Living with EDS: My Journey to Diagnosis

It's heartbreaking to see more and more people getting misdiagnosed and treated as a hypochondriac. :( I have a message for them: listen to your heart and don't give up!!! If you feel like the doctor's are not right, don't let them treat you like this! Christina, I'm glad you made another video and please continue in the future and let us know more about your story! It's a great way to raise awareness and help people with invisible illnesses.

Off topic but you have GORGEOUS hair!!! :)

I hope you went back and showed that diagnosis to your pcp, maybe she needs to go to ethical classes and learn to listen to the patients

I also have EDS and it sucks and when I see these videos I feel less alone

I really hope you reported that physician for her gross negligence and incompetence. Best of luck to you xx

I love that I got to be apart of your diagnosis and story! So happy our paths crossed and you are my best friend and I cannot imagine life without you! You are a unique hybrid of EDS like me! I love you sweet sweet girl!

What does it say about our healthcare system that you figured out the key to your own diagnosis from randomly catching a tv show, after doctors had years to diagnose you. It makes me sad and very angry. I'm so glad you're getting the needed treatments you need now. I hope you don't have that same primary doctor anymore. I would consider reporting her so others don't have to suffer - or maybe just a yelp review that says this doctor is "for healthy people only." I can't even express how much I admire your spirit, attitude, and grace. You're truly inspiring me and you motivate me to be more grateful, more optimistic and positive, and to try and be a better person. Thank you for taking all the time and energy you do to put your story out there. I can see how it is helping a lot of folks in different ways, and that is pretty amazing. Just massive kudos, love, respect and support your way! I have been watching your videos. I cried when your surgery got moved up from 3 weeks to 1.5 weeks. I'm praying for you. I hope the rods give you the support you need to continue to kick ass and leave a footprint. <3

This is the video that brought me to your channel Christina. Love your videos!

I was diagnosed with EDS type 3 when I was pregnant with my son. I was misdiagnosed at the age of 13 with Morphins syndrome. when I mentioned it to my ultrasound nurse she automatically wanted me to see a genetic doctor to make sure that my son was okay. after speaking to him explaining everything in my life I had experienced. he said automatically said you have EDS. it was a blessing for me because finally something that explains all that I lived with.

Thanks so much for sharing Christina! It is so helpful to hear your story and I am sorry it is so difficult. You give hope and perserverance to all of us who are having similar journeys. (and to our caregivers)

Hi there! This is the video that brought me to your chanel. I also have EDS and other chronic diseases. You are such an strong and an amazing person!! And you inspire me to keep on fighting, even when I feel like I can't! Many hugs!! ❤ ❤ ❤ / Disa from Northern Sweden

It came to a head in my 10th grade year as well! Hearing you talk about these things is very validating.

Thank you so much for sharing your story. This honestly has helped me understand my own EDS and symptoms. There has been days where I question myself and try to ignore my EDS which doesn't help. I'm beginning to accept it but it hasn't been easy.

Wow, I can relate soo much to Your story. There was a period in my life when I had some vertigo and dizziness problems among some other things. I visited countless doctors and got zero answers. It lasted for a year and a half and this alone drove me nuts. I can't believe how resilient You are.

I'm so sorry that the doctors shot you down for so long and pushed you around, but I am very glad that you eventually found answers and are now educating so many people on youtube! You are pretty :) thanks for sharing

Another great video. I had exactly the same reaction to diagnosis after 14 years of not knowing what was happening. Sounds like you have been through really tough times. Sending good vibes!

This is the video that made me love to watch you! I am going through the same things as you and I am 40! I am going to see the geneticist in April in Philadelphia as Hershey doesn’t see Adults anymore. I’m struggling big time and have since I have been little and I have found so many tips from you and strength when I’m down. Thank you for vlogging and I hope you don’t come to Hershey again, but my son comes there a lot some hopefully I’ll get to visit you one day soon! :) ❤️

This video was so helpful a couple of years ago when I first discovered you!!!! ❤️

I love that you shared your story! Your an amazing person, you inspire me! I can so relate to so much of this, when the doctors didn't know what was wrong with me they did the exact same things and it was all so frustrating. You are so strong, keep on making these kinds of videos your helping many! :)

You are just so incredible. Wow. How inspiring. 💗