Dr. Stein's Real Talk on Getting Through ME/CFS

Red light and carnivore diet are the only external things that made a difference for me in almost 10 years of severe mecfs (mindset being the main piece of the puzzle). Tens of thousands of dollars in supplements, meds, therapies, doctors and holistic practitioners, and every diet/way of eating imaginable. All the things that worked for others had no impact (or caused unacceptable side effects). I've tried All the Things and the most expensive protocols. It was a simple red light that reversed years of insomnia and an upside down vampire sleep schedule - even getting restorative sleep now most nights. Carnivore isn't for everyone but for me it was a game changer plus it makes it easy to stay away from sugar and carby things that increase my fatigue. Focusing on good fat and protein is addressing years of undereating and malnourishment. But I couldn't have done any of that without the red light and starting to get some actual sleep. Nothing works when sleep is broken. I'm walking again, got a car and am driving a bit and slowly starting to get out in the world again. (Red light also made a significant impact on horrid endometriosis flares)

This was a breath of fresh air, more medical doctors on this channel please! <3

I am on year 13 of CFS. Mine comes in the same pattern as a period even though I'm 68. I think a uterus ablation and removal of my left ovary may have played a role. I didn't need the ablation the Dr. just wanted to add to the surgery. Left ovary was removed to ease colon pain when I ovulated on my left side. I've been unwell much of my life,, but CFS and now long COVID have really effected my life. I'm a lifelong dog rescuer with 14 dogs living in Panama, formerly of MI and AZ, US. I've watched many of your videos, now I'm coming back to re-watch them to heal myself. I am giving up watching true crime and most politics to help recover from a lifetime of fight or flight response. I shared your videos with a FB CFS group and several people attacked me saying you were fake and just peddling programs for money. I was so disheartened. Thank you for all your hard work and dedication. ❤

Thanks so much for this amazing interview. Great to see a lady who is about the same age of me and who has been ill for decades (like me)! Thankfully she has recovered, I’m still on my journey! ❤

I really liked how Dr Stein encouraged self regulation and management. Great to hear from a doctor of all people!

What an amazing human being! Someone who is compassionate and understands that so many people with ME are unable to work or work full time, therefore hasn’t got a ton of money to throw at things.

I bought a hooga red light unit as a direct result of a previous interview on raelan's channel. It was more than i could afford , and despite my best efforts it made no positive difference. It is problematic when people are desperate , and then they see people raving about things such as red light therapy, and the interviewees describe them as having been " gamechangers" or turning points etc. Let alone all these dozens and dozens of recovered (?)people now selling often expensive courses. Luckily i have no money left to waste.

Thank you so much for having Dr. Ellie on. I took her course Pathways to Improvment some time ago and it certainly is one of the positive stepping stones on my journey. One of the things I liked and learned a lot from was our people's experiences and what worked for them. I wonder if everyone's perspective on this illness is their own, we can share some things experientially but it really is our own roe to hoe mostly based on what life has thrown at us. I'm now in my 70s and spent the first half of my life dissociated so learning what/how I was feeling was a real challenge once the slow onset of ME started. Some of the biggest game changers for me were learning about Naviaux's cell danger response, Stephen Porges' polyvagal theory and Raelen's interviews with Dan Buglio, Jason McTiernan, Jill Rothney, and Faith Canter, to name a few, because they all have some take on mindset and how important it is. One book that I found really helpful is The Expectation Effect by David Robson. I think the experiment that she mentioned is in it. Good luck to all of you out there, I hope you find what works for you.

Great interview and God bless this beautiful lady!

Thank you for introducing Dr Stein.

Absolutely love this. Self management, which is a good job as my doctor apologised for not having anything to help me. We know so much more about our condition than docs. (UK). Some good doctors like Dr Will on your channel... saying that. Agree on paleo for many reasons (high nutrient foods, blood sugar balancing etc). Thank you once again ❤

Thank you SO MUCH for this video. Now I KNOW I am not a hypochondriac❣️🎯 😭💔

I believe what Dr. Becca describes here is a crucial piece of the puzzle for all, but not necessarily the only one. Perhaps for some. Digestion for instance, is definitely influenced by our internal signs of danger, but also by tangible factors like our microbiota. And things like good relationships, proper breathing patterns, good sleep, need to be addressed directly before we can start allowing our body to move more. In other words, it's not always "just" the nervous system, but it's definitely a crucial piece.

I applaude elle for admitting she's been wrong in the past. Sign of a true person. Elle, just so you know....in 1993 i was sent to a dr. Logan Stanfield in Calgary AB.he was one of the few environmentsl drs. That was knowledgeable about me/cfs...of coarse back then it wasn't called me/cfs.

Dr Stein's website and resources looks amazing 👏.

Havent looked yet; but VERY excited and grateful for Dr Stein is making it hopefully affordable🙏🙏🙏🦶🦶

This was great. I feel in my gut that this needs to be my approach as well.

Brilliant interview! Thank you Dr Stein, very inspirational!

Ive been looking for help since 1993.but really i got sick in a motel room in 1981.....But...i recently found out the homes i lived in growing up are now not allowed to drink the water from the tap due to lead pipes....in fact findings show my area has higher levels than Flint Michigan.That would probably explain why i failed grade 7 and 9 and dropped out of school. Just wanted to post in case it may help someone....and yes, i was properly diognose with ME/CFS...misdiognosis?perhaps

I love my infrared wand. I think I’ll upgrade to a larger one.