For Those Recently Diagnosed With Parkinson's ❤️

Published 2024-06-13
Have you recently been diagnosed with Parkinson’s disease? The first thing you absolutely need to know is that your life isn’t over and that you can still live a wonderful life with this disease. Yes there will be challenges, but there are many other health issues we could have challenges with. I think for those of us who are young and diagnosed we envision the worst elements of Parkinson’s happening to us right away.

I hear from subscribers often who are recently diagnosed but an email I received was darker than usual and the new person who joined a meeting I was in choked back their tears, it hurt to read the email and see the tears that wanted to fall...It brought my diagnosis and my feelings at that time flooding back. I wanted to give these people a hug and say it will be ok....Since I couldn't give them a hug, I gave them words of comfort and made this video.

Videos & Sources

My Carbidopa/Levodopa Evolution - 10 years with Parkinson's
   • My Carbidopa/Levodopa Evolution...10 ...  

Parkinson's & Carbidopa/Levodopa Phobia
   • Parkinson's Disease & Levodopa Phobia  

Why women with Parkinson’s are misdiagnosed more often than men
www.pbs.org/newshour/show/why-women-with-parkinson…

Poll finds a quarter of people with Parkinson’s are wrongly diagnosed
www.parkinsons.org.uk/news/poll-finds-quarter-peop…

Is It Possible That You’ve Received a Parkinson’s Misdiagnosis?
www.hiredhandshomecare.com/received-a-parkinsons-m…

All Comments (21)
  • @alittlebitshaky
    For those just diagnosed my advice would be: A) stop and breathe…Parkinson’s isn’t going to race away out of control if you take your time, so stop and breathe. B) once you’ve got your head around the diagnosis a bit….move, exercise and don’t stop. Everything with Parkinson’s is better if you exercise….truly everything….EVERYTHING. Your tremors, your rigidity, your depression, your apathy, it will all improve…so get moving! C) breathe a bit more, listen to Jen’s stories, write your own stories, learn more about Parkinson’s…. D) live your best life That’s my wisdom after living with PD for 12 years ❤️ As always, Jen, love your work and you are definitely rockin the eyewear!
  • @xjet
    Five years on from my PD diagnosis I'm doing great. Having the right outlook is super-important. We can't cure PD but we can sure put up a fight. After my diagnosis I lost 10Kg, started lifting weights, added creatine monohydrate as a supplement to my diet and now walk 5-10 miles a day (when weather allows). The things that worked best for me were exercise (use it or lose it), a high protein diet and trying out as many things in respect to diet as possible. Science says that exercise works because the endorphines released during exercise actually stimulate the production of dopamine. Likewise, coffee (counter intuitively) can be useful because caffeine also stimulates dopamine production. The creatine boosts energy levels and at least one study indicates an improvement in the symptoms of PD. I have probably read thousands of studies and medical papers on PD and joined many of the dots myself so that I'm really happy with my current situation. Although my first symptoms were a tremor, that hasn't actually gotten much worse and the most annoying aspects now are sleep disorder (my wife has the bruises to prove it) and dyskinesia that sometimes affects my hands and feet for 20 minutes at a time. My doctor has prescribed Cinemet CD/LD but I rarely take it because 95 percent of the time I don't need it. I realise that at some stage I will have to fall back to medication but in the meantime I've discovered that there's a lot you can do outside of taking pills. At this stage (in the second year of my eighth decade on the planet) I intend to live forever or die trying!
  • i'm 66, a fairly recent widower with Crohn's disease and no family nearby. I was diagnosed with PD two days ago. Your channel is the first one i found. I'll be back. Thank you
  • @kendc4725
    Well done! As someone who is still fairly new to this whole thing, the diagnosis shock and immediate confusion are still raw. Many of us step out of the doctor’s office armed only with a prescription, a follow up appointment (“see you in 3 months, stop at the window on your way out”) and some brochures with pictures of a few happy Parkies doing their exercises. Thank goodness for you and others who help connect the community through social media!
  • @SDWP
    Great advice, as always! 🙂
  • @tomrio9914
    Love, love, love your timely video. Just last night this was part of the discussion with an online group. Then this morning I was overwhelmed and stressed while writing a silly email. It’s often a roller coaster ride and even if you don’t like it get used to it. Never give up, fight back! 😊
  • @doriscorr334
    Thanks for you video. You are so positiv. And it is tru there are fantastic people in the Parkinson community. No Guinness this time. You are good on your diet. Your glasses suits you well.
  • Hello. I think you're awesome. I was diagnosed 5 years ago . I'm 48 now . I love your channel ❤
  • @James-ws6du
    Was told I have cervical stenosis which might cause some of my Parkinson's symptoms to be worse. thank you very much for your videos they help.
  • @emmadwyer3851
    I was missed diagnosed for two years with essential tremors. Finally found a neurologist who did the testing and said I had Parkinson’s.
  • @johnbutters3312
    Hi Jennifer, That's timely and clear info to help us 6:35 remember that conditions are different for newly diagnosed people. Compared with those of us who have been with Parkinsons for many years. cheers John
  • @rogerokelley
    Oh it’s so good to see you Jennifer. “love the glasses”. You are so true. I’m blessed to finally find the right doctor. Last week I was able to get to Sonoma, CA. for Nascar Race. I finally got to WALK across Golden Gate Bridge “Bucket List” I used my Rollator walker and I was slower than others but I DID IT 🎉🎉. So excited.
  • @SF-cg6kn
    Fabulous advice, you've covered pretty much everything. Particularly important is a support group, ideally local but online is also good - It's very important to know that you're not alone. P.s love the new specs! 🤓👍
  • I was diagnosed in Feb I'm not on meds yet but doing a lot more excercise it's working for me I just have tremor in thumb at moment
  • @rogerokelley
    My first neurologist was honest. He told me my issues were out of his league and to get a second opinion. I now have one of the best neurologist in the Southeast.👍 In the past I never knew there were different types of neurologists with different specialties. Sounds like I was uneducated about it but at that time “life was simple” and I didn’t keep up with doctors.
  • @KdqKdq-ss9uq
    You're amazing,pretty like my story just i don't have enough courage to join a support group. I feel like afraid to see / to hear people's stories.
  • @davidhughes5998
    As usual very helpful, good to talk and learn about parksons
  • @tara6047
    I was told after two days of calling the neurologist on my cell standing in the bathroom at work. "Did you want to talk about a plan now or do you want to make an appointment?"