Smouldering MS - How MS can PROGRESS Independent of Relapse Activity (PIRA)

2023-04-17に共有
Smouldering MS - How MS can progress Indepent of Relapse Activity (PIRA) Sm

Multiple Sclerosis and Slowly Expanding SELs, oh and a very overdue update on my hospital appointment consultation.

This video was recorded about 7 weeks ago but I just never posted it due to one thing or another. Mainly because I was getting through some personal issues, I had Covid (again) and then I have really been struggling with extremely low mood (I like to avoid the word depression if I can) which as I'm sure you can appreciate if you've ever been through it makes you want to shut yourself off from the world.
Anyway, this video is in no way any professional advice or information on SELs and their link to MS, or guidance of any kind - I am simply trying to understand and navigate this disease and make what I can from it.

If anyone is interested, here is a bit of information that I did manage to come across from a blog written by someone who has MS himself. The link is here www.everydayhealth.com/columns/trevis-gleason-life…

I will also put more links below for those who are interested in a deeper read on this.

neurologyopen.bmj.com/content/4/1/e000240

www.sciencedirect.com/science/article/pii/S2213158…

multiplesclerosisnewstoday.com/2018/07/09/ean2018-…

#multiplesclerosis #smoulderingms #mssymptoms #brainhealth #brain #lesion #spine #chronicillness #smoking

コメント (9)
  • This video was recorded about 7 weeks ago but just never posted due to one thing or another. Mainly because life gets in the way, I had Covid (again) and then I had really been struggling with extremely low mood which as I'm sure you can appreciate makes you want to shut yourself off from the world. Anyway, this video is in no way any professional advice or information on SELs and MS, or guidance of any kind - I am simply trying to understand and navigate this disease and make what I can from it. If anyone is interested, here is a bit of information that I did manage to come across from a blog written by someone who has MS himself. The link is here www.everydayhealth.com/columns/trevis-gleason-life… I will also put more links in the description box for those who are interested in a deeper read on this.
  • Great video but can I point out something, when you drew the third circle, look how accurately you re-drew around it indirectly looking at it! WTF, That is some very good eye hand coordination! Take care Laura
  • You drawing on that white sheet of paper reminded me of a scene from Event horizon. They also talk about black holes, a different type but with a similar outcome :/
  • So pleased that your appointment went well. I have to say that after all these years this is the first time I had heard the term Sels! I will be googling this some more and asking my neurologist about them next week at my appointment.
  • I love learning something new about this disease. It helps when you visit your neurologist if you know what questions to asks. Thanks Laura 😊❤