Living with Harlequin Ichthyosis (Skin that Grows 10x Too Fast)

Published 2024-07-18
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Anna is diagnosed with harlequin ichthyosis, resulting in skin that grows about 10x faster than what is considered typical. Now 6 years old, she is beginning to notice people staring and doesn't like it. Anna and her family want others to know that if you want to be Anna's friend just come say "hi" and talk to her about some of her favorite things, like unicorns and rainbows.

This is the second time I've interviewed Anna. You can watch her first video at    • My Friend with Harlequin Ichthyosis (...  

Follow Anna and her family at www.instagram.com/harlequindiva/?hl=en

All Comments (21)
  • @Renfield5130
    I thought it was really cool how the mother brought up the "super power" of her skin healing really fast if she gets a cut. Its nice to hear the positives that people may not think about.
  • @neckpeck2738
    She was clearly nervous, but so brave for talking to the camera. Thank you Anna for letting us get to know you and your family! ❤
  • @kittycoven
    Anna Banana! Thanks for letting us visit again and for catching up with us about your life so far!!
  • Aquaphor company...please send these people a lifetime supply of your ointment for this little girl. Her mom just majorly endorsed you!❤
  • @HaDatWicht
    "Unicorns and bigfoots aren't real!" My favourite part of the interview 😂 She seems so sweet and her brothers seem wonderful too!
  • @JillABaker970
    I love that her school bought books for all the classes and they all learned about Anna and mom has to be recognized as well for sending home a letter and picture of Anna I’m sure that helped out so much Anna is a lovely little girl and I have no doubt she will go far in this world
  • @gabilovesnicole
    The fact that Anna responds to her brother that she remembers people staring breaks my heart. The world needs more kindness💜
  • @SarahBarah.99
    She sounds like she should study Animal Science with the passion she has already at the age of 6! She seems like such a sweet, bright and beautiful girl, and I hope that the world is kind to her as she gets older and maybe they will find some type of cure for her condition ❤
  • @nancykahn4125
    You can’t put anything past Anna…she’s too smart and appropriately outspoken. She is a lovely child,and even with her challenges, she has a wonderful future ahead of her
  • I genuinely believe that the SBSK comment section is the nicest place on the internet. ❤
  • @Malmo117
    Gosh I was taught it was rude to stare. Many people just don’t have good manners anymore. Anna is awesome!
  • @rumham7466
    I remember meeting Anna the first time! Wow doesn’t seem that long ago. Good to see you, Anna.
  • @dragonfly1745
    Hi Anna! You are beautiful and I can't believe you're already six years old! I remember watching you when Chris came to see you when you were just two years old. You were so cute then and now you've turned into a pretty young lady! I think you are also very smart and I love it that you love animals so much. I have tons and tons of kitty cats. I rescue them when they get lost and I take care of them. I also have 4 dogs that are poodles. I bet they would love to play with you. They love kids and they love to play. I am so glad you have such an amazing family. I can tell your mom and dad love you so much and your brothers do too! You are very blessed to have such a great family who support you and take such good care of you but...here is another secret...THEY are blessed to have YOU because you are such an amazing person. Thank you for doing this interview with Chris - it was so fun watching you and Chris talk. I wish you well, sweetheart! 🥰
  • @DW-lv1zr
    Thank you, @sbsk, for revisiting this rare skin condition with these beautiful people. In my 40s with ichthyosis, drs didn’t know about it, maybe 1 or 2, when I was in high school. What a blessing the way her school embraces her uniqueness and teaches kids about it. Such a difference- I wasn’t allowed to sit out of PE when I got too hot. To say I didn’t sweat was only snickered at. Her spirit is so lovely and I thank you all for this video. 💖
  • @onlyinsomniac
    I'm almost tearing up at her older brother talking about how he loves Anna. You can really hear how tender he is toward her. They're going to have such a strong bond when they're both adults.
  • I’ve been rocking with YouTube for the last 13 years and I have to confess that this channel stands alone as a platform for one of the most beautiful and empathic content I’ve ever seen. Thank you for all you do and shining a beautiful light on every amazing person you interview ❤️💯🤘🏻 Edit: just finished the interview and I’d like to add that SHES SUCH A LITTLE ANGEL 🙏🏻❤️
  • She is so blessed to have such wonderful brothers and her mom and dad. I hope research can find a way to help her more.
  • @riffmondo9733
    I love this man. Few could do this for as long as he. A wonderful human being.