Prader-Willi Syndrome: The Children Who Are Always Hungry
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Published 2022-11-20
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All Comments (21)
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Shout out to the neighbor and credit card. What a humble human finding a way to distract himself and gained independence. Thanks for sharing.
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Sounds like hell. Feeling of starving and never being self-sufficient
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A big shout out to all the other PWS families out there! Never easy telling others how our children are always hungry and them saying “sounds just like my child” when they have no idea. Routine is your best friend, my little girl just turned 12 and is kicking butt and amazing!
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The young girl is so smart!
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OMG this is so wrong & so cruel ! We NEED more than anything to find a cure for this horrific disorder !
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Poor guy. So humble and self controlled while fighting one of our most intense urges on overdrive
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I've watch other docs on prader wili and they all talk, walk and act very very similar almost identical
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I can’t imagine always feeling hangry 😨
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Heart breaking.
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In the 80s, many people used prescription, amphetamine-based appetite suppressants. As it turned out, as a diet, it was way more damaging than efficient on the long term, but the molecules do exist. I don't understand why science can't come up with some effective and inocuous appetite suppressant to help patients with PWS. I'm surely being naive, and hunger is only part of the problem of course, but I'd like to understand why this is not possible, I mean it would help a lot, wouldn't it?
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I hope they can cure the constant hunger even if they can't cure PWS.
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I notice that a large percentage of children with PWS live in AU and NZ. I wonder what the diagnosis/population is?
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It’s heartbreaking ❤
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Ozempic
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One of my friends had it and died at the age of 27 years old and was in hospital a lot before she died in 2018
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Evil despicable condition. i have no other name to describe it.
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I am sad
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There MUST be a treatment for them.. either some sensation or hormone blocker because there is a hormone that causes hunger too. Apparently its also possible to become desensitized to that hormone.
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There is a medication for diabetic using also to obesity people. The medications porpise is to stop people feel hunger
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How many people from My 600 lb life have this but go undiagnosed? Did Dr. Now ever consider this?
