5 "Mistakes" Neurologists May Make Treating People with Multiple Sclerosis

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Published 2023-12-18
In this video, I may upset a few Neurologists...

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All Comments (21)
  • @realpeaceofmind
    I am a healthcare provider, I watch your videos regularly and also ask my patients to watch them. I get practical advise from you to help them with their daily living.
  • I’ve been extremely blessed with my neurologist. She is always on top of the very latest research. She makes recommendations to me for treatment but she is respectful and supportive of my decisions. I trust her.
  • @Yllohyllod
    Absolutely! Brain damage 20 years down the line is a whole different animal than when it initially occurs. I love my MS specialist because she has always been very good about explaining the risks of NOT treating MS, and she always goes over my MRIs in detail with me.
  • @beckymoran321
    I’m tired of fighting for the basic care from providers. I’ve given up. If they don’t care, I don’t care. Just tired of chasing doctors and offices for the basics. 12 phone calls to get an MRI scheduled is ridiculous. Never did get scheduled. So forget it! Maybe next year.
  • @gebuikersnaam
    Just diagnosed.. but i got a great neurologist.. discussed everything you mentioned and actually listened. Thankfull for free proffesional healthcare in my country.
  • @buh-byepolar3341
    Thank you for this ❤️ I am a patient of one of the best neurologist in my state. But whenever I leave their office, I cry in the car. Not bc I am sad that I have MS but because my doctor has never given me the time to answer my questions or educate me on vitamins, exercises, etc. that could help improve my life. It just feels very much like this is a business meeting and I’m not a priority patient (constantly checking their phone/pager). Thank you for these videos, I feel heard through you and I am always taking notes. You are a blessing to us all ❤️
  • @skippygotrobbed
    Important points that are clearly born of wisdom. I wish you would have pointed out the lack of humility and humanity that is so prevalent among your colleagues. I'm sure you read your comments and see how often your subscribers use the word "afraid" when talking about their neurologist. As in, "I'm afraid to ask my neurologist about..." "I'm afraid to tell my neurologist..." Educating people living with MS is super important. It's just a crying shame that so many doctors seem to feel that they have learned everything they need to know and are above needing any more education. So much of life is subjective- but feelings, fears, and frustrations don't seem to register on most doctors' radar. You would do MS patients a world of good by educating your colleagues about human interaction and the importance of LISTENING to and BELIEVING their patients. But I understand why that would be a tall order. The vast majority of them really don't care. People always advise that, as a patient, you have to be aggressive and fight to get doctors to do their job. Well, I taught elementary school for many years and no parent ever had to come to school and fight with me to get me to teach their kid to read. That would not be a thing. As with almost every other job in this world. But not doctors. Why? (As always, these comments do not describe you, Dr. Boster. You are a hero.)
  • I am thankful that I found you Sir. My MS takes more damage the last year and the treatment in Germany is there but I see the difference of the knowledge how to handle all the circumstances. Best wishes to you Aaron
  • @arthurmiller9103
    Thank you Doc for your Godly guidance and genuine concern Be 🙏 well.
  • @ghost8726
    Hey Doc! I was wondering if you’d be able to make something on cognitive ability. A lot of people including myself lost intellectual abilities over the years with MS. Retention issues etc. wondering what to do about it. But hard to find much info. If you could cover this it’d be super helpful. Happy new years and thank you for all your amazing work. You’re a hero to us MSers
  • @roberture5903
    Thank-you for another awesome Monday morning video Dr Aaron. On the subject of MRIS I've literally had to insist in the past that my neurologist go over them with me. Thank you again for the wonderful job that you do getting this information out to us each week😊
  • @TheOriginalSOOTY
    I am 60 have not had a MRI in 3 years,have kidney disease and no ms therapy
  • @uptoeleven
    Wow! Just Wow! Thank you so much. This so needed to be said - and heard and acted upon - by both patients and neurologists / nurse practitioners. Any MS health practitioners feeling "p1ssed off" at what's said here: take a moment to think. How much does your anger and defensiveness say about your approach to patient care? What if you were the patient or their family? What if it was you having your symptoms ignored? Or your partner, parent or, god forbid, your child whose treatment was failing only to be met by a sympathetic shrug or outright gaslighting "that's not MS, your MS is stable, look no new lesions". I'm sharing the xxxx out of this video to those PwMS I know who are on the end of this kind of treatment, thank you so much Dr. Boster.
  • @LKDelahunty
    This is a great video. I live in NL, Canada and I have a fantastic neurologist who doesn't make any of these 5 mistakes :) He is so patient and really takes his time and actually listens to me when I describe what I'm experiencing and offers other follow-up testing to determine if it truly is MS related or he offers a possible way to deal with the symptom. Thank you, Dr. Boster, for all the videos you put out there. I love following your channel.
  • @DrBrandonBeaber
    Back in the day before PACS and other image archiving systems, some doctors would be treating purely based on MRI report. There were people misdiagnosed for years and decades who never had an MRI with any lesion characteristic for MS due to some dubious MRI report. You make a good point about the follow up after relapses. I think treating relapses has been seen as less important in the modern era (as fewer people have relapses due to the advent of highly effective disease modifying therapy). But I still see people newly diagnosed or sent for a second opinion who were not offered steroids for a recent flare.
  • @Eric-qk3bk
    I wish I had seen this 20 years ago when I was diagnosid. Now turning 50 I am dealing with my poor choice to not take medicines.
  • @mikeshanermusic
    Good video Doc.👍👍 My first neurologist was so bad, it's too depressing to even try to describe.