My Morning With Multiple Sclerosis
63,508
Published 2021-04-13
Nearly one million people are living with MS in the United States. Multiple Sclerosis is a disease of the central nervous system which disrupts the flow of information between the brain and body. Some common symptoms are fatigue, spasticity, tingling, and dizziness. MS symptoms can fluctuate over time and no two people experience the same set of symptoms.
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Follow Kellen (@prouska), Kaci (@myelinmoxi), Maria (@basurababii), and Cecelia (@oh.ceceliamarie) on Instagram to learn more.
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All Comments (21)
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This made me cry. I struggle so badly with talking about my difficulties.. It's like nobody sees what the big deal is because I look healthy.. or assuming I'm making it sound worse than it is. I'm not looking for special treatment or seeking sympathy
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This was great. Please more on invisible illnesses. I have fibromyalgia and it’s so nice to hear others talk about their invisible illnesses. Hang in there, everybody.
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I wish i could tell these people that this gets better. 2 Years post diagnosis i think about my MS once a week. Granted my MS is under control and my day to day symptoms are mild, but you are still in the grieving process. Time heels all.
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Make everyday a beautiful day is my motto. Although I am reminded that i have MS, i tend to do something that will distract me from the pain, vertigo or fatigue, whether it is reading a book, napping or yoga, it gives me a sense of control at times, i do rest when i need to though. Love & Light to all my fellow MS warriors out there
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Thank you so much! It was a pleasure being a part of this, thank you for the consideration. The entire video was so insightful!
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Thank you for sharing a glimpse into life with MS. I was diagnosed many years ago, and now I use my wheelchair to navigate life. It is so important that we show as much visibility as possible of how real people living with MS live their lives. I loved seeing Kellen living his life in his wheelchair, as well as his morning rituals.
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I’ve had M.S since I was 16 - now I’m 47 I struggle everyday, but keep going - have a huge ‘PMA’ THE TRICK IS 2 KEEP YOUR PMA MAHOOSIVE PEEPS! Big hugzzzz from London 😘
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I wish I had someone I could relate to I know no one with MS I hve been recently diagnosed I feel so alone and out of control. Watching these videos help
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This was very helpful. I can’t tolerate in really hot weather, and sometimes coffee or soup can make my blood pressure drop, so I’ll feel faint. Knowing others also have similar issues and finding ways to cater around it, definitely helps.
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Sharing this to the Facebook group, “ We’re F**kin MS Warriors “ 13k global you are Warriors! This rocks on like no other.
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I was diagnosed 18 days ago it's was a up hill battle symptoms started 3 months before covid first lockdown. I've been off work for one year. I'm not able to return to work. My doctor of 40 years retired at the beginning of lockdown! My new doctor went to another practice one week before my diagnosis! Thankyou for this video it was very helpful.
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Thanks for sharing 😍 This is my 9th year post diagnosis. My doctors think I probably had it as a child/teen. My case was very aggressive rrms now I'm heading into secondary 😍 Hang in there and believe me it's easier said than done (MS is usually accompanied with some form depression) but try to stay positive. ❤️
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I was diagnosed earlier this year and I’m still trying to figure out how I feel about it. It will be a journey and something that I have to deal with for the rest of my life but I will deal and continue living my life. I will not let it control me or put me down.
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Living with MS is very frustrating, I am always looking for stretches to do for the pain.
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Such a great video, thanks. I have a friend who is recently diagnosed. So, great to see that life with MS is like, there is a very positive outlook. Wonderful!
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My body is reminding me right now that I have Multiple Sclerosis.
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Yup. Sounds about right. A routine is definitely helpful but when that routine is adjusted, things do not seem to go well. Unfortunately for the woman who mentioned maybe someday the tingles wont bother her... it will but you will learn to deal and move on. You have no other option.
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Yes. I understand about finding one's own rhythm and being knocked by changes to routine or plans. I think, to a degree, you have to go with the flow and listen to your body.
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Thank you all for sharing and putting this together
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My gosh! A sense of control. I have not been diagnosed, don’t want to be, but have sensed this since college- and just the past few years have had more and more difficulty walking- like I have to think about and practices normal gait. Could be medications, but I just need to know if so that I can prevent things from getting worse Right now I never know how my body will be. So I avoid most obligations work etc
