My Fibromyalgia Story // chronic pain + fatigue

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Published 2021-12-20
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Hello my friend. Today I wanted to share with you my fibromyalgia story. This is my experience getting diagnosed and treated. I'm sharing my symptoms and struggles with this disease. If you live with chronic pain and fatigue like me, introduce yourself in the comments so we can be friends!

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For more info on my chronic illnesses check out the links below!
POTS (Postural Orthostatic Tachycardia Syndrome)/ Dysautonomia:    • LETS TALK ABOUT POTS! | Postural Orth...  
Hashimotos:    • ALL ABOUT HASHIMOTOS THYROIDITIS DISE...  
Fibromyalgia:    • ALL THINGS FIBROMYALGIA | Symptoms | ...  
CFS (Chronic Fatigue Syndrome):    • LET'S TALK ABOUT CFS / ME | Chronic F...  
SIBO (Small Intestine Bacteria Overgrowth):    • ALL ABOUT SIBO | Small Intestine Bact...  
IBS (Irritable Bowel Syndrome):    • LET'S TALK ABOUT IBS | Irritable Bowe...  
Leaky Gut Syndrome www.health.harvard.edu/blog/l...
Chronic Migraines:    • HOW I TREAT MY CHRONIC MIGRAINES NATU...  
PCOS (Polycystic Ovarian Syndrome):    • LET'S TALK ABOUT PCOS | Polycystic Ov...  
Endometriosis:    • LET'S TALK ABOUT ENDOMETRIOSIS | Caus...  

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All Comments (21)
  • @lolalopez4735
    😢 I too had much childhood trauma. Been suffering with depression and fibro for years! My saying is , "sometimes our mind is our worst enemy."
  • @yobaca22
    I completely agree! I have had a lot of trama in my life and was taught to hide it. I now have Fibromyalgia , CFS & PCOS. My fibro was triggered by a new trama that brought up everything else I had been through. I will defiantly read this book. Thank you for sharing with us!!
  • @nath7283
    Yes, totally resonates with me and my fibromyalgia, POTS, migraine, ME/CFS etc story. Emotional, and physical trauma from a very early age...
  • @JCoDreams
    Love you for talking about this topic. It is a real condition that is so misunderstood. So many years of people trying to say you are just crazy. So many appointments and medications and money for decades. The allergies make it difficult to use traditional medications.
  • I feel like we're literally the same person. Same things were happening to me after I got married. Not only do I think your theory of the body keeping score is accurate, and the safe environment encouraging those things to come out, but also as we get into our twenties our brains are still changing some and trying to 'level out' and but also this is classic PTSD. That's probably a lot of what you were/are dealing with. PTSD is so much more than just an emotional illness, it physically changes your brain and it may alter certain chemicals and receptors which cause all these symptoms. Thanks for sharing your story and taking the time to share so much and educate us with your experiences. I feel so much of what you say resonates with me and I've struggled and still struggled with a lot of the same things. You are incredibly strong and intelligent, keep doing what you do ❤️
  • @allisonrose3895
    We have alot of similarlies in our stories. I'm thankfully able to still work but I had to give up my career as a nurse which is so difficult for me. My pain began around 15 years old but I wasn't diagnosed until I was 23 years old. In June of 2021 I was evaluated at Mayo Clinic to confirm my diagnosis. They agreed with fibromyalgia which was difficult for me to take in because I was hoping it was something else, something with less stigma. I've been struggling to grip the fact that I am 28 and I do not live a life of a 28 year old. Thank you for sharing your story!
  • Thank you so much for this. I was recently diagnosed, and it sucks. I've had issues for a few years, but finally did something about it because I got tired of people looking at me for being "lazy" cuz I was so tired all the time. Luckily I have a great support system in my husband and family.
  • @kate8351
    I was diagnosed 11 years ago along with hashimotos, sclerosis, and degenerative disc disease along with mental illnesses like bipolar, adhd, cptsd. I have had alot of trauma in my life, and the pain and fatigue came right after I lost my grandmother at 13.
  • Thank you. Your youth is encouraging to me. I'm a COVID long hauler and after three years of symptoms and tests that didn't solve anything, I'm learning to care for myself because I've received very little support or medical treatment.
  • @laulauluf
    I believe my fibro is from emotional trauma. It started with terrible headaches every single day.I had three major depressive periods in my life and like you I feel my body just gave up and said I'm not fighting anymore. Now when I have the littlest bit of stress I have a major flare up. Currently in one now so feeling so fed up but watching your video has made me feel like I'm not alone so thank you ❤️
  • @ShannonMThomas
    As a teen I had horrible pain and fatigue. The doctors said is normal teenager stuff. Growing pains etc. I got pregnant at 20 and had a rough last three months of pregnancy. Pain and fatigue were way worse. When stress would get bad I would get to a point where I could not function or walk. In 2004 I was finally diagnosed with Fibromyalgia. I also suffer from migraines, PCOS, anxiety and depression. Through all of that I was trying to get pregnant for several years and ended up having a hysterectomy in 2010 again throwing my fibromyalgia into overdrive. I’ve tried lots of meds nothing really has helped until I started LDN (low dose naltrexone). My fibro is not gone the depression and anxiety are still there and sometimes I think I’m going to loose my mind. But the pain is tolerable more often than not and I am able to function a little more. I have not worked in a long time. When I am working it is work and then to bed every single day. My body cannot handle it. I have been fighting for disability for several years. Thankfully my husband is the best and 100% supportive!!! I’ve gotten to the point where I don’t care what others think. It’s my life and my pain and I live my life the best that I can. I know when I can’t do anymore and I have the luxury of laying in bed or on the couch when I need to. My son is an adult and I am able to enjoy my grand children the way I wish I could have been there for him. There were days that I would spend in bed because I could not function. Everyone’s story is different but it’s your story and you do what you need to for you!! Gentle hugs to all. Hoping you have a tolerable day!
  • @saadiatayeb13
    Im sorry what you going through. I m going through the same. I feel you. HOPEFULLY one day doctors will find the cure. Fibromyalgia is a horrible disease. Thank you for sharing. I wish you the strength and the best❤.
  • I suffered for more than 20 years with horrible fatigue, the inability to fall asleep and stay asleep, my heart always felt like it was palpitating, I would randomly lose my balance, sudden allergies and awful digestive issues. I finally went to a neurologist this year and still have yet to be specifically diagnosed. I think I have fibromyalgia. 😔
  • Thankyou for this video. I have fibromyalgia, ibs , asthma, I have pain all over my body and so much fatigue and have had so much trauma emotionally throughout my life, I also have depression and anxiety, also dizzy spells and headaches and have a hiatus hernia, it’s nice to reach out! With all the chronic illnesses you have I think your amazing and your videos have really helped me, Thankyou x
  • Thank you I can relate with you I was in a domestic 😢 abused marriage for 14 years when my symptoms started it so true also lost both parents within 8 weeks of each other had a great impact on mentaly 😢
  • @Sheila-yn6db
    I am so thankful I came across this video and can't wait to read that book. I was diagnosed with fibromyalgia and chronic fatigue syndrome. Looking back at the trauma I have been through before that now makes sense how it could have caused my fibromyalgia and cfs. I lost my brother in a plane crash, got married, went thru treatment for cancer, lost my Dad to Lou Gering disease, lost my grandma to cancer,had some relationship issues and went thru a couple years with lung issues that doctors could not figure out. Thank you for sharing your story!
  • @averyreese7158
    i’ve seen your videos many times in my search to find some other people like me. your videos are so informative and welcoming and im so glad you are sharing this information and help bring attention to these conditions. i hope you are doing well🥺