UPDATE ON MY MULTIPLE SCLEROSIS / GOING FROM A 1.5 - 6 ON EDSS / RRMS OR SECONDARY PROGRESSIVE MS?

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Published 2024-07-08
TRIGGER WARNING Today's update is a very raw and emotional update. I share my true emotions and how sad, hurt, confused I feel after my last hospitalization. It's been very hard and I continue to struggle but every day gets a bit easier.

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All Comments (21)
  • @livingwithms
    Sending love and positivity to you 🙏🧡 We're all here with you.
  • @romanxkostan
    Stay strong, anxiety and stress will make your symptoms seem worse. I suggest you talk to your doctor about getting on an SSRI, I like Lexapro. Some relapses are worse than others. You are on a great treatment so I doubt it is SPMS but you need to get rest and try not to stress. I know it's hard but this is our life.
  • @chamtj
    Oh Lii hugs to you!! Mental health counseling is a huge part of chronic illness. I understand the struggle of physical pain that people can’t see and that your whole life has changed. I PRAY FOR YOU!!!
  • @ReginaM.0220
    Hi Lii, I'm praying for you and sending love & lightness your way. So sorry to hear what you're experiencing. Thanks for being so brave and sharing this with us. I have a newly diagnosed dear friend, and perhaps it will help me understand her journey better. Peace & love to you.
  • @NaturalNat111
    Sending love and blessings 💚 hope you find relief. I have lived with MS since 21 am now 40. Would say the best thing I ever did was change my diet, stopped dairy and gluten, which helped so much I was in less pain straight away so could then start moving my body more, I stopped taking my prescribed medications and found the natural way much kinder to my body and my body responded very well to natural therapies, Accupuncture, massage, vitamins and minerals, diet and eventually exercise. Steroids never worked for my RRMS either just made me feel worse but buzzed and unable to rest or relax The human body is amazing and you can be well again and cure yourself from most dis-eases. Sending you lots of love and hugs 🤗 and hope you find health and wellness. 💚💚💚 please never accept that this is it now and how you will be forever, keep hope and faith you will find a way through this. Lots of hugs my love 🤗💚😮
  • @sarahmullan3101
    I’m so sorry this has happened to you Lii 😢 I hope things get a little bit better soon! Please keep us all updated 🧡🧡
  • Dear Lii, sorry about what you are going through. I appreciate your authenticity and spreading awareness about MS and that you keep uploading videos even when you are feeling so unwell and in distress. The uncertainty and unpredictability of the illness must be overwhelming physically and mentally. I wish your symptoms to ease soon!!! Big bear hug to you ❤
  • @ilzekrumina8953
    Oh bless you.. They frightened you with diagnosis and your body froze! Body recovers and you will get back to being able to do all the things you love to do. Please don't worry!
  • @jaktag
    i have MS and was diagnosed 32 years ago. I never take steroids,even after having attacks that leave me unable to function much at all.I found that just resting and waiting for the attack to pass the best thing for my MS.Also eating a diet full of fruit and veg helps me get better quicker.You will get to know your MS and you will soon learn what helps you. The best thing you can do is look after your body by relaxing and meditation and also not pushing yourself too much. I find relapses are really bad for about 6 weeks,and then i start to get better,and by about 10 weeks i find,i am just about recoverd from the relapse. I have had relapses that have left me bed bound for many months but i have always got back to normal,in time.Its very frightening when you first get diagnosed,but you will find a way to cope and manage your MS.
  • I’m sorry you’re going through this condition. Thank you for sharing take care.
  • @meredith1373
    I am praying for you. For peace, pain relief and complete healing. I have psoriatic arthritis and it is awful. God bless us all and heal us from these diseases. 🙏❤️🙏
  • God bless you. Youre facing a lot. I hope the doctor can imorove things for you.
  • @purplepixie00
    All the hugs and love to you, Lii! I'm so sorry you are going through this. You are such a strong person, such a fighter, remember that.
  • @__Wanderer
    So sorry to hear this :( Stay strong - there is a good chance you can recover in the coming days / weeks. I have seen many videos of people who have also had walking issues and then made a miraculous recovery. Hoping and wishing you will also have a good recovery. Look after yourself, eat healthy, drink well, take time to relax if you can and hopefully the steroids will work their magic. Hoping for the best - lots of love <3
  • @MegaCj65
    I'm so sorry that you are going through this. I will pray for you. Stay strong ❤❤
  • @Expat_FitLife
    Jag vet inte vad man ska säga Lii, det här är så fruktansvärt orättvist. Fruktansvärt läskigt. Jag är så ledsen att du upplever det såhär. Vad vi alla skulle göra för att fixa allting och gör det så att livet är normalt igen för dig 😓💔 I’m sending all the warmest, most positive thoughts up into the universe that this is temporary and that doctors discover what is going on and can reverse it. There must be a way, with modern medicine being what it is. Vi är här för dig 💛💛💛
  • I’m so sorry about this. Sending much love & positive energy from California ❤
  • @whythrowaway
    Keep the faith and hope. My partner died of ms i the 90s. We managed to get a combo van and my best friend and I drove him around europe in a combi van. Best thing we ever did. It gave him memories that gave him joy and hope. You don’t give up hope and you make goals that are authentic to you and then you make them happen. medical system is amazing but it’s about getting back to nature and and finding creating your dreams. Your life. it’s quality over adversity in life.
  • Thank you for sharing Lii. Best wishes for you, whatever your body does, you are still you. I understand the feeling in your legs and the pain, where you can feel the bones, but not the muscles, etc, as i have that. Be gentle with yourself and let yourself go through the emotions
  • Hi Lii!! This shall pass too!! You are a strong person! I don't know what to say but I want you to know that I feel for you! And I am sure you will find a way to deal with this too!!