Dr. Lawrence Afrin Discusses Mast Cell Activation Syndrome (MCAS)

Published 2021-08-04
Please read and agree to the disclaimer before watching this video.
. Dr. Lawrence Afrin Discusses Mast Cell Activation Syndrome (MCAS)

We are honored to have world-renowned Dr. Afrin sitting with us to discuss MCAS.

Twitter link with questions: twitter.com/drbeen_medical/status/1422291688781844…

Dr. Afrin's bio:
After a B.S. in computer science at Clemson University in 1984, Dr. Afrin earned his M.D.
at the Medical University of South Carolina (MUSC) in 1988, where he also
pursued internal medicine residency and hematology/oncology clinical and
research fellowships.  On faculty at MUSC
1995-2014, he was active in medical education plus information technology and
educational administration (including hematology/oncology fellowship director 1997-2010)
and practice and research in hematology/oncology and medical informatics.  Since the mid-’00s, his clinical work has
increasingly focused in hematology, especially mast cell disease; he also
directed MUSC’s myeloproliferative neoplasms clinical trials program.  Since 2014-17 spent furthering his interests
in mast cell disease at the University of Minnesota, he has been developing an
independent institute (located in the greater New York City area) for advancing
care, research, and education in mast cell disease; he also is working to
develop a global investigative network in this area.  He has spoken widely in his areas of focus;
his extensive publication record includes some of the most highly accessed
articles about mast cell activation syndrome and a popular book in the field.  He has served on editorial boards for several
journals and medical advisory boards for various organizations including The
Mastocytosis Society.


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Disclaimer:
This video is not intended to provide assessment, diagnosis, treatment, or medical advice; it also does not constitute provision of healthcare services. The content provided in this video is for informational and educational purposes only.
Please consult with a physician or healthcare professional regarding any medical or mental health related diagnosis or treatment. No information in this video should ever be considered as a substitute for advice from a healthcare professional. ...

Disclaimer:
This video is not intended to provide assessment, diagnosis, treatment, or medical advice; it also does not constitute provision of healthcare services. The content provided in this video is for informational and educational purposes only.
Please consult with a physician or healthcare professional regarding any medical or mental health related diagnosis or treatment. No information in this video should ever be considered as a substitute for advice from a healthcare professional. ...
Disclaimer:
This video is not intended to provide assessment, diagnosis, treatment, or medical advice; it also does not constitute provision of healthcare services. The content provided in this video is for informational and educational purposes only.
Please consult with a physician or healthcare professional regarding any medical or mental health related diagnosis or treatment. No information in this video should ever be considered as a substitute for advice from a healthcare professional.

All Comments (21)
  • @carolann1727
    “Just stop for a moment, just stop and think.” What beauty in the simplicity of that statement. To me, what he is saying here is: be a healer, not just a physician with diplomas on the wall practicing by the book. A profoundly important message to healthcare professionals today. Dr. Been & Dr. Afrin, thank you both.
  • @godsgrace5777
    It’s so refreshing to listen to doctors that actually seem to care about their patients. I have had terrible experiences having any doctor to even listen to me. It’s so hard and now I just live with it. Thank You for giving me some hope for humanity ❤️
  • @erinhession
    This was a great interview! I could listen to Dr. Afrin speak all day! I have MCAS and got "lucky" - I react to cigarette smoke and the day that I went to do labs, the gentleman next to me smelled like smoke. I had a reaction, asked the lady to quickly take my blood and sure enough, my histamine levels were through the roof! It was nice to be able to prove that this crazy disease isn't all in my head. LOL!
  • I watched this video a year ago and diagnosed myself. I know I would not get a Doctor in Australia to listen. So I went on a FB MCAS group to get advice from others. I started on supplements for this. I went to a new Doctor for long covid and she straight up said You have MCAS I nearly dropped through the floor. I showed her my supplement list and she was very impressed. She went through the dosages and timing etc and added to my list. She did blood tests and I have high histamine in my blood.
  • @StateofKait
    Thank you Dr Afrin. I was just diagnosed with MCAS, POTS, and hEDS after a lifetime of pain and illness. I finally feel a sense of hope that my life can be better one day.
  • @megsarna7429
    Dr Afrin is one of a kind doctor who speaks the truth 😊
  • @dgsmith9969
    After 60 years, finally found a doctor who recognized how my life long symptoms were linked together. I've spent most of my life with doctors treating me for depression and telling me to keep taking Benedryl. I can't take it anymore without getting restless legs bad. Even when I coded in the hospital during an x-ray, they just said don't eat seafood. Male physicians are mostly concerned about my mental health. Imagine. How can mental illness cause anaphylaxis more than 50-70 times in my life?
  • @hmstea1693
    Thank you Dr Afrin for caring about patients and for all the years of your research. Love your book and dedication.
  • Brilliant interview Dr Been. Arthritis, tendinitis, gastritis, neuro~inflammation, oesophagitis, hepatitis, you name it, it is inflamed. So 12 different diseases, 12 different hospital departments, or a single inflammatory disease like MCAS?
  • @rhondatosh3255
    My husband had MCAS… we used low histamine diet, along with supplements… wonderful outcome!!!
  • @frankporter6169
    Just think about the millions who might have this syndrome who don't have access to the necessary finances, physicians, medical care or testing. I'm an expat living in India. If I were to seek diagnosis for this illness, the physicians and medical staff would laugh me out of their offices. Thank you DrBeen and Dr Afrin.
  • Thank you so much for this interview!!! I was sooo keen on you both talking and discussing those related topics! 🙏🏻🙏🏻🙏🏻
  • @teresalipot7111
    I moved to a rental with a pool, which we later learned was leaking 400 gallons per day. We later learned the house was infested with mold. Within a month of moving there my eldest was admitted to the local Children's Hospital. He was (mis-diagnosed with Esinophilic Esophagitis) and the mast cell issues completely ignored by the Gastroenteritis...perhaps because he had an Esinophilic clinic? Thank God my local University Hospital (in conjunction with the local Children's Hospital) had an Ehler Danlos expert Genecist. In her notes explained that I had EDS and therefore was likely to develop either Mast Cell Activation Syndrome and/or Postural Orthostatic Tachycardia Syndrome. From that point on I was no longer accused of being neurotic or exaggerating my symptoms.
  • @llkoolbean4935
    The discussion of the mast cell evolution is fascinating.
  • @leonerose1715
    WOW...what an incredible amount of QUALITY information. Could have to you both for hours. Bless you. Loofy must have liked too, because he was so quiet. ☕
  • @desertself7538
    Dr Been, So wonderful again. I have Dr Afrin's book - a million unbelievable case histories. Thank you both.
  • @hughtube86
    11:40 for doctors/patients wanting to skip to the clinical indications for MCAS