Early Multiple Sclerosis Symptoms What it Feels Like

Do you have questions about MS symptoms? Would you like to see more video about MS Symptoms?

Do not ever ignore foot drop, numbness, etc…I woke up one morning and my right hand didn’t work…thought it was a pinched nerve because I have so many spinal issues etc…and ignored it. I had had a STROKE. It got much worse after a few days and I wasn’t thinking correctly and was confused which you won’t realize is happening….My daughter sent the sheriff’s dept and it saved my life…do NOT ignore weakness and numbness anywhere!!!

Thank you so much for sharing your story. I was recently diagnosed. I am 44 and my first MS symptoms started at age 22. Mine started with vision loss/disturbance. I also would experience numbness in my left arm. The loss of vision was diagnosed as ocular migraines. I had frequent loss of vision throughout my 20’s. I’ve been pretty certain I had MS since age 30. My worst attack was in the beginning of 20/20. I woke up one day and have severe pain and weakness in both legs but primarily the left. This went on for months. I also experienced loss of bladder control. ER visits and still no diagnosis for why I could barely walk. After months I felt like I had to relearn walking. Finally a neurologist said fibromyalgia. He did do an MRI of the brain but again no contrast. Same with all the previous. I finally had enough symptoms for the 3rd neurologist to order an MRI brain and Cervical spine. I had an increase in old symptoms and many new symptoms. MRI read that I was having mini strokes in my brain and this got me admitted. I wasn’t having mini strokes. After an MRI with contrast it was undeniably MS. I was diagnosed 5/5/22. I go the MS specialist the 26th to discuss medication options. I too had many symptoms I ignored but I also had just as many if not more that I was seen for. I’m proud of myself for handling this for so many years without help. I worked in the medical field almost 20 years. I was no longer able to work since 2019. I wish you so much happiness. ❤️🙏 we’ve got this!! To all that are still searching for answers, don’t give up. Speak up and advocate for yourself.

My symptoms started years ago! Balance issues, migraines and vertigo. Back in 2017 I did have a fall but never hit my head. They sent me to a physical therapist and she asked me when I had the concussion. Told her I didn’t have a concussion. She said there was lesions. My doctor never told me about. Two years prior I had issues with moving my legs at all. They just wouldn’t move. Went to the hospital and they said it was an anxiety attack. Had been under stress a lot. So I just assumed that’s what it was. Fast forward to January 2023. Had what felt like my leg was giving out from under me when I walked. Then a couple days later my vision blurred on the left side and I was seeing double. Gradually progressed to dizziness to the point I couldn’t move my head without feeling the room spin. Husband picked me up from work . Thought for sure I had or was having a stroke. At that point I couldn’t walk and was having trouble with my speech. I would lose train of thought mid sentence. Took me to the ER . Ran test and found out I have spinal stenosis. Doctors still didn’t think it was causing my weakness. Spent 2 weeks in hospital. Got out did home care. Wasn’t getting any better. Went to a different hospital. Spent a week and then transferred to inpatient rehab. They ran a lot of test . Did a lumbar puncture. Did have some elevated numbers on a few test that came back. They did an ivig for 5 days. Then sent me home. This was in April 2023. Here it is June 2023. Still can’t walk without a walker. I’m doing physical therapy but don’t feel it’s helping. Something is nagging me telling me it’s MS . They did set me up with an appointment with an MS doctor They said in 3 months or the earliest available. Which I have one for Aug . Yet my neurologist says he doesn’t think I need to go. I’m frustrated and feel hopeless. Sorry I know this was long but I’m really struggling and I guess just wanted to see if anyone has experienced anything similar.

Thank you for the video. You are wonderful for making it.

I had no idea i had MS, my first symptom i knew of was going blind on holiday i had it happen twice when i came back. it was all ignored by the GP my sight came back though. Over the years from 2000 i had like you odd things. stiff legs, weird dead leg, nettle rash in hands, numb fingers, fatigue, bladder issues, but the worse one for me was my left foot being dead but not dead. over the years i had ongoing left side weakness and worsening mobility. they say MS is a snow flake disease everyone has it differently so that is why it is hard to diagnose. xxx very clear and precise video. x

Thank you for this informative video!

Thank you for making sucha great video

Thanks for all this great info. I have had RA since I was in 8th grade so 13ish. Was diagnosed as JRA back then. So I have struggled with that seems like forever. I am waiting for a neurologist appt this April. When I look back I have had symptoms of MS for years. Lack,of sleep from leg issues have been around for years. Bladder issues started two years ago. As my general doc says, I check off a lot of the boxes for MS. A lot of the symptoms you talk about I’ve had and still have. From what I also understand having an autoimmune disease is like having an opening for having another. Thanks for the positiveness that you give. As a retired medical professional, I am a great caregiver, but when it comes to myself, I have no patience. Lol. I want the answers now so I can move on with a plan. So we hurry up and wait. Since I live in a very rural area, we have to travel 2 1/2 hours for almost any specialist appts, that’s why the long wait for appts. The lack of sleep for me right now is the worst. Leg cramping, stiffness, jerking, seems of course to be the worst at night, though I have noticed within the last few years I can’t go to see a movie, because sitting for that period of time will cause my legs to become stiff cramps and jerky. It is also interesting we live in a cold winter climate and yes it does get warm and humid in the summer. I do better in the cold than the hot weather. I’ve had more pins and needles in my arms legs and face more often than I’ve had before. So long story short, I have had symptoms for years so even though I am 67, and thinking you can’t have MS when your that old, I’ve probably had it for years and more symptoms are appearing more often now. Again thanks for your positivity. Your videos are getting me through this waiting period.

Thank you this has helped me so much.

The great video very inspiring. U have very positive outlook.

Please do more . I HAVE KNOWN SINCE 1997 I have MS BUT since I have a few other big health issues they have become so obsessed with them the biggest thing is toning to end me with a fall. I need your wisdom . With an aching heart. Paula marie

Loved this ❤👏🏻👏🏻👏🏻

Love the video, i was diagnosed 4 years ago and i relate to many of the symptoms discussed. Btw the hanging wall decor is crooked lol. ❤️

Thank you so much 🙏🏾💪

Your experience is almost identical to mine. MS sucks, stay strong and take care ❤

Great video.

I really appreciate this. I’ve been going back and forth to the doctors. All of these symptoms are what I’ve been dealing with for the last 2 years. It’s been so hard. I’ll have my doctor check me for this next visit.

hi there. i'm watching this video because a neurologist today told me she suspects i might have a central nervous system disorder, most likely MS. i am only 17, and i know that this disease is most common in people from age of 20 to 40. but anyway. i'm listening to what you're saying and i can relate to most of it. i have been "diagnosed" with mononeuropathy due to my tingling sensation & the loss of it, mostly in my arms and feet. i also have scoliosis like you do. i have had issues with muscle spasms, temperature intolerance, balance and bowel control ever since i can remember, but all of this has been brushed aside and blamed on my autism (i am diagnosed with it). recently i had been dealing with cog fog, sleeping issues and migraines too - i have been put on anti migraine medication & started taking it today. i'm getting an mri done most likely in may. i am now experiencing crippling anxiety because im afraid i might be over-exaggerating my symptoms & the uncertainty is getting to me... nevertheless, i just wanted to say, that your video helped me. thank you

Thank you and prayers for all. 🙏✝️❤️