The Doctors Who Treat My Ehlers-Danlos Syndrome, POTS & Fibromyalgia [CC]

Published 2022-02-08
Getting diagnosed for Ehlers-Danlos syndrome, postural orthostatic tachycardia syndrome, which is POTS and conditions like fibromyalgia can be such a challenge.

After sharing information on the doctors who treat my endometriosis and adenomyosis, I continue this series with more on the doctors who treat my EDS, POTS and fibromyalgia.

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Original article to this video:

The Doctors Who Treat My Ehlers-Danlos Syndrome, POTS & Fibromyalgia:
allthingsendometriosis.com/doctors-treat-ehlers-da…

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Follow me on Social Media (and check out my website & podcast too!):
Website: allthingsendometriosis.com/
Instagram: www.instagram.com/footprintsnoboundaries/
Pinterest: in.pinterest.com/itstarot/
Facebook Page: www.facebook.com/footprintsnoboundaries
Podcast: open.spotify.com/show/2l9oX7AmiMPhhN00zc6Fym?si=gu…

~~~~~~~~~~~References mentioned in video:
Dr Joytsna Oak:
www.kokilabenhospital.com/professionals/jyotsnaoak…

Physiotherapist Vaibhav Daga:
www.kokilabenhospital.com/professionals/vaibhavdag…

Nutritionist Pooja Udeshi:
www.kokilabenhospital.com/professionals/poojaudesh…

Dr Gayatri Mittal:
www.thelondonhypermobilityunit.co.uk/

Dr Pradeep Chopra's Webinars:
1. A webinar from April 2017:    • Dr.  Pradeep Chopra presents “EDS Pai...  
2. A webinar from December 2019 part 1:    • Dr. Pradeep Chopra, MD | Managing pai...  
3. A webinar from December 2019 part 2:    • Dr. Pradeep Chopra, MD | Managing pai...  

Jeannie De Bon:
jeanniedibon.com/

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Website Reference:

How I was diagnosed with Ehlers-Danlos syndrome:
Blog: allthingsendometriosis.com/journey-diagnosed-ehler…
Video:    • How I was Diagnosed with Ehlers-Danlo...  

Migraine to CSF Leak Journey:
Blog: allthingsendometriosis.com/intracranial-hypotensio…
Video:    • From Migraine, to CSF Leak, to Brain ...  

Kinesiology Taping:
Blog: allthingsendometriosis.com/using-kinesiology-tapin…
Video:    • How To Use Kinesiology Taping for Ehl...  

Treatments to manage Ehlers-Danlos syndrome:
Blog: allthingsendometriosis.com/treatments-manage-ehler…
Video: Part 1:    • Treatments to Manage My Ehlers-Danlos...  
Part 2:    • Physiotherapy & Exercise to Manage Eh...  

My Diet for Endometriosis & Ehlers-Danlos Syndrome:
Blog: allthingsendometriosis.com/my-diet-for-endometrios…
Video:    • My 6 Diet Changes for Endometriosis &...  

My MCAS Journey: "It's Not a UTI, It's Painful Bladder Syndrome!":
Blog: allthingsendometriosis.com/mcas-not-a-uti-painful-…
Video:    • My MCAS Journey: "It's Not a UTI, It'...  

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Disclaimer: I am not a medical professional. I am a patient and have created this platform to share my experiences. This is all purely informative and in no way am I providing medical advice. Please consult a medical professional. 

#EhlersDanlosSyndrome #Fibromyalgia #POTS #Hypermobility #LivingWithEhlersDanlosSyndrome #LivingWithFibromyalgia #EDSDoctors #DoctorsEhlersDanlosSyndrome #DoctorsFibromyalgia #Dysautonomia #hypermobiltydoctors #ChronicIllness #ZebraStrong #Spoonie #EDSPhysiotherapist #EDSNutrition

All Comments (4)
  • @Dulcimerist
    Thanks for sharing! I live in an isolated part of the USA, so it's been difficult to find doctors who are knowledgeable about Ehlers Danlos syndrome and its related issues. Thankfully I found a local general practitioner who has become an EDS specialist because her daughters have EDS. We've been finding research articles on the latest treatment options for POTS and other issues, and found a good combination of medications to mitigate my symptoms. It's important to have a doctor who's willing to try various options to find the best option for each individual patient, rather than using a "cookie cutter" approach for everyone.
  • @ArchAngel435
    Shruti, you ought to consult with an ayurvedic practitioner for all your health issues. Covid has shown us that allopathy merely treats symptoms and oftentimes aggravated the condition through excessive drug protocols.