Consider Chiari Grand Rounds: "Mast Cell Activation" - Anne Maitland, MD, PhD
Published 2020-01-20
Bobby Jones CSF believes it is critically important to not only educate patients and families, but also the medical professionals who treat and interact with them every day. We were thrilled that SEA Board member Dr. Sunil Patel and the Medical University of South Carolina agreed to host a Consider Chiari seminar to achieve this important goal of educating medical professionals.
Dr. Anne Maitland presented the concept of mast cell activation to a room full of current and future medical professionals. The goal of this seminar was to better equip these professionals to recognize, identify and appropriately treat mast cell dysfunction in patients who present in neurology and neurosurgery clinics.
Thanks to MUSC, Dr. Patel and Dr. Maitland who traveled to South Carolina to give this seminar at Grand Rounds on November 21, 2019. (2019)
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All Comments (4)
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So wonderful and full of information!! Unfortunately I'm stuck on the doctor merry-go-round. A gastro blamed it on my "thoughts" and the allergist (#2) said it was because of dry skin but my skin is super soft so not dry. And then that's the end of the visit and you are out the door with no answers. I tell them and show them I'm hypermobile but it doesn't mean anything to them. In fact the gastro was mocking me and was trying to hold his leg the way i was holding mine but he totally missed the fact my knee was hyperextended!! So you end up just living with the MCAS while you grow more and more sensitive. I now often react to cooking fumes from restaurants an entire block away. Problems with other stuff too. I have symptoms of Pots too but my primary doesn't do the test for that right either (she had me lie down for a minute and then get back up) so i get nowhere but discouraged. She doesn't see any connection between joints and gut issues. She blamed the fact my heartbeat goes from 55 to 89 (at home when lie down for 10 minutes and then stand up) on anxiety, said not to play with an oximeter. And i keep getting sent to the allergist who only does useless IgE.
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I'm looking into this right now with a doctor.
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Sore throat, sinuses pressure, stomach cramps, fatigue, frequent urination, headaches, etc. I was tested for throat infection, urinary tract infection, flu, chest x-ray, etc nothing, they're all negative. Could it be allergies? Could it be histamine intolerance? Anyone had the same symptoms? Every time I went to the doctor he prescribed me some vitamin D, because I had low levels of vitamin D. Lately I have been taking over the counter vitamin D3, but I have these symptoms for about a few weeks now. I just came across this video doing my own research, hoping desperately to find some answers. I had the same symptoms many times before. They come and go more than e a few times throughout the year.
