What is Optic Nerve Hypoplasia?: Why I’m Registered Blind | Fashioneyesta

My 2 yo daughter Luna has ONH and Nystagmus and uses a cane. It’s great to see people with the same conditions achieving so much, gives me hope for my little girl.

I have congenital ONH, strabismus and heterochromia in my right eye. I was also born with a cataract, removed in my 20’s. My blindness has always been a problem for other people. Funny enough, when I tell people I’m blind in my right eye, they speak louder. Cracks me up.

You might not see this, But I have optic nerve hypoplaspoa .. I love seeing I'm not the only one suffering from this. Its been so hard growing up with this

Hi there! My daughter (almost 14 now) has ONH/SOD, nystagmus, severe cognitive impairment, is nonverbal, and is soon to be diagnosed with autism and potentially Tourette’s (based on recent specialist’s recommendations.) I’m so glad that you are creating awareness and describing ONH! So many parents can have anxiety on new diagnoses. I just want to say that, regardless of diagnosis and ‘abilities’, we can all do so many things in this life! My daughter taught herself how to skateboard, is in Girl Scouts, she loves to model, travel, go to the movies, and go to musicals! We have so much fun together!

Very informative. Nicely explained. 💙

I don't have the same condition but can relate to a lot of what you said about not looking blind/visually impaired. Fab video as always x

I have ONH too, it can get hard to live with this condition but seeing that there are other people who struggle and overcome it its truly inspiring.

Thank you for being so clear in your way of communicating, the 7 minutes went down easily :D

As a 12 year old with ONH seeing this video explain things and seeing others with it makes me feel better knowing I'm not alone!

Great! Emily. I love that analogy.

My one year old has SOD. I truly enjoyed this video❤️

My daughter was recently diagnosed with ONH and I’m currently going through a huge learning curve on this topic. Thank you for doing this video. Extremely helpful and great to see someone who has achieved with the same condition.

I'm a nursing student and came across a patient with ONH and nystagmus. This was very straight forward and informative, thank you for helping me help others! <3

I have the same condition and I am actually in a process of getting a guide dog and your videos are so helpful and comforting , you are such a good person and role model 💖

My 4 year old has bilateral ONH with nystagmus. She is legally blind, low vision. She was diagnosed at 3 months, confirmed at 5 months with an MRI. I have the hardest time explaining to people why glasses won't help her. thank you for sharing this. YOU ARE AMAZING, AND BEAUTIFUL.

I have glaucoma and it gets discouraging to be the only one who can’t drive and can’t see very well that I am around. Thanks for making videos and sharing your story!

Hello I have hypoplasia of the optic nerve as well and some of the things you said is what I have and I didn't know much about my disability so thank you for letting me understand

I have the exact same thing you do! It’s insane what people say to you when you look different. People have no idea how we live daily!

My Son has bilateral ONH and this was so helpful in understanding him better. I would love if you could make videos about your journey through school age to becoming an adult. I always wonder how he is going to be independent and how I can help him succeed.

My sweet girl who is 11months old, has ONH. She is completely blind in her right eye, but they said she has full vision in her left! She was diagnosed at 3 weeks old. Thank you for the video and for the info!