Olivia Schroeder Shares the Story of her Journey with Cyclical Neutropenia

National Neutropenia Network
National Neutropenia Network
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Publicado 2015-10-21
Olivia Schroeder
Todos los comentarios (6)
  • @zencontroller
    my specialist retired and discharged me into the care of ordinary gp's who dont recognise the rare illness and have since declared me cured because I gave a wbc count of 1.4. I tried to explain that its cyclical and they wont listen and tell me i'm cured and that its impossible for me to ever get ill. this is in Doncaster UK diagnosis by Dr.Vickery and Udom. their decision goes against the 3 specialists ive had over 20yrs... I gave blood every week the whole time. I cant believe i'm now having antibiotics held from me. I think this is because I turned sown GCSF which has side effects I dont want. who knows. i'm glad to see Olivia is going to be ok... healthcare in the uk is a postcode lottery.