Living With Fibromyalgia

She is not alone, I also have fibromyalgia. It is debilitating.

“But you don’t look sick” I’ve had fibro for years and it’s hard to do much as even hug my kids. It’s a very sad and lonely sickness. It is true sometimes we start to think omg could all this possibly be wrong wrong with me? But yup it can. Keep being positive. God knows I’m still trying to work on that 💜

Hiya i have had fibromyalgia for 20 years old, I'm in my 30s now and it's getting worse. My family don't understand except my mum and she is amazing, I've had doctors say it's in my head and i have lost count on all the pain teams they have know clue about chronic pains. I have to say that's a major major blow for me because it's written down in my hospital notes that it's in my head and nobody believes it and even now I have to make doctors understand because most of them haven't a clue what it is. I have trouble reading, spelling and maths but I was crap at maths lol, I was a really good at spelling and writing when I was at school.Its so embarrassing now when I'm talking to a stranger and I can't remember words and names. I spend most of my time in bed and I know I should be up doing exercises and get up and go for walks or go shopping well I really do try but I'm so tired and my arms and legs get tired, I struggle to wash my hair because my arms are just to tired and if I push myself I suffer for it.Doctors can get blood out of me so I can't go on any medication for it because of this. The reason we can't get blood out of me is because I have Raynaud's disease. This disease means my hands and legs swell up and they are cold and very painful. Recently I got told I have costochondritis and that causes pain in my chest and back. I thought I was having a heart attack, it scared the shit of me.I do have a lot of health problems but this disease is a nightmare because I can hardly do anything these days. My little sister had a baby she is 3 in June and I've only go got to play with her for 15 min and then I'm wiped out and now she is having another baby in may 2017 and I will really struggle. I really want a baby but doctors say it will cause me so much pain they think it will be to much for me. I have no friends my sisters don't want to know me because I can't do anything I've got my mum and cousin and that's it. My mum is amazing I love her so much.I have thought about killing myself because the pains gets so bad. But I can't because of my mum. Hang in there every one I am here for everybody that has this disease. 😥😞

I was just diagnosed this year in April 2021. Everyday its hard mentally and physically. Its very depressing but my mom helps me a lot to motivate me and making sure i take my medications. I really don't like to talk about it too much with people because i will start to feel like i am a burden to them or complaining too much. The symptoms are REAL😢

This also affects men. I started out after an accident hitting my head with occipital neuralgia and somewhere along the line somewhere around 15 years ago I develop fibromyalgia out of it( which is actually a pretty common way to get fibro) I too had to leave work and I too have no money. Praise God for my wife !stuck with me all these years. However, I want to encourage you not to give up. It's taken these 30 years but finally I have some relief. I still have pain everyday and suffer with fibro fog but finally being able to live with my wife rather be alive again with my wife after 30 years is amazing! A major difficulty for me is it from time to time I recount all the things that I've lost: abilities, and opportunities. However, I have to focus on the good things and praise God for them. I wish you the best and for all on this post who are suffering I wish the same thing.

Hi Jo. So sorry that you're suffering from this cruel disease. Thank you for sharing your story with us. I know it isn't easy to live with. It's cruel and nasty. I've had it for 24 years now and I know how bad it can get. You are doing a good thing by informing others about your struggle. The more we tell others, the more understanding the world will be. When my symptoms began, aged 39, not a lot was known about Fibro. It took me 11 years to be diagnosed in 2007. It's good to know that people are becoming better informed. I am 62 now and take each day as it comes. I manage it. It is all we can do. Good luck Jo, all the best, Frangi xx

As a fibro sufferer, I so relate to her story. When I first was diagnosed, I was having pain so bad that I was unable to get spontaneous hugs from my daughter, and trips to the grocery store were agonizing if the air conditioning within the store was up too high. That's why I decided to devote part of my YT channel to exploring fibro symptoms and possible treatment options. This condition is truly awful, and I wouldn't wish it on my worst enemy.

I'm 24 and I was diagnosed with Fibromyalgia 3 years ago. There are doctors that don't take me seriously and so I'm left to suffer. People tell me I don't look ill or I'm too young and its all in my mind :( it's very real to me and everyone else who has this condition. Thank you, so much for spreading awareness ❤️ 💜

Corpse husband has fibromyalgia and I think many people are getting introduced to what an agony this actually is like. To everyone suffering from this illness my heart is with you and who knows maybe in the future there will be a cure, stay strong, it’s unbelievable how much you overcome so far and keep fighting!

never doubt yourself, I've had symptoms over 30 yrs, although I wasn't diagnosed 4 years ago. My family always dismissed my symptoms. This disease is invisable and you need to go day by day, make the most of the good days, but don't over do it, rest on your bad days. Do not ever feel guilty about not working outside the home, i have felt guilt for years a short while ago a friend, more like a sister, told me i had nothing to feel guilty about, i am not choosing not to work i can ;

I have fibromyalgia too. It's gotten worse since I've been getting older now. The fatigue is awful and my lower back pain comes and goes. I take lyrica and curcumin with turmeric for pain. It helps alot.

