Living with one of the World's Rarest Syndromes (The Story of Sweet P)

Published 2024-05-09
P is diagnosed with a form of primordial dwarfism that only she is known to have. As a child, she loved to make silly sounds and play hide and seek with her friends. Now a teenager, P still enjoys the same activities but her same aged friends have moved on. P wants others to know that if you want to be her friend all you have to do is say "hi".

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All Comments (21)
  • @mika4900
    “Hello and laughter is enough.” She has the kindest soul. I’d love to be her friend.
  • @mellowhny
    honestly chris has probably the most friends in the world
  • @garyjaycat
    I'm glad her dad acknowledged that adopting a child means removing them from the only world they know and how that can be traumatic. I feel like so many people just think that adopting is going to be only positives.
  • @keidwyn
    The word she loves to say "Amanha means "unique " in India ,Im guessing she heard it used about her a lot in the orphanage and maybe in a very kind way so it possibly gives her a good feeling to say it...You are defiantly a Amanha beautiful girl
  • @amandamarie6013
    I love how she actually pays attention to what people say, and tries to connect with them by either repeating what they say or associating something in her life. It feels like she's genuinely invested in every person she interacts with.
  • @blakem499
    Chris being attentive to learn the communication styles of different people is amazing and greatly appreciated. Communication and bonding looks different and he does so well to put in effort to learn them for each interview
  • i’m glad the parents are so cognizant of the fact that her adoption and being taken away is apart of the trauma she’s coping with
  • @Krystolsenergy
    I think she’s fully lucid and understands the conversation very well. Shes non verbal but very witty and smart. Don’t underestimate her due to her condition.
  • @k_a_t_i_e999
    “so she has a lot of trauma…”
    P: “TRAUMAAAA!!! 🥰✨☀️”
    She knows how to joke around dude I love P so much 😂😂😂
  • @haydenhilton
    Her parents are definitely correct about her intelligence, I could tell she understands way more than a lot of people give her credit for even before they said that. Her expression immediately turned from silly to serious and contemplative when they started discussing the more sensitive aspects of her diagnosis and early life. The way she looked at her dad, smiled, and kissed him when he was telling her how deeply and unconditionally she is loved was more powerful than words. It was so cute and funny when she yelled “trauma!” I’m not the best at interpreting social cues but I think she said it like that to convey how disruptive and overwhelming it feels to experience as well as to show that she chooses to rise above and even find humor in her struggles which I can really relate to as I’m sure many others can as well. A lot of people don’t seem to realize that those with disabilities can also be funny, silly, witty, ironic and even sarcastic but P sure proves them wrong. Some might assume that she is confused if she says something unexpected or that she can’t tell the difference between fantasy and reality if she talks about giants and princesses when really she’s just joking around, using tone and body language to imply what she is thinking or feeling instead of outright stating it, or using her newest creative project as a conversation starter just like non-disabled people do all the time and often get praised for. Again, I’m so glad she has such a wonderfully supportive family who see, celebrate, encourage, and support her in showing others her many talents and passions. The fact that she can communicate so beautifully and efficaciously using far fewer words than most really is an incredible gift, and anyone who doesn’t recognize that is missing out on really knowing P and getting to experience all the rare and magnificent ways in which she is intelligent.
  • @ELine39
    Perfectly said by P’s dad: “Cognitively, she is smarter than many people realise” - EXACTLY! [19:14]
  • What the dad said about replacing the bad memories with the good ones literally made me cry. That is the most beautiful thing I’ve ever heard anyone say.
  • @juliapichla1471
    The way that P’s dad looks at her says it all. You can tell he loves her so much and is proud she’s his daughter ❤❤
  • @SweetTooth8989
    Aww her name fits her perfectly. She really is a sweet "P"ea. It's heartbreaking to hear that lately she's been telling her parents she's sad because kids don't want to play with her as much. Hopefully she can make some new friends that will be there to play with her and have fun.
    She's got such a joyful personality.
    Thanks for introducing sweet P to us 😊
    Ahnana! 😊😊
  • @corrogal
    What a small world! I I find this video in my feed and it plays automatically I almost changed it but decide to watch it anyway, Then halfway through the video I realize I have met this girl before when I went to the same orphanage in September 2011. I can believe it is the same little girl I had met when she was about 3. I was on a missions trip and we use to play with her in the nurses room while she ran around in one of those baby walkers. It is a blessing to see her all grown up and so happy!
  • @leslie6569
    Oh my goodness — I used to follow the blog of the orphanage where P is from, and I remember posts about her when she was a little baby! How amazing and wonderful to see her now!
  • For me, it’s EXTREMELY CLEAR to see how smart, witty, observant, and deep P is. The way she comes up with creative ways to communicate with people is amazing! I can’t get enough of her!!!
  • @julieneild4505
    You can tell she's intelligent by the way she looks at Mom and Dad when they're describing her condition. She seems to fully understand what is being said. God Bless P and God Bless her parents for adopting her!
  • @magicsamart2343
    I looked up the We Carry Kevan backpack and wow, that father is amazing. He did his research to buy the best mobility device he could to enrich his daughter’s life and hike with her. Brings tears to my eyes 💜