A Day in the Life of Fibro Fog | Fibromyalgia/Chronic Fatigue

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Published 2022-08-28
Ugh! This was painful to edit. Denial denial denial!! It's all about trial and error though.. Right? 😝

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If your interested in anything Borderline Personality Disorder related (BPD), I wrote a poem about how it feels at it's worst in MY personal experience, some time ago when I was first diagnosed - Find it here:    • Broken Mind Of Mine | Mental Health/B...  

All Comments (21)
  • Holy shit I’ve never related more to everything. My therapist thinks I have fibromyalgia and I’m scared to ask my doc bc of all the gaslighting I’ve experienced over the past 7 years over my pain and symptoms but this was so eye opening bc I live like this and ppl still think I’m supposed to act like my body is fine but I really struggle just like you were in this vid. This was so validating. Thank you for sharing your life with us. I hope you’re making it through okay❤️ you’ve got a new sub from me
  • @frentbow
    I've never seen anyone portray real cfs life similar to mine, like how putting flowers in a vase is a huge effort. It's very comforting to be able to relate. I appreciate all the extra work in creating and uploading your vids. Thank you 💜
  • You aren’t alone my friend. Your nail supplies had me tearing up. I do one hand at a time and it takes me 8 hours. Don’t give up on your passions. ❤
  • @Gewelg
    Thank you! This is how I feel daily.
  • @dard4833
    Daly, You absolutely make total sense to me!! It’s such a whirlwind, loss of words, feeling nauseous during pain, eating, non eating, clothes, no clothes, oh I get it! 😢😢🤗🤗
  • Thank you for posting this - it certainly takes a lot of energy just to exist in those moments, but to actually put a camera in front of it all and mange gracefully - that is amazing. I too manage fibromyalgia. More than 20 years now. I don't experience the pain as often as I have in the past - good trauma therapy has helped - but the amount of fibro fog is enough to frustrate me to the point of not talking. It's horrible not being able to articulate thoughts. My worst is losing vocabulary and completely forgetting what something is - "that thing in the driveway" when I am looking right at it. I wish you the best. I'll be watching for more human moments. Thanks!
  • Sending you thanks and a hug, typing this with tingling finger tips at the time and feeling soooo tired. Not alone, my friend. Keep on sharing, please.
  • @stevegage6650
    Bless ya girl 🙏 ,Got fibromyalgia / Fms ( f***ing mad syndrome) well thats what it feels like myself , had it following an accident at work in 2002 so I know what it's like , feeling sick is part of it ,feeling tired and can't sleep and suddenly can't remember what to say and having to write everything down otherwise it won't get done, staying in PJ'S or trackees because its comfy and you can't be assed. Takes ages to get a diagnosis then it's NHS ( No Help Service) just subscribed to your channel .Big UP 😊
  • @Mama_D79
    Thank you for posting this. I was diagnosed with fibromyalgia 2 years ago and have fibro fog just as you. Some days are good and some days are bad. I also get nauseous but I"m hungry, but I just can't eat. I know I have to eat, so when I feel that way I usually have soup or something. Low FODMAP seems to be helpful plus gluten free. I feel like I'm in purgatory some days, but you have to keep on going.
  • @JennySussex
    Hi. I was diagnosed with fibromyalgia a year ago, but I knew I had it for at least 2 years before they finally agreed that was what it was! I totally understand the brain fog, utter exhaustion, pain, nausea and lack of appetite. I get very tearful and can’t hold myself back from crying 😢. I’m 56yrs old next month and my 82yr old dad is fitter and more active than me!! I’m glad for him. Nice to meet you. I have subscribed. 😊
  • Brain fog messes with me so much. Some days I can barely get a full sentence out, and spend most of the day starting something and forgetting literally 2 seconds later. It’s so hard for people to understand.its maddening, especially when I’m at work and people just stare at me.
  • @AH-hu8fh
    Omg. It’s like watching myself. I haven’t officially been diagnosed - I keep canceling doctors appts due to the symptoms- but, man if this isn’t me. Thank you for sharing 💜💜💜
  • @Angel-qf6if
    The brain fog is so fkn real… mine is so bad I thought I had early onset dementia… has fibro affected your appetite? Mine is non existent, I was never this way.
  • @Angel-qf6if
    When I’m dragging ass I paint, I’m no Monet but it calms my mind and keeps me focused on something other than fibro…. I just sit and watch a Tutorial on here and pass the time… it’s so easy to stay in your head with this stupid condition… 💕
  • @ruckes13
    I was told after an on job injury in 2006, I had this,and now a doctor told me a year ago it was gone. But I still have had all of the symptoms you are having,and more. So how can it be gone? Stay strong 💪 ❤️
  • @kyr4231
    Like watching ur fibro vlog, relate myself suffer too gentle hugs from Australia
  • @Truerealism747
    Me fybromyalgia are same ime sure just symptoms change over decades for myself
  • @kendregab7328
    I have many the symptoms but one of the most bothersome symptoms are skin sensitivity to touch. Anything that touches my skin causes widespread body pain with burning, prickling, dull, shocks and warmth to my joints , body aches like I'm sick and the fatigue. Wind from outside hits my skin and I'm whimpering in pain, same with a fan. A sheet of my bed hurts me too. Even the clothes I'm wearing bother me so badly with pain. Laying on my soft bed still hurts me because the pain touch triggers. I'm not diagnosed with fibro yet. I have an appointment with a Rheumatologist on July 11 but I am confident I have it. I tested ANA positive 1:320 titer honeogenous which is pretty high according to my doctor. So that's why I'm being referred but will also ask for fibro testing as well. Any tips to reduce this pain would be greatly appreciated as Tylenol PM doesn't work much 😄