My CFS Recovery - What I Would Have Done Differently

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I have to say also though, that there is a rhythm to recovery and to becoming wise and that we are obsessed with efficiency in the US, but if you had not gone through all of this you would not have the wisdom you do. You also maybe would not have met your husband or started this channel, etc. so I believe there is not a rush to recovery but finding a way to learn with each step and learn to appreciate each day along the way and take what serves you and leave the rest. I think you had to learn all of these things so that you could eventually support all the people that you do. If you had recovered quickly or easily, I’m not sure you would be who you are today with so much to offer others and so much energetic support to those suffering. I hope this makes sense. You shine your light. And often those who’ve experienced the most darkness can shine the brightest light. ❤

Couldnt agree more! I was sick for 3 years now after my third vaccination. Nothing helped, no doctor, no suplements, nothing. Found the brainretraining concept, tried it since june and started working again in august. Im telling you i had crazy Symptoms the first 3 Weeks every single day. Heart was racing, crazy brainfog, felt dizzy all the time but i trusted the process. Kept my composure and put all my time into recovery and here I am. I can work again with no symptoms at all. It got better every week after the third week because i did the retraining in every possible situation. After 3 years i finally feel normal again. It is 100% possible to get out of this. I startet working again before but i always ended up crashing bc i didnt know what was happening and got panic over symptoms, but this will never happen again. You guys can do it too!

I am in the stage where i cannot sleep, really bad anxiety, panic attacks, the nerves flare up in my body and i shake. It is terrible at time. I guess to heal from long covid is mind set. Time, do not worry, tell yourself that you are healing, you are getting better. Do not put pressure on yourself. It will take time. Than you will heal. That is what I saying to myself. One day I will be truly healed.

Chronic illness is big business. I also came to the conclusion that the desperate pursuit of getting well was causing me so much stress, which was hindering my healing. I’m not to the other side yet but I’m in process. Things began to shift when I continued to focus on rest, meditation, dealing with childhood trauma and being gentle, patient, and compassionate with myself. Neither allopathic, integrative, nor functional medicine is a panacea. We have to be very careful about who we trust to collaborate with in our healing journey.

Oh man! The diet fixation is really an American thing. I did all of the same things everyone else has done. I wasn’t vegan but I was vegetarian and dairy free which is close. Along with gluten free, low carb , Yada Yada. None of it helped. Some seemed to make it worse. Now, I focus on intuitive eating and listening to what my body needs.

Yeah, what I got from this video was that recovering our vitality has a lot to do with reconnecting with our sense of self, and so that necessarily will look different on different timelines for us all. We get trained to learn in school from the outside in and it's a paradigm shift in and of itself to begin to learn to reorient that learning from the inside out.

This is all such good advice! Although I’m still on a recovery journey, I definitely agree the biggest key to my healing has been understanding the nervous system, vagal nerve theory, limbic system etc. and just understanding that is the root of all symptoms so I don’t need to focus on them or chase symptoms. I found brain retraining like DNRS helpful in a way but it also lead a lot of perfectionism and for me it didn’t bring a lot of joy. But understanding the basic concepts from DNRS was foundation to recovery! And the moral support from groups. Then I have just worked on my own to implement what brings my nervous system healing: proper rest, positive relationships, nutrient dense foods, music, gentle movement, setting boundaries, not comparing myself or my abilities to others, and incremental training… which like you said can cause small setbacks but just “doing it afraid” and surviving has given me so much motivation and joy. It’s all about pacing and balance. I stopped living in fear and stopped believing there was something wrong with me. My faith in God has also been an important part. ❤

Raelan agree with so much of what you said! I have made a lot of those mistakes myself, but a wise man once told me if you don’t make mistakes, you don’t do anything so we’re always gonna make mistakes. We just need to learn from them. Thanks for your encouragement and wisdom!