I read all the comments here and just want to say to all of you that I love you. Yes, thats right, I love you. I understand you and I believe you and I love you. Im praying for everyone who posted a comment. God is also invisible by the way and He too is real. He wants us to keep our eyes on Him and He doesnt care if you got the dishes washed or not or if you laid in bed whining all day, He doesnt get uptight like people do. He just wants us to love each other. Much love to you all!

I have fibromyalgia for more than twenty years for this young lady with a husband and young child take your time with yourself and my job was on my feet for 38hrs a week plus family life i was very very active like this lady plus thousands of suffers looking after a child with it is going to be very hard but just try pace yourself yes you are not alone i thought i was alone until it got more of an awareness when i was first diagnosed no one heard of it but i have mine with a lower back problem and i am chronically very ill with it i get so fedup but my faith in god is keeping me chin up lady you will be okay just hold on cry if you want i use to now i groan its so painful my trears dont come but take your time and listen to your body okay stay blessed

It can get better but it's still a daily challenge. I found that certain foods cause me joint pain and brain inflammation: dairy,wheat, buckwheat, gluten, brown rice and white rice. The reaction is almost instant. I also found that a full nights rest is absolutely crucial to functioning. Caffeine is anti-inflammatory, it calms the nerves and acts as a bronchodilator. The first thing that I saw the most improvement after taking was kefir. I also saw some improvement with Sinto Kimchi specifically with my sinuses and allergies. Liones Mane mushroom helps me with concentration. Ashwaganda relaxes an otherwise easily frustrated me. Getting some sun always makes me feel better. I weekly try to get in my diet cruciferous vegetables, Brazilian nut and wild Canadian blueberries. I was officially diagnosed 4.5 years ago but my issues started 6.5 years ago at the beginning of my 30s. I haven't worked in over four years and had to give up my social life. The biggest problems I still have is brain inflammation, inability at times to be able to focus, tendon pain, chest pain and fatigue, but none of it is as bad as it use to be, so there's clear improvement. * The worst three symptoms I use to get are virtually non existent now. Those symptoms were narcolepsy type symptoms when rain was days away in the forecast, severe painful joint pain when rain was in the forecast, tin man full body aches and stiffness when rain was in the forecast or humidity was high, trouble breathing, extreme full-day fatigue and 8 hour severe brain fog spells. I pray for your healing. Most importantly prayer and faith has helped me. 💛

Thank you for sharing your story and bringing awareness. I've been suffering from severe fibro for over 3 years now. It's so hard to explain what our body is truly going through. Nobody truly knows unless they're living with it. So thank you for sharing.

God bless you. I have had it for over 20 yrs along with lymes, babesia, sjogrens, RA. neck and back issues.etc I remember my daughter as an infant kicking off of my chest and it really hurt! I lived on Long Island, NY and started pain management. I could finally "live" instead of just existing. I was labeled a drug addict. My family could not understand how bad it all was. My whole back from the neck down either feels like it's on fire or hurts. I worked full time until 2011. I was let go and filed for disability. I am 60 now. I moved to Fl and they have cracked down so much that I weaned off meds and currently take nothing. I went the route of, physical therapy, massage therapy, accupuncture, facet injections, epidurals and cervical traction while in NY, nothing helped. I am so very sorry you are dealing with this. Very soft hugs and prayers for you.

Hi Jo I'm so so sorry your suffering from fibromyalgia I have suffered for 6 years and I got diagnosed on January 2020 after 4 years trying to find out what was wrong with me. It's nice to meet other people who have it and understand the pain we are all going through with this disease. Although my friends know I have it they dont understand and doesn't know what it does to me. I dont show up to school for a week or more because I'm aching that badly. I think it started after having Scarlet fever for months it has horrible which is what I think caused it. I'm being strong though and trying to help get through it but as soon as I got discharged from the hospital appointments It started again. I hope your life gets better Jo -From a british 12 year old

I have it 15 years now , it has changed my life , it's a nightmare.

I too suffer with fibromyalgia much pain mentally and physically

You are not alone. Please remember disability is not defeat. Continue fighting for a treatment that works for you. I also have fibro and some chronic injuries to my feet. Hang in there.