My Story

Hi ! I hope you will understand me because I understand english but not speak it very well x) Thank you so much for sharing your story ! I feel many zebras are "funny" stories about their EDS, the diagnosis, etc. Yours was very interesting and kinda of funny : "sorry, something is weird with you and your son, and I am paid a lot of money for helping people but this is so weird and me and my 10 years of studies can't help you, sorry and don't forget to pay the bill for this unusefull consultation" XD Probably you find it a little funny, or a little sad, or both, and that's absolutely understandable. In my case, I laugh about things that are very sad and made me very angry in the past, and that's why I try to educate people around me, especially doctors, about EDS. Hopefully, with time, the fact that people like you and me shared their stories helped the health professionnal and every thing will be easier and quicker. I will watch your next videos. Thank you and take car of yourself :)