Top 10 Symptom Triggers For People With Dysautonomia
Published 2021-08-01
All Comments (21)
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1. Being in the heat/sun 2. Exercise/physical activities 3. Lighting 4. Noises 5. Large crowds 6. Standing for long periods of time 7. How waters (showers, baths, tubs) that drop your BP lower 8. Stress (keep in mind how stressful you are) 9. Caffeine (skyrocket your heart rate) and Alcohol 10. Climbing stairs
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One of my worst triggers for an episode is being rushed. Like if I was sleeping and suddenly woken up and had to get ready in less than 5 minutes. I almost always wioo end up very emotional, very symptomatic, and quite ready to strangle whoever thought that was a good idea if it wasnt for an emergency
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Maybe just me, but one of my worst triggers is low blood sugar. I have to take protein bars with me everywhere I go.
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I have (diagnosed) POTS/dysautonomia, and I worked up my exercise very slowly over time with yoga then walking then running and now running 5-10K and playing hockey a few times a week, and I noticed after playing hockey, I can shower and then comfortably stand without compression garments to brush my teeth š® Exercise truly helps so much!! Doing it in a game or social environment (like hockey or a run club) can help motivate you despite POTS symptoms!
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You don't mention some of the other symptoms. Chronique debilitating fatigue, shortness of breath, dizziness, brain fog and crazy heart rhythms. Stairs, yes. for sure and often depression
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I have Dysautonomia and i found that physical therapy has helped me A LOT to where my symptoms decrease a significant amount. Weight training is awesome for Dysautonomia because you can sit while you do the exercises. Cardio for us is a no no!
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I actually also find the cold somewhat triggering... I usually seem to suffer worse in summer and winter, especially when outside.... Sucks because Iāve always absolutely loved summer and have always been an outdoors personš....
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I've been trying to figure out what wrong with me for years. Today at the Dr, a new doctor, and mentioned this. I feel like I see the light at the end of the tunnel, finally. So much is making sense finally.
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Thank you for this list! It validates my triggers!
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Anything less than excellent hydration is a trigger for me, if I slack off more than 1 or 2 days. Thank you for the lighting validation! I knew it bothered me but I didnāt know it bothered anyone else!
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Fragrance is a huge trigger for me
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It depends on what type of Dysautonomia you have on what your symptoms are. Although there can be a lot of people with the same symptoms. Some people can workout with Dysautonomia and it can make them feel better. For example Levine Protocol. Thanks for bringing awareness!š
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Thank you sooo much!! Going to let my family listen to thisā¤
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Recently diagnosed and finding all your videos incredibly helpful. Thanks for all you do!
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My Dr is suggesting there is a relationship between my Thoractic Outlet Syndrome, my bad neck, and my POTS. My HRV varies a lot depending upon the position of my arms. So holding a steering wheel and driving long distances can make my symptoms a lot worse.
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For me digestion is also an issue
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You missed one! Being alive! #1 trigger!
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Definitely the heat. I live in FL and its unbearable at times. Light form screens too. It can make me feel sick after a while. I always have to use blue light filters or keep my brightness down.
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Thank you. Just discovered stairs have me out of breath to the point of almost panic. This is a new symptom that Iāll ask my rheumatologist about. I live on the 2nd floor with 15 steps to climb.
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Allithiamine (Vitamin B1) is really helping me.
