COVID Long Haulers Mast Cells (Mast Cell Activation Syndrome - MCAS) Part - 2

As a covid long hauler of 8 months now, I can tell you that this information is completely accurate. I kept suffering from PEM and could not figure out what the cause was, until I went on a histamine elimination diet. Before the diet, I had constant shortness of breath and sore throat and a feeling like my lungs had been burned with acid. Now that I'm on the diet, the sore throat has disappeared, the shortness of breath has gone away, and my neurological symptoms are improving. When I accidentally eat a food with histamine such as forgetting to peel cucumbers, or accidentally having salad dressing with lemon juice in it, I lose my voice, get a sore throat, and start experiencing shortness of breath again. I also noticed that canned fish like sardines cause massive neurological symptoms, forgetfulness, and clumsiness, due to their extremely high histamine content.

Your cat is bringing joy to my life right now. 😂

Another way to look at it is that nervous and immune system don’t go from sympathetic to para sympathetic, so it always inflames and never rests and digests.

When I heard the meow while I’m here in the kitchen, I thought it was one of my cats and I said out loud, “Que paso?!”… 😹 Thank you for the continued information on LC. 💜 it has changed my entire life, still fighting to come back from it. 💪 3 yrs now.

I have been studying Dr. Afrins work for the last 2 years. When Covid19 came up, I started with your lectures. I had a guess, mastcells have a role in the Covid19 topic. And finally those disciplines finding common ground makes a lot of sense! Great great presentation. 🙏🏻🙏🏻 This is an important coming-together!!

Thank you so much for not dumbing this down until it becomes unusable information. Love this doc 💖❤💜💙🖤

With the first shot of Moderna, I was foggy for 7 days. After the second shot I have been foggy for 71 days and it's not letting up. I got it from the shot not the virus.

Whole family had covid in July. My 38 year old Son in Law and myself ended up in hospital. I came home after 10 days but my Son in Law didn't. He died on the 2nd of August. I have been searching..trying to understand why a fit man in his prime should die yet I survived, aged 62. Also why the rest of the family sailed through covid, with no complications.. The only difference between us was that George and I always reacted adversely to insect bites. Both of us had secondary reactions with large, inflamed blisters. Having listened to the first 2 lectures I am convinced that George and I had MCAS. I am of course a long hauler now although improving slowly each month that passes. Chest xray not yet normal and awaiting a CT scan.. I intend to research the low histamine diet and see what difference it makes. (Of course I eat all the foods that are on the 'bad' list - have increased fermented foods to help my gut flora..) Thankyou for sharing this information and presenting it in such an easy format to understand.

Await the chapter on the mRNA vaccines, and their role in Mast Cell activation (and regulation/stabilization)! Thank you for the BEST illustrated talk on this vital topic! Sincerely, RAS/MCAS pt.

A pretty heavy lecture, but excellent explanation for us folks to understand. This video is relevant far beyond Covid19 and will go long way to help many people with Chronic allergies. -Himalayan Been. Thank You Doctor Been.

Love your illustrations

Quite convincing argument in favour of MACS. I shall like to try in future work up of these clinical issues

I have experienced MCAS and nearly died in 2020 from Histamine intolerance Post Covid. I have displayed POTS symptoms PRE-C-19 as well. I contracted again in 2021 When I stop my Zyrtec-D I get very fearful. 😰 thanks 4 bringing Loofi ♥️

Very interesting and informative ......many thanks !

Your cat's meow woke up my cat ...who is now searching the room for that cat. I dont want to shut the volume down....but my cat was starting to growl at thst cat's meow.

My daughter was diagnosed with Ehlers-Danlos syndrome at age 15. I spent so much time researching as few docs understand EDS. I learned that there is a strong relationship with EDS and MCAS. But, I was too busy just trying to literally keep her together, going through numerous surgeries and helping her with her severe dysautonomia. When she was diagnosed, the top geneticist in the country for EDS, Dr. Brad Tinkle, said she most likely got it from me, but as a middle aged woman, I would not be as flexible as I once was, and would not pass on the Beighton scale for diagnosis. The same was true for both of my boys. They have many of the same symptoms such as POTS. Fast forward...last summer our whole extended family came down with Covid. My 24 yo son, who is very healthy, spent 5 days in the hospital. My oldest son was extremely sick, but thank God, was not hospitalized. I spent 6.5 wks in the hospital including 11 days on a vent. My daughter got it 3 months later and was hospitalized for 5 days with 2 days on high flow in ICU. My son said there has to be a link to something in us that made us get so much worse than others, even ones in our whole family that weren't as healthy as we were going in. Someone on Telegram sent a link to 1 of your videos on MCAS. The light bulb went off. I have been researching again, and your videos are amazing. Thank you for your indepth, yet easy to follow teaching style. Now I just have to find a GI doc who will listen and be open to learning, so I can get some real help for increasingly bothersome IBS-D that has gotten so much worse following Covid.

Loofi clearly thinks Dr Been has lost his marbles, talking away to a box!

My cat started meowing like loofy. 😁

Hi, 3 months of debilitating symptoms: feeling of fever/hotness, headache, muscle pain, sweating. All gone after incorporating rupatadine and cetirizine, I need to take them before sleep because I don't tolerate them well at the day (sleepiness, depression). It's the thing.

Some SSRI drugs have off label mast cell modulation like doxepin. It has helped my stack. We can use some of what we have learned from COVID research to help us MCAS warriors