POTS Flare Up (PART 1) | What Causes a POTS Flare??

Watching this because I’ve been in a horrible flare up for about a week now. And no end in sight. I was on a strenuous field trip today. And I almost passed out. And threw up. It was horrible. I came home and wiped out for 8 hours. Just woke up and now I’m so sore everywhere.

My biggest daily issue is over doing it. I tend to sit all day long for the past year now although I try to keep active as much as I can. So on the "rare" day that I need to run around all day long, like for a family trip to say.... a museum, as long as I keep moving constantly, I can do it, but then I "crash". Hard. My whole body hurts something awful, everywhere, but usually it's my upper back around my "bra-line" that hurts the most. I'm exhausted for a day... or four. 😬 And depending on how much running around I was doing, the brain fog settles in. It's like being reduced to a child just following others around and doing what I'm told like a child rather than functioning like the 30-something woman I am. It's embarrassing. If it gets to that point, I NEED someone to essentially take care of me like I'm a young child because I'm not thinking straight. I hate that.

FINALLY…. Someone else feels worse after taking a nap!! You’re the first person to agree with me! Also if I lay my head down while watching tv or reading I feel like crap and get an instant headache!!

awesome video !! It’s good to know that other people have flare ups and have similar symptoms and triggers. It can feel very lonely when I’m at home and not at the pool with other people or friends. You’re awesome, keep up the rest work !!

I have Pots (1year) and living in Australia is hard in summer I generally can't go outside if over 23 degrees lately it's been 40+ degrees Celsius. I've just been diagnosed with hashimotos aswell it's been a week and I've had major migraine nausea, extreme fatigue and hot flushes constantly, I ended up in hospital with fluids and pain relief. The doctors said it was Pots Flare up I feel I've been doing everything right eating healthy, non smoker non drinker, I feel my body is failing me, having two kids and being 30 not what I imagined at all. Thankyou for you video I will try these tips to see if it will help. ❤

I don’t mean to sound negative but I don’t understand why people seem so perky in these POTS videos. That is not my reality with POTS at all. Anyway, this was helpful.

Undiagnosed, hoping for cardiologist referral this week (for years just treated for anxiety and asthma, I know it's not those). I have two kids and am pregnant, I'm lucky if I can get one household chore done a day with a kid helping me right now. My house is awful, its humiliating. But I can't get enough air in to keep up with how hard my heart is pounding when I get up and around. I don't even want to eat lately, I don't have the energy. 😥

Hmmm maybe I have POTS too... I'm sensitive to temperatures... sometimes I can exercise a lot and sometimes I cannot do anything! 🤔 My cycle takes a lot out of me too and I always wondered why my hubby is fine with 5-6 hours where I need more....I drink water but I probably need to use your tip from the other video and have more salt. I have felt awful this summer! We're trying to sell our house so I have a lot of stress and mental health issues right now hmmmm..... glad to have found your channel it has given me a lot to think about.

Oh my goodness I might have pots. Seeing my Cardiologist next week and between the diet and heat elements it sounds like I might have it. He noted I had pots like symptoms last time but I noted I feel fine from a sleep position to a standing one.

I have jra, was on statins from childhood, and took a lot of birth control back in the day. I wonder if those things are related… Now on top of the pots, I have a histamine response to heat. I get very itchy and even get hives when I’m hot or reasonably should break a sweat. Anyone else with pots have histamine responses to uncomfortable temperatures?

It often averages around 100f here in the summer and the amount of times that I haven’t been able to get out of bed or needed to go back is insane, especially at my parents house where it often gets around 115🥵. It’s definitely not uncommon for me to need to go back inside and lay down after going outside without even getting the chance to do anything… always needs to be either early morning, evening or not at all which is kind of annoying given how much I’ve always loved summer and being and spending time outside and doing stuff in the garden😕  can certain medications ever play a role in flare ups? Just I remember there was this one point that I was almost bed/couch ridden until I started to lessen one of my medications and slowly started to be able to get up and do stuff again as I lessened the dose… I still get flare ups and stuff but they are nowhere near as consistent or bad as they used to be. I would honestly love to get off this medication entirely and see if that makes any more of a difference but I doubt that will happen..

Do you think it's possible for a flair up if you eat hot foods? Whenever I eat oatmeal in the morning or another hot meal I feel awful for several hours after. Also, I have 7 sleep disorders but let's not talk about that. 😅

Hi Aimee! Thanks so much for your videos! I am currently waiting to see a doctor for my POTS symptoms. I am however 99% sure that I have it, after wearing a heart rate monitor for a couple days. Anyways, I am INCREDIBLY fatigued every single day. I have to sleep at least an hour during the day in order to get through the day. I was wondering if you think that it could be POTS related? I am only 20 years old and I just want to be able to stay out all day, but currently can't. What do you think?

Had no clue that sunburns would affect POTS! Very Informative. I feel like im not getting enough air in even though I feel fine and my heart rate is steady. Anxiety or POTS?

Do you have any recommendations for walking around with (possible) POTS? I’m in college, a commuter student, currently trying to get an official diagnosis of POTS (suspected by an urgent care doctor in the June due my how my heart rate will go from 70s to around 120s if not higher, got to 163 the other day on my fitbit inspire hr just seconds after standing ((luckily I don’t faint or at least haven’t yet. I’ve fainted once last summer from dehydration but that’s been it so far for fainting))I have my first cardiology appointment on the 22nd) and I have to walk around campus to my classes. Last semester prior to suspecting I had POTS, I was sick a lot but then developed all these POTS like symptoms that continued after I was better and still continue. I would be walking to class in the beginning of the semester and over time I noticed I was getting more tired, I’d get short of breath, and muscle pain when walking across campus to class than I had in previous years and it’s only getting worse. What used to take me 10-15 minutes to walk from one side of campus to the other is now taking me 20-25 minutes. Now after walking from class to the student center I have to lie down near my friends and take a nap because of how exhausted I am just from walking or at least give myself some time to rest whereas in the past I was able to do so much more stuff once I got there. I used to be able to walk miles around campus when I lived on campus and if I can walk 1-2 miles throughout the day it’s been a good day. Mostly just walking half a mile, about the distance between my student center where I get dropped off and my classes on the main part of campus or from my student center to my classes on the other side of campus across a busy intersection, will have me stopping maybe every quarter mile to rest. Do I just need to give myself more time to get across campus? I give myself half an hour prior to the start of class to get there on time and there have been times when with breaks I’m pushing being on time. If I ever get the official diagnosis, I plan on telling my school heath center about it for their records just in case. I just don’t know what to do as far as walking. If you read this thank you for reading!

One thing and one thing only; stress, stress, stress... (heat is a stressor)

what are the symptoms to pots!!!