My first Ocrevus infusion for Multiple Sclerosis is complete!

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Published 2020-09-22
Hi all! Here I am fresh out of the hospital after having received the second and final dose of the first Ocrevus infusion. I'm here to tell you about it as I go through the side effects I'm experiencing in real time. Stay tuned and please subscribe to receive more news on Multiple Sclerosis related experiences!

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What is Multiple Sclerosis ❓
Multiple sclerosis (MS) is a potentially disabling disease of the brain and spinal cord (central nervous system). In MS, the immune system attacks the protective sheath (myelin) that covers nerve fibers and causes communication problems between your brain and the rest of your body. Eventually, the disease can cause permanent damage or deterioration of the nerves. Signs and symptoms of MS vary widely and depend on the amount of nerve damage and which nerves are affected. Some people with severe MS may lose the ability to walk independently or at all, while others may experience long periods of remission without any new symptoms. There's no cure for multiple sclerosis. However, treatments can help speed recovery from attacks, modify the course of the disease, and manage symptoms.
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All Comments (21)
  • @stupud818
    I was one of the lucky ones. Finished the second dose of the first treatment and had zero negative effects with both. But my symptoms have improved beyond belief all ready. Life is finally improving and im smiling again
  • It gets easier, mate. I have been on Ocrevus for 3 to 4 years. My first infusion as painfully, slow c. 6 -7 hours, plus I face planted onto the tiled floor my way out of the hospital. Now the infusion takes 4 to 5 hours, I don't get sleepy and can drive the15 miles home. I am in my late 60s, so you should adapt a lot quicker. The Ocrevus infusions have stopped the progression of PP MS in its tracks, as shown by my last MRI scan. However, I did start getting infections last summer. My neurologist has increased the gap between infusions to 8 months and this seems to have allowed my immune system to rebound a bit, giving me some extra protection. Good luck with your treatment and I hope you benefit mightily from it.
  • @noracat3957
    You just healed and relieved my soul.. I'm having it soon and I was so worried and scared...
  • @RandyShelton1
    I'm going in for my first infusion next week. This makes me feel so much better!
  • I just had my first full infusion today. I feel fatigued and ready for rest. Thank you for telling us about your experience.
  • @King_JaffeJo
    You keep all of us MSers hopeful Seb. Keep it up!!
  • Thank you so very much for all of your videos. I start my first infusion of Ocrevus tomorrow at 9 am. I was on Aubagio for 3 1/2 years and then it stopped working. I went from 11 lesions on my brain to over 30+ in just 4 months. So my Neurologist suggested that Ocrevus is what was best for me at this time. My insurance denied it at first, but my neurologist called my insurance and explained the importance of me being on Ocrevus and then they approved it. So I start my first infusion tomorrow morning. Thanks a bunch for your videos...they truly helped me not be so worried about tomorrow. Many beautiful blessings sent your way always. Keep shining your brilliant light ✨️ for all the world to see!!! Blessings 🌠
  • @nessasavell9376
    I am sooo thankful for that blog. It's very hard to seek proper medicine or medical help for ms in my country so it's nice to know about treatment and desease more from real people
  • @stjernoga
    Good job, take care 💕😊
  • Me alegro mucho por ti! Espero algĂşn dĂ­a poder llevar este tratamiento tambiĂŠn!
  • Thank you. I got diagnosed yesterday. Sending love ❤
  • @user-xy4ff5yp7b
    Hope it works well for you and you have a new life full of health
  • Glad your second infusion went well after the slight reaction to the first infusion. It was the same for me and I understand pretty common. Mine was a little rash on my cheek. No reaction for the first full as well. Lined up for my second full in a couple of weeks. I've asked for less Sol Medrol hoping my sleep in the weeks following the infusion aren't as disrupted as in the past. You must have remembered your snacks ;-) they help the experience greatly and having some electronic gadget to keep us distracted from the pace of the slow drips ;-0
  • @roberture5903
    Hey Seb, I hope things go great for you. I'm seriously considering trying to go from tysabri to ocrevus. Best wishes to you friend.
  • @priestessbrenda
    I start my first infusion tomorrow morning! Thank you so much for these videos!
  • @CARLAPATRICIA68
    Es increĂ­ble verte tan bien y sobretodo que tengas los medios para pagar este medicamento e alegro por ti. Yo no tengo los medios para pagar por este medicamento y me entristece muchĂ­simo.
  • Thank you so much I have to start my first treatment tomorrow plz God and I was a bit worried...