Symptoms of POTS | How to Know If You Have Dysautonomia

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THANK YOU FOR SAYING NOT EVERYONE FAINTS WHO HAS POTS!!!!!!

I've been feeling awful for a very long time and I've seen over 15 doctors who tell me nothing is wrong. I posted a video on TikTok out of frustration and a nice woman reached out and told me to look into POTS. This is the first video I'm watching and I'm laying in bed crying because everything you're saying I have. I'm going to be an advocate for myself and talk to my doctor about it!

Does anyone else have like adrenaline surges? Like the slightest things trigger my flight or fight & I feel my heart start to beat out of my chest, followed by heat flashes, nausea, weakness & exhaustion. It happens so abruptly. Its more of a physical response because I’m usually not anxious prior to the episode.

My husband and I have realized I don't pass out, I sleep out. Basically my body will go all the way up to about to faint, but I have never actually fainted. Instead I get EXTREMELY sleepy and end up sleeping for several hours. At those times I wake up with similar symptoms as someone who wakes from a faint. It takes me a bit to fully wake and clear the fog from my brain.

im just crying right now because im so done with the sympthoms. i miss it when i felt healthy. 😭

I understand the eye dilation thing. The sunlight hurts my eyes so bad. I went gluten free and took more B vitamins. Drink more water and take cayenne pepper capsules 3 times daily.

I have never passed out either but have gotten close! Aghhh the brain fog it is horrible! (Sometimes I call it brain FROG!🐸) I sometimes feel really stupid because I can not even carry a normal conversation because my brain fails me! I hope it's true about teen POTS disappearing-I'm pretty sure my oldest has POTS too. This was a great video! I'm so happy we could collab together-this was really fun! I still can not believe the amount of problems that come with POTS. I'm slowly working towards feeling better and I hope I can manage now that I know what to look for!! Awesome running into you-an answer to my prayers for sure!!😍

I am literally in tears because i was diagnosed with pots today i found your video just by like researching i have literally every symptom you said i am in tears because for years my symptoms was brushed off to be only be anxiety today it has a name thank you so much for your video !!!!

Okay, to start, your audio is amazing, your background is amazing, basically you are crushing it!!!

I’ve been symptomatic from POTS for pretty much all of my memory but I was diagnosed when I was twelve. I’ve met some people with POTS that only have a few of the symptoms. I have nearly all of the symptoms, short of syncope. I’ve only passed out on one occurrence and it’s what led me to be diagnosed. But my main symptoms are near-syncope nearly every time I stand up, dizziness, migraines, fatigue, exercise intolerance, heart palpitations, lightheaded ness, nausea, and chest pain. I have gotten frustrated with doctors telling me that I would grow out of POTS and not taking me seriously because I’m a teenager, but my POTS has only gotten worse as I’ve gotten older. I know it’s a possibility, but it shouldn’t be told that someone WILL outgrow it. We just don’t know. It’s hard dealing with stigma, because I could be having a really symptomatic day where I can’t hardly get off the couch or I need to sit down in public or in the middle of walking to a class, etc. and being called a “lazy teenager”

I was diagnosed at 12, I'm 14 now still have it. Pots became an issue for me when I moved across the country because I was stressed out a lot and then that lead to major anxiety. I am going to a school in The Children's Hospital made for sick kids, I am doing better, the reason it took so long for me to get better is because I was lazy and fel lethargic and told myself I can't do anything. I am doing more than I ever have now. So if you are scared I was too, but now I have hope. Hope is all you need and you will believe in yourself and get better.

My daughter was diagnosed two years ago but the doctor said she barely had it. Her symptoms have increased this year drastically. She’s 20. It’s frustrating because we need a good doctor that doesn’t say she “barely” has it. Thank you for the video. It just confirmed her diagnosis all the more.

My doctor told me I have fibro but listening to the pots symptoms this sounds more accurate to my situation. Thank you Amiee ❤❤❤

I have 17 of the symptoms you just described.I’ve had these since my 20’s…I’m 60 now.

Aimee you are still a teacher- I learned sooooooo much!! Thank you so much.

POTS is also correlated with EDS. If you're having POTS symptoms and pain, definitely look into EDS (Ehlers Danlos syndrome)

Recently found your channel after being diagnosed. I have had Chronic Fatigue Syndrome/fibro for almost 10 years. I never realized POTS was a thing because I just assume it was CFS because the symptoms all overlap. Wasn't until I saw a new specialist that he picked up the irregular heartbeat 10 years into having CFS and sent me to a Cardiologist. Your videos are helpful and I cant wait to watch more

Omg I had no idea about pots until tiktok, when I was a teenager I passed out twice from standing up too fast and my parents thought it was low blood sugar/pressure but I had/have still quite a few of those symptoms and now I’m thinking I had it for a few of my teen years, thankfully I only have a dizzy spell maybe every two weeks, but I’ve suffered from the aforementioned (by you) migraines since I was at least 16, and still do quite badly, idk if I still have it or ever did, but if I did then I’m glad I clicked on your video to be informed about it (:

Hi Amy, I am Nicole, I’ve actually had parts since I was 14 years old. And I stopped my medications when I was 16 because I was being stubborn, and in denial. Now that I am 20 my part is flaring up, so bad that now I have to restart my medications and I can barely do activity, it’s really really sucks. I’m thinking of doing a video on my YouTube channel on pots as well. I recently started using compression socks like you have recommended, and they work pretty well, because my feet are always numb. So I am grateful that there are people like you out there, who can really inspire us people, who have parts. I have parts, and I’m blind, so the sound to sensitivity is now completely and horribly extreme. I jump for anything. LOL