Long Covid: Recovery & Advocacy | with Freya Sawbridge

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Published 2024-05-05
Freya is a Long Covid advocate who fully recovered from the illness.

We talk about her advocacy work for Long COVID awareness and the importance of informing people about its potential long-term effects. We cover the need for more research and support and the dissonance between the scientific understanding of Long Covid and the public perception.

I really enjoyed this convo, you can check out the links below:

Website: longcovidsupport.co.nz/
Freya: www.instagram.com/freyasawbridge/

00:00 The Impact of Long COVID and Changing Perspectives on Health
03:18 The Journey of Recovery and the Importance of Rest and Support
11:20 Advocating for Long COVID Awareness and the Need for Information
29:41 Dissonance Between Scientific Understanding & Public Perception
30:45 Challenges in Defining and Diagnosing Long Covid
32:02 The Importance of Advocacy and Research in Long Covid
35:25 The Impact of Anti-Establishment Rhetoric on Long Covid Awareness
38:44 The Need for Clean Air in Preventing the Spread of Covid-19
45:50 Effective Fundraising and Advocacy in the Charity Sector

All Comments (18)
  • I'm still living with done lingering effects, but I feel lucky I was able to keep my job. The fog socks, and I'm still unable to do much exercises aside waking. It's a struggle to go to the doctor because he doesn't refer me to anyone because my tests are normal.
  • For me the most important research needed is finding out why some are so susceptible to LC and some not at all, including the spectrum of all who suffer between these extremes. I'm an immune system optimization advocate for everyone, including apparently healthy populations. I start with optimizing Vitamin D levels in our bodies. However even those of us who are 'Preventative Health Care' advocates rather than 'Symptomatic SickCare' practitioners must recognize the genetic and epigenetic components of susceptibility to diseases like LC, MCAS, MS, and the rest that need more understanding of action in order to reduce the terrible suffering these diseases wreak upon the populace. Peace, Love, Health, and Freedom, to all who are fortunate enough to strive for these goals. 🙏 ct
  • This disease is just like she said. I can relate to the same neurological symptoms! When she said straight up dementia, I totally get it! From being disassociated, to tremors, to disautonomia! Insidious! I had from Aug 21 to March 2022 ish. Fast forward to now, I’m 7 weeks in again. This is horrible. Just when you recover it can happen again. Lord Jesus help us all.
  • @MyForestNymph
    This was a great convo ! Have had long covid since march 2020 - was ultra healthy and fit before - I am excited to learn there are tests for the microclots now . Where can we get this done or what is it called exactly so I can ask for it . Thank you for this discussion.
  • @oliverbird6914
    The thing it's the same as m.e. It's a great opening description of m.e. Great words
  • @user-kb9rp1yw8p
    Thanks so much, Freya, and the host, for this on-point discussion
  • @l.s9148
    I like what Freya does. And also her change in empathy’s. All around I have to say I noticed a lot of fear regarding this illness (which is understandable) and also the point that you really are just unlocky and can’t do anything against it. Because it seems to be completly random. I think that’s quite a depressing thought for somebody suffering with long covid. For the viewers: the most important thing ist to get the power into your own hands !
  • @GeoCK1
    Enjoyed listening to this discussion. Thanks
  • @grazioso58
    Exactly the same goes for the shot reactions.
  • @sherwoody14
    I had a relatively short recovery of 7 months for my first long covid... went back to full life, full exercise and then I was hit again and now I'm 22 months into bout number 2. Getting better but far from recovered.
  • Did we know at what tissue temperature did SARS COV2 better replicate ? Why ? Because virologist Christian Drosten suggest that SARS COV2 better replicate at very low tissue temperature (34-35C)(at TWiV Nr 659 at min29)
  • @sneakypress
    VERMICULITE and ASBESTOS are two completely separate substances ( minerals ) . What she is referring to must have been vermiculite CONTAMINATED with ASBESTOS FIBRES . Pure vermiculite does not contain asbestos and is non-toxic.
  • @robinsierra1029
    i desperately wish i had such luck. i am 3.5 years in and actually getting worse. also i don't have any support
  • @Mau365PP
    I don't think 100% recovery exists. We are just getting patches to grow up to 90% if we get super lucky. But the scar will be there for ever. Who knows, we all might get cancer or Parkinson in a few years.