Neuroscientist Shares Her Recovery From Long Covid

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2024-06-01に共有
A cognitive neuroscientist shares her experience with long COVID and her journey to recovery.

We talk about everything from her experience with the illness, the challenges of navigating the healthcare system and what had the biggest impact on her recovery.

00:00 Pre-COVID Lifestyle and Mental Stress
03:43 Onset of Long COVID Symptoms and Gradual Deterioration
11:46 Challenges Navigating the Healthcare System
18:25 What started to help
32:11 Recovery and Embracing Hope and Gratitude

コメント (18)
  • That is by no means the worse it can get. My daughter cannot leave bed at all not even to use a toilett chair directly beside the bed for months now. She can do nothing, she cannot even endure my silent presence. That is a horrible horrible sickness.
  • I reconice the feelings that i have long covid in this part of the world en not for example in India where you dont have food when you not working. I have long covid for more than 4 years and i m luckily a positive person . Stay positive and learn from this.😊❤
  • People got sinus allergies usually experience sensitivity in the brain and it affects the equilibrium when ears are being affected. Before Covid, this kind of symptom wasn’t really much of a concern. It exhilarated when happened to be associated with “fearful”memory in the brain- alongside, “guilt” of something you didn’t have a choice, but you are in the loop. Your brain still believes you’re in hijack. If there is fear, there comes an obsession. Obsession causes burnout. Once your body’s burnt out, it creates too many different symptoms. It’s where you focused your energy on. It’s not the sinus that creates fear, but the sensation I. E. off-balance, head pain, earache, eye ache, etc…that heightens your perception, and constantly feeling dizzy or disoriented and blurry vision. Sooner or later, it just comes and goes, until your brain realises it’s a repetitive pattern, that you’re not actually broken and you’re still here. Therefore you are safe. Wake up…that you even say a mantra back to it: boring, boring…uninterested, then it eventually subsides. For some people who experienced other trauma, they may have exactly the same response.
  • @Ella-ps1lg
    I've had severe LC symptoms since March 2020 - about 5 weeks ago I saw a Dr on youtube say AUGMENTED NAC had been shown to break down the virus in LC (I'd already tried regular NAC with no improvement) so I googled, bought some, not holding out a lot of hope, and 5 weeks on I am seeing big improvements. I felt worse before things started to improve though - ( very feverish, cough coming out and sleeping loads for the first couple of weeks) . Still going with it and hopeful it might take me to 100% recovered. Thought I'd share in case it might help someone else suffering.
  • I got Covid March 2020, and LC since, so much of what you went through is what ive been dealing with. Orthostatic hypotension, dysautonomia, so much fatigue and ao many symptoms across my system. I was very active prior, hiking, running in the mountains, rollerblading, biking, weights, organic keto diet and my job also required me to walk about 5 miles a shift, outside in the AZ heat, worked 3 jobs. That , to iI couldn't getout of bed to shower, or that was the big effort of the day. Slowly tried to increase activity, would see progress then crash. Then, got the JJ, had an immediate reaction of fever, flop sweat, Covid symptoms all over again but worse. I do all the things,so many supplements, methylene blue, nac, vinegar, iver, yoga nidra for nervous system, carnivote diet...cant keep any progress, it feels like i have multiple autoimmune diseases at once, definitely do not feel like its my body. And the feeling like you're dying because every cell in your body feels poisoned. No Dr has been helpful, bounced around from specialist to specialist, no help.
  • @lyesterday
    I have post vaccine syndrome and long covid. i got post vaccine syndrome sep 2021 and then long covid dec 2023.
  • @KokayMate
    Seems like A mild post virus infection this one. Alot of cases and sympoms are way more difficult and terrifying than being described here.
  • Apparently, I have done all the things that this woman has done but I am 3 1/2 years end of severe fatigue I'm not getting any better at all. It seems odd that some people get better from the simplest things and other people like myself do everything possible and they're not getting better
  • @djVania08
    I've always wondered what is the difference between people for whom this brings results and for whom it doesn't. I see one key element many times over (probably not the only one though ) and that is support and environment. It seems like majority of recovery stories are women who have support from their partners, family, etc... I don't know how exactly it was in her case but she mentioned her boyfriend couple of times. I bet he took care of most stuff (albeit probably very hard). Not saying that men don't recover, neither that they don't get this support. But it's more about how does this work on average. There is more nuance to this, of course, but comment section isn't the best place for it. :)
  • @37895
    Why aren’t these ‘programs’ freely accessible? It really fucks me off!
  • I hope that people will be open to listening to her recovery story. "Brain training" is a great tool, especially at our lowest point.
  • @6Churches
    I found this really hard to follow. My experience of LC is that I am the calmest I've ever been. I don't see how relaxing any more So she was very very sick for a long time .... visualised being healthy .... and then was healthy? Huh.