Rituximab infusion | What I packed + What Went Down!

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Published 2021-02-28
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All Comments (21)
  • Thank you for posting your experiences, Jasmine. This video helped me a lot! And I share it often when I meet people online who are nervous about Rituximab and what to expect. I really appreciate that you took the time to make and post this video and others about this treatment.
  • Thank you for your video, Jasmine. I am 65 and had my first Rituximab infusion almost two weeks ago for R.A., and Sjogrens. I will be having my second one in a few days. It has been a pleasure watching your video. Sending my best from the High Desert of Central Oregon, USA
  • Thank you so much for these thoughtful and positive videos! I am starting a 4 week Rituximab infusion course on Monday and was a bit worried. Not so much anymore! This video and your positive attitude really helped. Can't thank you enough. Stay well!
  • I am diagnosed with bulleus pemfigoïd and I had rituximab. I had 8 infusions and I am free from prednisone and all other chemo medications. After 10 years I am free of medication it's really a miracle. The side effects were worth it.
  • Thank you for sharing! I had my rituximab infusion 8.5 years ago and it was a bit of a different experience as I was fully admitted to the hospital for about 48 hours and the infusion was a very slow 24 hours. But despite initial worries and hesitations about side effects, it's been the best thing. No major relapses since! I hope rituximab gives you similar success!
  • @kerrybernier1664
    I have been going for Rituximab infusions for 2 years, now 6 months spaced apart. The infusions have worked wonders for me. Your video was really informative for first time patients but I had a little chuckle how you packed for this infusion 😂. I only brought a snack, water and my iPad. Good luck with your journey, hoping these treatments are successful for you ❤
  • Thank you for sharing this ❤ I'll have my first infusuon for prednisone dependent FSGS next week. Hopefully it will be ok. Wish you all the best!
  • @mjames-co9li
    Thanks so much for posting this. It really helped me prepare and get through my infusions.
  • @hodges-hg6ck
    Thanks for sharing. I am trying to understand what to expect.
  • @dewbottle
    Off to hospital today for my first. Thank you for sharing x
  • @eroz84
    A lot less stressed after watching your video. I have my first session in 2 weeks. Thanks for the post
  • @lucygomez6663
    Thank you so much for taking the time and effort to make these videos for us. edit) personally have had about 2 infusions and they have worked very well for me and stopped me from relapsing.
  • All the best... thanks for sharing. Keep the warrior spirit.. Cheers mate.
  • Hi Jasmine! I feel you are a UK version of me! I am from the US and your story is very similar to mine. There is talk about me getting Rituxamab within the next month so it was really cool to see you vlog about your experience. Hope you are still going strong! Much love and shout out to you, you are awesome 😊
  • @sri0230
    I know my comment is super late but I am a 14 year old with the same condition and I had it since the age of 3. But I am finally starting Rituximab on the 17th. Your videos are so relatable and make me feel a lot more at ease. I am going to now binge your videos and sub.
  • @MrW582
    Hi, great informative video, I've been on Ritux for a couple of years now for inflammatory Arthritis. In my trust i have to get my ritux over 6hrs; all depending on how busy they are getting my pre meds done i can usually leave around 1730 in afternoon after 8:00 am start. Its such a loooong day and while its just sitting down all day it can be really tiring. I dont know about yourself but the only real side effects I get is for around 3 days after I feel a little washed out and under the weather but nothing that isn't managed with rest and a good boxset with chocolate. wishing you well, keep smiling 😊
  • @roja091986
    Hope you are doing well. Thank you for sharing your journey. Mother of a nephrotic warrior!
  • @NeilBradleyMS
    What an absolutely awesome and informative video. Thank you!! I’m having Rituximab mid June. Hope your feeling well after the treatment. All the best. Liked and Subscribed 👍🙏
  • @barryscotland250
    Thankyou for your insight. I'm 50 and a bit scared I'm 6'2" 150kg skinhead and I feel like a kid before the dentist. My Ritux appointment is #1 tomorrow morning. I feel a bit more at ease thanx to you. Membranous Nephropathy is stripping me of 2/3s of my bodies protein and as a result my cholesterol is high so on warfrin also. Thanx again x
  • @tobadoba18
    I came across your videos trying to see what to expect. I have my first Rituximab infusion on Monday, August 2nd. I am extremely nervous to say the least as I have had bad reactions in one way or another with all the medications I have tried. This is kind of like my last hope. I do not have nephrotic syndrome and am kind of a medical mystery or so I have been told. Basically my inflammation is 6 times higher than what is normal. It is affecting my organ systems now. I also have joint stiffness, incredible swelling. On the other hand, I see a Hematologist Oncologist because my blood markers lean towards a B cell cancer, like lymphoma, multiple myeloma. They both agree, Rheumatologist and Hematologist, that this is the best course to try now. I am going to ask them to put it at super slow speed at first, I have plenty of time...lol. Again thank you for sharing your journey with us. Prayers for good health.