Multiple Sclerosis can hurt! Pain Syndromes in MS

I am SO GLAD you realize and are educating people that MS DOES hurt... a lot!! I have experienced all of the types you discussed, with the exception of ocular pain, though I do get headaches a lot and moving my eyes or head suddenly will mess with proprioception. Right now, musculoskeletal, the hug, spasticity, and numb arms and hands are my everyday, constant companions. Today is a relatively good day though, so I’m thankful!

I have been going from one GP to another GP for over 10 years due to what you describe as the MS hug. I had no clue of what it could be. None of the doctors I saw had a clue. I suffer from most of these symptoms you just mentioned. I decided to just be quiet and not bother going to a doctor because they cannot help me. I had to go to the ER and they recognized some of my extreme pain complaints. I’m finally going through SCANS and MRIs etc. Now I’m waiting for results to move forward. I had the first MRI that showed something and several others now. Your videos have been most helpful to me at least they got me to a point where I did not give up after all. Thank you. (Even though I’m watching them months or years after being posted)

You explained everything I feel. It can hurt so bad some days. The tooth pain you said is horrible. I also the same ice pick type pain in my ears and ice pick type pains in my brain. The pain stuns you and you need a few minutes to figure out again what you were doing or saying. I also can feel like I have bugs crawling all over my skin or stinging or bitting me and can happen at the same time as a nerve electrical storm. Very painful. I have some nights taken every single pain killer, muscle relaxers, anxiety pills, weed products, opioids, sleeping pills and not been able to move from all the meds but still the pain won’t subside. MS can be very painful. I do have many good days but some days are so bad, nothing helps. Thank you for caring and studying MS to help us with it!

God Bless you!!! I've been told by so many doctors, even my own MS doc I see now that MS isn't painful, I usually tell them to walk a mile in my in shoes & I bet they wouldn't make it a block. I've just discovered your videos & am watching them , but I had to tell you how grateful I am to know that there is at least 1 doc out there that knows his stuff. I've been fighting the MS Monster for 28yrs. God Bless you, Doc.

When stationed in Ohio, I was in the process of an MS confirmation after an array of probs & a bad MRI. Moved to a new base, and 10 yrs Iater, I'm still struggling to get a diagnosis. It sucks. Need more docs who know what they're doing, and care about the patients more than money. 💙🙏🏻💜

Dont understand why anyone would claim MS doesn’t cause pain??

The first neurologist that I saw claimed that "there is no pain associated with ms." It took a long time before I encountered a neurologist who acknowledged that ms could indeed cause pain. Wasted many years of my life trying to find a competent neurologist. In the meantime, my ms worsened.

So glad I found your page. So many of the pain symptoms I am experiencing you have given me the information that my current neuro hasn’t really covered - invaluable information

That burning aching leg pain really sucks.

I just came across this! I hardy recognized you Dr B!! Thank you for all that you do! 🧡

Thank you! I was so happy when you finally sited one that I haven’t experienced.

Thank you for this educational and enlightening video! I haven't been diagnosed yet, but more points to MS. Watching this I'm more sure, because I've had all of these at one time or another over the past several years. I just dismissed it for one reason or another. It's been excruciating for the past few months and many are telling me it's due to my anxiety and I'm needing more psychiatric help. This isn't easy to cope with when you have no one to turn to, and even doctor's treat you like you're making it up. Your video gives me hope. Thank you!

The neuropathic pain is hands down the worst pain I’ve ever felt. Especially when there is any contact made with the effected area

Thank you for this video! I had Lhermitte's for years. I thought I was crazy until a fellow MSer told me what it was!

Thank you for this video, I’ve had all of these, in one way or another, but didn’t realize for sure that it was MS related. Thank you a million times over for this!

Thank you. I have found your videos very comforting.

Dr. Boster you explain things so well. Thanks.

Hello Aaron, the trigeminal nuralgia is the most debilitating pain I have ever experienced, despite the birth of my kids! I can understand why some people call this pain the suicide pain! Spasticity comes and goes. Heat makes it worse, so last summer was terrible for me. I spent the complete summer inside and had cooling devices on me! Optic neuritis was my first symptom, that was the reason why my neurologist sent me to the hospital for spinal tab and MRIs of my head and spinal cord. This all lead to the diagnosis. Wishing you a wonderful week, all the best...best regards, Britta

Thank you for all you do for MS patients and their families. Please, tell me how to communicate with a physician who absolutely refuses to believe people with MS can have pain? The garbage I am told (at a VA hospital, no less) is that it's FAULTY NERVES, so nothing can hurt! I am overwhelmed at the ignorance and the arrogance. What can a patient do?

That ocular pain is the WORST pain I’ve ever had in my life!