Jason Parry - Dislocation/Subluxation Management or I'm Just Popping Out for a While

Published 2017-10-19
General session from the 2017 EDS Global Learning Conference (Las Vegas) on Saturday, September 9, 2017 by Jason Parry, “Dislocation/Subluxation Management or ‘I'm Just Popping Out for a While’”. The presentation slides are available from www.ehlers-danlos.com/2017-eds-global-conference/. A transcription is being prepared, and will be linked there and here.

All Comments (21)
  • @SM-uo9ps
    I agree with what your saying but there’s another side to it too. Especially being young, is that if you don’t go get it documented IT NEVER EXISTED and then you get the doctors who for lack of better words say it’s PSYCHOGENIC and there is no proof of the severity of your condition and everything is dismissed and overlooked. Also no justification for your pain problems and doctors always think people are drug seeking when in fact alot of times that is not always the case. Alot of times patients go many many of years undiagnosed due to all of the above issues and doctors lack of knowledge of conditions because some conditions are considered “rare” in medical terms means “oh we don’t need to learn about this.”
  • I’m 75 yrs old and still, my thoracic spine subluxes, so I have learnt to just be quiet and in a comfortable position. Pain medication often upsets my tummy now so a new and better pain management with pain killers is needed. It takes about 3 days to resolve to a degree that I can get on with my life, except I cannot do the pincer movement with my arms for very long, so washing up the dishes is enough then a rest.
  • @danakates77
    I agree completely. My hips have subluxations frequently and positioning myself a certain way and relaxing they slide back in. I am so grateful for everyone that gives any information that is helpful. You are awesome.
  • @rmsmith8098
    Thank you for posting this. Subluxations are a part of my every day life. Dislocations not too often. This was very helpful.
  • @mrhunter2154
    Been bodybuilding since I was 14 and at 19 started with subluxations in my shoulder which resulted in a labrum tear, I strengthened scapula and rotator cuff muscles which helped but I’ll have to live with the tear, I’m 29 now and continue to bodybuild never let the injury stop me just train smarter now, eventually I’ll have the surgery if I can’t do the things I need to do
  • @N0N4M30
    I wish i could marry this men he has so much knowledge about my condition and seems so funny aswell. I’m watching this while having a dislocated shoulder and my doc is on holiday but he made me smile in this video so thank you 🙏
  • @Zack-bs9mi
    My wife with hEDs was one dislocation away from permanent damage. had she had no gone to A&E, she would have never been referred to the surgery she required to save her knee.
  • @KW-cv5me
    I wish I had this information 5 patellar dislocations ago. Happy to have it for the future.
  • @Whitewillow221
    So true - happens to me with sublexations, almost every major joint. It’s hard not to panic when the pain happens. Now I’ll try his steps
  • @suzym.f.1927
    Nice but where is the video that shows the therapy
  • @K_F_fox
    In the ER of Highpoint Health in Lawrenceburg, IN, they wouldn't even give me an ice pack. They just told me that my intense pain was disturbing other patients.
  • @HeyJudie
    I have very lax shoulders and it's hard to stay calm a week into a mild subluxation. I don't even have bad ones. It's still so, so hard.
  • @chellebelle4296
    Hi Jason, what do you do when a joint won't go back in? I went to ED for cardiac things. While I was there I got them to look at my shoulder as my arm went numb. This one is the A.C. joint. I'm more used to the GH dislocations. Anyway, I was told they can't/won't get it back in. 2weeks later and it's still out and still impinging on the nerve. I've tried the usual things as listed on your fact sheet but it's still not going back, has reduced to a grade 2 dislocation but is still out and now the GH is joining the dangle. Do you have any tips or suggestions for what to do now? Thanks
  • @juhaa4180
    Can a subluxed joint go back in place right after ?
  • @jlbeeen
    My dad and I have always been able to sublux our hips on demand with little to no pain, and we didn't think much of it. But now I'm at physio, and doing simple exercises have helped to make it harder to sublux it. Like it doesn't happen without me forcing it now, which I only did because a doctor didn't believe me, and I needed him to write a letter to the connective tissue clinic for me. I use heat a lot though, I have some of those heat packs you click, and then boil to reuse, as they heat up quickly and I don't need a microwave, as if I'm in public, I don't have access to heating appliances, but I can stick a reusable hand warmer in my pocket and get an hour or two of heat. But I'm glad I have a physiotherapist who does manual therapy. It's very gentle, massaging the area to get things back into place. I've had pinched nerves and manual therapy seems to be the best way to do it. It's much better than what doctors and chiropractors do since it's slowly moving things back into place and it takes longer. I definitely suggest that if it's an area you can't treat yourself, like for me, that's been my neck from turning my head too quickly when trying to look behind me.
  • @ammabee3693
    I have had dislocated my shoulder so badly I have to be unconscious for several doctors to put over 100 pounds of pressure to relocate it. There were tears and scar tissue. It was not going to relax back in. The blame discourse is so difficult to listen to.