Smouldering MS - How MS can PROGRESS Independent of Relapse Activity (PIRA)

This video was recorded about 7 weeks ago but just never posted due to one thing or another. Mainly because life gets in the way, I had Covid (again) and then I had really been struggling with extremely low mood which as I'm sure you can appreciate makes you want to shut yourself off from the world. Anyway, this video is in no way any professional advice or information on SELs and MS, or guidance of any kind - I am simply trying to understand and navigate this disease and make what I can from it. If anyone is interested, here is a bit of information that I did manage to come across from a blog written by someone who has MS himself. The link is here www.everydayhealth.com/columns/trevis-gleason-life… I will also put more links in the description box for those who are interested in a deeper read on this.

Great video but can I point out something, when you drew the third circle, look how accurately you re-drew around it indirectly looking at it! WTF, That is some very good eye hand coordination! Take care Laura

Thanks Laura, very helpful as always.

You drawing on that white sheet of paper reminded me of a scene from Event horizon. They also talk about black holes, a different type but with a similar outcome :/

So pleased that your appointment went well. I have to say that after all these years this is the first time I had heard the term Sels! I will be googling this some more and asking my neurologist about them next week at my appointment.

Well done Laura. Thank you for this👍😊

I love learning something new about this disease. It helps when you visit your neurologist if you know what questions to asks. Thanks Laura 😊❤

Thankyou. I still can't come to turns with my diagnosis

HELLO BEAUTIFUL! I'm happy to hear you're doing well with your MS. I've never heard about SELs. Thank you for the lesson. To my understanding, black holes are old lesions that were so intense that in their aftermath, they permanently killed some of the brain, leaving the black holes on the mri. I'm definitely no doctor, but I do have a lot of black holes.😒 This will explain better than I can. https://youtu.be/u4WIQcz6WUw As for back pain. Have you ever tried cold? While heat feals good on sore muscles, cold is better for healing and inflammation. When I say cold, I mean COLD. 🥶 Thank you, Laura, for your insite on SELs and another great video. 👍