The chronicle of my MS diagnosis

Published 2024-01-09
The chronicle of my MS diagnosis is full of twists and unpredictability! 🫣😅 Find out about my first absurd symptoms, followed by my debilitating symptoms, the step-by-step adventurous process until my official diagnosis, and also some very important thoughts from living with MS for already 22 years.

00:00 - Intro
00:39 - My life before multiple sclerosis
01:08 - My first strange MS symptoms
05:01 - The trip that changed my life
07:00 - The pivotal moment and my debilitating MS symptoms
07:37 - Neurologist No 1, more MS symptoms, cortisone treatment
10:43 - Neurologist No 2, a shocking hospital experience
13:03 - A personal devastating family story happening in parallel
13:40 - Neurologist No 3, finally an MS diagnosis
14:30 - Overall physical state better since cortisone pills
15:08 - My hardest MS challenge that is still happening
16:44 - What I wish others to know about Multiple Sclerosis
17:47 - My 2 biggest learnings from living with MS for 22 years

👏🏼😊❤️ Honor me with your LIKE, COMMENT, SHARE, and FOLLOW, which will motivate me to create more videos on Multiple Sclerosis!

Follow me and join my world. A world in which we never give up, we find ways to do things differently, and we strongly believe in our inner power and endless possibilities.

My so far journey with MS has taught me a lot, and step by step I will share with you all my knowledge, practical tools, and growth mindset to overcome your barriers and achieve your dreams.

Everything started after a snowboarding trip when I lost my ability to walk and later got diagnosed with Multiple Sclerosis. Today after A LOT of self-work, I am proud to say that I am snowboarding again!

I am an MS patient, and I am also a coach supporting individuals to live and cope better with Multiple Sclerosis as well as anyone in their close environment who needs support.

If you need a more personalized approach to work on your specific challenges, physical, mental, or emotional, do not hesitate to contact me to see if we are a coaching match. Keep in mind that I never give any medical advice in terms of medical treatment. This is an aspect that you will always discuss and plan with your Neurologist and any other medical professional who is responsible for your care.

mslifecoach.com/

All the best to you!


All Comments (21)
  • @non.binary
    I am still wondering how resilient humans are when hearing stories like yours! ❤ Thank you for showing up!
  • @s.b2471
    Thank you for sharing and 💪💪always be strong 😘
  • @alinaweiss6145
    You are incredibly strong!❤ thank you for sharing ❤
  • @dazza0670
    very well explained I can totally relate to this .. I hope you are keeping well.
  • @Jennifyr-wo5cv
    😮 Lucie, your presentation simple blew me away. 🎉 TY ‼️ for THE most thorough, brilliant, successfully- communicative, yet HUMAN, kind, & humble. From a now 72-year-old S. CA woman retrospectively MSer since age 14 but no diagnosis til 1996. Blessings ❤. When's your book 📖 publication date?!
  • You have a very nice wisdom and energy. I have a new neurovascular autoimmune dissase and i am trying to get used to my self. I have neuropathy disautomia and burning feet and hands in particular but it is not the worst compared to other patients
  • @conniereeves2711
    I am 100% certain i have MS, but I havent been diagnosed, however but I think being 65 years old is going to be my biggest obstacle. I think medicare will preclude thw treatment that i would get if i was 30.
  • @Freeazabird
    I’m lost. A spinal tap is usually the gold standard for diagnosis. Are you saying your ST was negative?
  • My first symptom happened when I was about 50. It felt like there was cell phone on vibrate in my foot. That was 15 years ago. Things have gotten progressively worse.
  • @kelliebutler24th
    I have TMS I got it at age 14 now I’m almost turning 25. I live in Davis CA my tumor was in the middle of my brain stem you may be my friend if you’ll like.
  • @MM-qp4pd
    Do you use or increase melatonin. I heard it helps REmyelination of myelin . Feel better,,,
  • @scores718
    Hi Lucie. Can't you fit a small safe sturdy shower chair and not stand in shower? That's what I have for many years. Earlier I wrote general introductory hello! Hope you received! "esther"
  • @Filipa_To_Korea
    Hello. I’m trying to find someone who can help me find what I have. I thinking that I have MS because I have a lot or I can say all the symptoms of MS but because I have another rare disease that can help to have a Neoro disease they are losing time with the other disease. Can you tell me the name of the doctor of France?