How I Knew I Had Multiple Sclerosis (all my symptoms leading up to it, finding out on reddit)

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Published 2024-02-18
hey! this is a brief overview of all the symptoms i had leading up to my official diagnosis of ms ( relapsing-remitting multiple sclerosis). before i had my first relapse of optic neuritis i had a few other health issues that i didn't recognize at the time to be possible MS symptoms. now looking back, it makes so much sense why these things happened. so, maybe sharing them will help someone else recognize their symptoms sooner too!

0:00 - Intro
1:58 - How I Found Out & Leg Numbness
5:13 - Numb Feet
6:10 - Vertigo
6:50 - Hair Loss
7:25 - Dizziness & Vision
11:10 - Brain Fog

All Comments (21)
  • @samankiani1072
    For me Having conversations with people isn't easy specially when im tired because if they talk fast, i just get very confused and Lost in conversation, and as you said sometimes in the middle of conversation i forget what was i trying to prove to the other person.
  • @EvenSoItIsWell
    Thanks so much for sharing your story. It is so wonderful to see young people sharing and helping others. Well done.
  • I really appreciate the videos. The way you talk about the condition helps me relieve some stress about my own diagnosis too. It’s also very valuable the way you explain your symptoms. I remember being very confused when I had my first symptoms. This video would have helped during the time I was getting diagnosed. I’m 22 and got diagnosed last year and it has been a journey. I experienced the same symptoms, even the hair loss. Thanks for the videos! Your attitude towards the condition is one to take as example.
  • @airchair73
    I'm really sad you've got this sh!t disease so young but you seem really strong bless ya x I've got ppms and was diagnosed around 5 years ago at 45 and had to pretty much retire from scaffolding due to my left arm and left leg failing me. Thankyou loads for sharing and letting others have a bit more of an understanding about our multiple sclerosis 😊x
  • @jono_young_music
    Thanks for sharing your story Charlie, im sorry you have to go through this, all the best ✌️➕❤️
  • @user-ns5uw4no9q
    Thank you for this video! I only got diagnosed 1 month ago although like you had many symptoms I chalked up to being nothing beforehand until my last "flare" which i couldnt ignore and went to see someone. The biggest annoying thing I have now since my flare 2 months ago is the dizzy and weird slightly blurred vision thing! It's hard to explain to people the weird vision so it's nice to hear someone else knows what im talking about! I really hope it subsides though because it's so frustrating and a MS reminder everyday when I'm looking at stuff or trying to grocery shop. I'm really enjoying your channel and your positive outlook to keep living and enjoying life when it's such a big blow! I'm definately in the dark hole stage of it so your videos have been so nice to dins :) I hope you're enjoying Australia (my home) ❤
  • Hi it’s really great to see other young people with ms sharing their story❤❤ I was diagnosed when I was 18 and now at 22 I still think back to the obvious signs I was showing prior to my diagnosis, I wish you luck on your journey
  • @samankiani1072
    Thank you for sharing your story.For me Having conversations with people isn't easy specially when im tired because if they talk fast, i just get very confused and Lost in conversation, and as you said sometimes in the middle of conversation i forget what was i trying to prove to the other person.
  • @essenceocean595
    Hey! Thank you for sharing! I’ve been struggling with a mystery illness for over a decade. It started when I was 12 and no one knew what it was or said I was crazy or making up my symptoms. I eventually just went home, dropped out of school and was a vegetable, rotting away. I’d fall over randomly when I was walking and I’d watch the news and it was like they were speaking a different language. I couldn’t understand. Couldn’t follow conversations. I was in this state for 2 yrs and slowly I got better. I dont fall anymore but that brain fog hits me all the time and I can’t explain to ppl one day im this IQ and this day im another. No one believes that. But thats what im dealing with. I cant tell left from right or do simple math. When im ok, well id just succeeded at skipping into 9th grade and had scored as gifted and highly on their intelligence tests. It hurts knowing what I could do and being reduced to this. A week ago I happened to be on a date with a doctor and he immediately said I had MS and every thing I thought couldn’t be connected linked up. So I’m going to speak with my neurologist soon. I rly hope I have it bcuz thats better than living an unknown, w no treatment, not knowing whats going to happen to u. Anyone wondering if u have MS, bring it up to ur doctors. I dont know how all of mine dropped the ball on me but no one should have to live undiagnosed for years. I hope everyone maintains hope and strength. Thnx!
  • @angelagarner1904
    I feel like you were describing me! I have issues when I close my eyes too! I rock badly. I have the symptoms you do plus swallowing issues I have to blend my food. I’m sorry you deal with this too!! 🌟
  • @asitpurohit_108
    Remember whoever here with all the symptoms , so kindly check to confirm with doctor throw MRI and lunar tap , because as per my knowledge 5+ type of vitamin deficient can cause same symptoms one of them are b1 and b12 and some time magnesium and omega 3 deficiecy
  • @cbus
    about to go through testing to see if i have nerve issues or a neurological condition so i have a question; do symptom flare ups come and go? i go through numbness (from the top of my head to my toes on my right side), muscle weakness, poor grip strength, unsteady gait (especially walking up stairs) and just general pain on one side. it sometimes lasts for 2+ weeks.
  • @andrescamara7055
    I’ve had the optic neuritis, blurry vision, and mad brain fog. Just got the Kesimpta ordered today through my neurologist’s Pharmacy guy today.
  • @user-ud9tj5dn9t
    Thank you for sharing 😊 I started showing symptoms at 18 but was not diagnosed until I was 21 because of the “my body will work it out” or symptoms resolving by the time I would get to the doctor.
  • @erzas556
    How do we convince our doctor to refer us to a neurologist?
  • I haven’t been diagnosed, but feel like I have MS. I relate to so many of your symptoms. Thank you for sharing.
  • Well shoot, if I had known I could blame ms for hair loss, I would have, 45 years ago.😁