Having a Multiple Sclerosis Attack!

Your a strong man Seb, I love you for all your positive thoughts. Put your self before anything else that is so much more important than work, although I understand I to am trying to work up the courage to tell my work about my Ms. I have been practicing by telling customers at my job and everybody's response is so positive and uplifting it really feels like I'm taking some of the weight off my shoulders. You are more important than any job Seb if one day you are not feeling well don't be afraid to miss a day or two of work or show up late if you need some more rest, letting them know you have Ms would really help them understand why every now and then you might have to miss. I think we are both going to be surprised how supportive and understanding our jobs will be about it. Love you Seb get some rest you will be feeling Much better In no time☺💗💗💗

I encourage you to go on a ketogenic diet. It may significantly help you with your symptoms. Ketones makes the brain respond differently. It was used to treat epilepsy in the past but is also effective for any neurological conditions.

Sorry to hear, man. I hope you can get that inflammation down soon. Also, I know that stress is a danger for us, but at the same time I don't think blaming yourself makes total sense. Some attacks may just happen no matter what. Anyway: be strong and rest up.

Thank you so much for posting this. I'm currently experiencing a similar situation and it's nice to know I'm not alone in the feelings of guilt about my new job and such. Stay strong.

stay strong! it really is a bummer when a attack comes. hopefully they will stay away for another long time for me. but as you see in the video they will come as a surprise. i am always honest about mt MS, but is always a difficult thing to tell. and i have a job that embraces it and when i need a time off it is not a problem, but i have not had a attack in a year :)

You are an inspiration. I have been lashing out at the world since I was diagnosed with peripheral neuropathy. I hope to gain some of equanimity in life . . .

Sorry to hear you're not good at the moment Seb. Stay cool (not over heated), rest as much as you can & drink plenty water. If you let work know of your condition you may feel a weight lifted. Hiding it may only increase your stress. BIG HUG xxxx

Hi Seb, glad to see you back!

I broke down into tears while I was watching this videos, i exactly know this feeling is because Im in the same situation with a new job but with more symptoms. I worked for 6 to 7 months later couldn’t manage told the authorities asked for no pay leaves but dint show back yet. I know I wanted to be working right now but I culdnt act the same on daily basis getting new symptoms each day, I’m new to this diseases not yet fully diagnosed, reported as having demyelination it’s so stressful, lot of questions running in my head don’t know how to cope.

So sorry for you. I send you as much strength as I can. You are in my thoughts. (Please do not apologize for your beard. Even if I also prefer when it is trimmed, you don't look bad with it !)

I'm so sorry to hear that :( Unfortunately, this year is not being kind to some of us suffering from MS. Since March I have been felling an acute brain fog, dizziness and vision-related symptoms. In one of those symptomatic episodes, I woke up and as I was putting my glasses on I was unable to correct my vision, I continued to see everything blurry and a strange pool-like effect in my left eye. I went to a neuro-ophthalmologist and there he saw that I had a bit of damage on my optic nerve due to the illness... This summer has been awful to me! I hope you get better soon. Take care!

Thankyou so much Seb for your insightful, measured and down to earth way you delivered your words / description of what an MS attack feels like for you. I know what it's like to feel that you get back up just to fall down again and can wholeheartedly relate ( I was diagnosed with aggressive Relapsing Remitting MS in 2014 but according to old scans have had MS for over 22 yrs). I finally have a great MS team in Melbourne Australia. It's a bloody hard journey . Getting the message out there to help others understand from an MSer's perspective is so important

Going through the same thing right now, I appreciate the video.

I am sorry for what you are going through. I hope if you tell your employer they will understand. Stay strong 😀

Hi Seb. I’m sorry you’re having an attack. They are sooo annoying. I was diagnosed with MS in 2001 and now I get attacks very often. I recently had 6 days of solumedrol (similar to prednisone) steroid infusions and they made me very ill. I am a little better but am still having a lot of symptoms. You must get copies of all your MRIs, as they belong to you. Just request them with every MRI and they will give you a disc. They should be free of charge. I understand the guilt factor. For years I felt guilty for all the things I could no longer do. Surrender has been a real struggle for me! However, I have turned the guilt into gratitude. I’m grateful for all the things I can still do, even if I do them much slower and needs tons of rest all the time. Aww you are a beautiful with or without a beard. It is wise you’re being safe and not shaving right now. Sending you love and prayers that you feel better soon.

hang in there through this difficult time......keep the future in mind.

Thank you so so much for this video I seen a neurologist last July and have a couple of 'non specific white matter hypertensities' they said you are ok it's only migraine damage, I've cried too many times begging for help but now I am reffered back to neurologist due to these eye pulling attacks, electric shock sensation left side of head and 3 seizures to date, I also have a weak spine and constant trapped nerves in my neck, I got diagnosed with a lesion at the back of my eye in 2015 too so it's probably started since then, I'm convinced I've got Ms now but feel at peace I'm not going crazy . I hope you are doing OK lovely man x

How are you, man? It would be great to get some update. Had an attack two month ago, at the same time as you. Now everything is almost ok. Hope you are feeling good too! Cheers from Ukraine!

Very helpfull. thank you! I'm studying to be a nurse, and this will help me on the exam! Hope your doing well, bless your soul

I hope your doing better now. I suspect I have ms as I have alot of similar symptoms to yours. Stay strong and take care of yourself. I have an appointment with a neurologist next week. Wish me luck 😬