's to referral. To have removed for the MRI. He said " you're a 54 year old with the body of an 80 year old deal with it. I had been falling alot leg heavy, numb face. Fired him. Got unit out and went to UCSF after 3 months of pt. Tagged with ppms. Quite the adventure of learning new ways to live. Be strong 💪

research (perhaps a bandaid solution)..might be, to devise as protection,a flexible tubing over the myelin??

The audio sounds a bit less high quality than usual, for some reason - only by way of helpful feedback 🙂 Neuroplasticity 😊 And thank you for reminding about psychotherapy 👍

Coming up on 4 years post-DX. Once I understood Swank diet and adding daily exercise to lifestyle, the flares went away. Sexual ED problems are the most depressing symptom

Was diagnosed at 59 years fitness as a fiddle before balance not great now can’t stand for long can’t walk that far use to play golf 3 times a week carried a full set of clubs around the course now nearly 67 hate ms

Yes please to inflamaging video 👍🙂

I am a guy. Diagnosed late in life (51). 54 now. I have tried diet and lifestyle changes along with ocrevus and did well initially but then my ocrevus stopped working and my dr was on 11 months mat leave with poor coverage so i had flare after flare for 6 months and went from a 3 to a 6.5 on EDS scale. I have a lots of emotional stress with family issues and i have pain sometimes 9/10 pain so have a bad habit of feeding these issues with sugar and are having a hard time breaking the habit. Thank you for the report as sad as it was. I am on Kesimpta now lets hope it works and that i can get of sugar.

Yes, and I am sorry I use you as a unpaid advisor. Stretching has been my go to just so I remember the reps and the time that pass to stretch again my balance is my first goal.

I don't know if it's harder on men in general, but last year was terrible for me. I had two relapses within 3 months (I was off meds) and it really wrecked me, it left my right hand completely numb and stiff, and left me with permanent neuropathic pain. It started with the usual weakness and numbness(for both relapses), and I had double vision for quite a while. The double vision and weakness went away after steroids . My hand has gone numb multiple times before and it always recovered, but not this time. I also feel that my balance is quite bad after the relapses. I've had MS since I was 16 (I'm 24 now) and it's never been this bad.

Please provide the video you speak of🤴🏽🙏🏽 I was recently diagnosed January 4th of this year, I would appreciate all the information I can get❤ I am 46 years old

Multiple sclerosis in men is actually called multiple sclerobro.

Madam lam from india lam having multiple sclerosis which all juices and food will help to detox heavy metal detoxity kindly give a replay