I am working on getting over long covid that I have obviously had since August 2022. It is frustrating to be sick and not know why. But I am starting to use my pendulum and dowsing rods to get answers. So they tell me to ignore diets, exercise, medical techniques that obviously don’t work. I am learning about so many things that you suggest that I am starting to use like the meditations, positive thinking and affirmations that are starting to work. None of my doctors nor hospital even acknowledge long covid so there is no support there. Thank you for all the information. Best I’ve found so far😂

Raelan, this video is recovery GOLD. Thank you! You said something in a recent video about lifting one pound weights if only to teach your brain that lifting weights is a safe activity. I’ve started doing that - propping up my weight bench (that I got as a gift three months before I got COVID and barely got to use) and doing a few bicep curls with the 1lb weights I got years ago with a Billy Blanks Tae Bo video 😂. I’m soaking in everything you have to say. The diet and supplement fixation has to end also. I totally agree. I wish I could get back all that money!

Thank you for this video. I agree with you so much on the de-cluttering of my brain, and just define a path forward and stick to it for a while. I’ve been so messy with this in the past due to anxiety to get better faster, it only got me worse. Now I am more serene and praying more to God to guide me so I can choose wisely.

I was nodding through a lot of this! Gut health is definitely near the top of the list for me too. Over time I've very gradually been able to manage more. I'm not "recovered" yet, but incredibly improved since I first became ill in late 2010. Crochet & my faith have definitely been super helpful for me, along with my wonderful hubby & family. Thanks for this excellent message. 🥰Blessings from South Australia💕🐨

Everyone is jumping on this brain training stuff... but nowhere on the internet an I see info9rmation about HOW to actually implement it. Ive spoken to a few members who posted recovery stories on this channel, offering brain retraining services. They say they want to help people and that its their mission in life to help people but I'm then getting 'quotes' for thousands of pounds and feel like im getting taken advantage of. Surely there is someone out there who is altruistic enough to share the advice without crippling me financially.

That all resonated with me. I did almost every single thing you wish you hadn't and found my recovery journey by leaning in to all the things you wish you did more of/kept. Gratitude is a big one for me. I feel so grateful for living in an age where I can connect with you and Dan. There is so much misinformation, and this channel was a filter in that regard. The other thing I feel that helped me recover was realising that the solution was simple and possible and not complex and endless. If I had to take 3 things in the Long Covid/CFS desert island it would be: movement, brain training, hope (&joy lol)

Thank you for sharing this. From what i see it is about tuning in to us. I believe in this and look forward to getting through this. The focusing on yourself is the key and listening to your body. The irony is so many people are told they have anxiety and then told not to pay attention to themselves and offered medication which further breaks the mind body link. Good job

Thanks for this video. It resonated a lot with me. I’m going to try to post it on the Canadian long haulers Facebook group. I wish I’d seen it at the beginning of my LC as I made many of the same mistakes. Supplements eventually I couldn’t even keep down…and I stopped taking them cos I figured my body was saying a hard NO! I also tried too many things at once and just tired the hell out of my body, and probably made it worse. I think what was the worst part in those early days for me was feeling alone in a battle that I could win if I just fought hard enough and long enough. It’s like everything I knew was wrong. I had to sort of give in and learn acceptance before I could progress. And make the mind-heart connection. One thing I can definitely say is alcohols does not help at all, and I didn’t realize until fairly recently what medically moderate drinking ( a couple of units a day) was very very bad for me…any alcohol does damage to me, and once a week or with a few days in between is tolerable, but the cumulative effect of moderate daily drinking is too hard on my body. I fee so much better if I avoid alcohol altogether, to be honest. Even though I love wine so much. I have an an OT who’s helping me a lot with resetting nervous system. Before I had her, I was very depressed because I couldn’t sustain improvements from all the other things I tried. If nothing else she’s helped me understand what’s happening in my body, and to accept the recovery at a slow rate, and focus on strategies that work each day. Question for you, how has your life changed from pre-illness to post-recovery? Did you make many changes to work, career, relationships, outlook, etc… to be able to sustain your recovery? Or did you return to your “old life” as it was? Thanks again for your video. ❤

At the beginning I only watched success stories and I jumped over the first part where they talked about their story to the what they did to recover part.

I value these tips so much! We really do try ANYTHING to get better. Your channel has so much amazing free information. I've gained so much from you

Thank you ❤ I'm feeling more positive now.