Rock Hill woman shares heartbreaking experience with Trigeminal neuralgia, known as 'suicide dis

Thank you for bring awareness to this AWFUL CONDITION! I have suffered with it for over 18 years now. It takes so much….but YES! There is HOPE and we must do all we can to keep it alive until a cure or intervention is found.

I survived this... I don't know why mine seems to have gone into remission... Its so crippling and I dread the day it returns

I have this horrific disease. I know exactly what you are going through. I was diagnosed in 2018 with TN. I'm praying for you because if you have not experienced this I would not wish this on my worst. Sometimes I can't even brush my teeth because I am in severe pain.

My son has this. He is 16, first symptoms started at 13. He has facial trauma. ER took it as just mild tenderness and they said apply ice.. Took 3 years to get diagnosed. One doctor went as far as saying that he needed to see a psychiatrist that it was psychosomatic. One neurologist was utterly useless and finally a second one realized that it was Trigeminal Neuralgia. He is on carbamazepine 200mg twice a day and it has helped. He will occasionally still have pain. He had pain today 1/8/2022; just from laughing and his teeth got sensitive as well. The prain went from 10 to 8 to 5 but at the end he was drained and took a 3 hour nap. He needed comfort so I was there holding him and reminding him to breathe because he got emotional over not being able to laugh without having pain.

If you're here, most probably u are suffering TN... Mine came in 2018. No cure for TN. I did my research and find out more about TN, till one day I've found this video from a person have the same problem. He recommended to try acupuncture. Nothing to loose, i went to the nearest trusted acupuncture. Told him I'm suffering TN and proceed. 5years now I don't have to go through excruciating. I feel very thankful to have found the recommendation. Those suffering from TN, I pray you guys won't stop fighting ❤️

I am so proud of you /Abby/ and anyone else who has this. I’m not a educated woman / truly my sweetheart. I’m 75 and just starting to learn., but I know and hear you. I fell in love with your precious heart. At work today a 80 year old lady shared her story, and her 90 year old husband helps her so willingly, totally amazing. So all you fabulous people, please have hope and gentleness like my Abbey love Luba😘🙏🙏

Just got diagnosed with this and this video is spot on. The pain is unbearable and impossible to describe.

Fellow sufferer. Started in my mid-30s. We hear you.

I've just been diagnosed with this it's absolutely horrible the pain is nothing like I've ever experienced in my life! Just started on carbamazepine 100mg twice a day.

I've had it since I was 5 it's awful I'm glad people are more aware

Nerve pain is no joke but this is not nerve pain ....its beyond nerve pain. Its torture and you really do just want it to stop. Imagine what it would be like to have an exposed nerve and just tapping it....yeah you can imagine but unless you have it you will never know just how bad it gets. Its like getting electrocuted in your face over and over again. It is also without mercy.

I'm 39 and was diagnosed with TN in 2018, after the pain started in 2017. I had MVD surgery in 2019, but the pain came back in October 2020 with a vengeance! I want to have the surgery again, but I'm afraid the pain will come back again. It makes me feel as if there's no need to waste time and have the surgery because it's only going to return. 😫

Mother is currently suffering in the hospital for this. It's terrible.

Hope ur doing better

Struck with this in 2008 (age 25) and have had good years and bad years ever since. Some medication helps, but you have to experiment with your doctor. Some of those meds have bad side effects. Most of them eventually wear off. I was lucky to have one work to stop the worst of the pain for five years. Even that has worn off. People around you will never know just how bad it gets.

Ive just been in hospital twice over this past weekend with tmj issues and suspect TN. I've lived with chronic pain all my adult life caused by stage 3 endo and slipped disc in my lower back after an accident but the pain of this is just on another level. I'm finding it very hard to explain it but YouTube videos are helping ♥ calling it the suicide disease gave me chills because in that moment I wanted to die

I have bi-lateral Trigeminal Neuralgia, Occipital Neuralgia, Geniculate neuralgia, and glossopharyngeal neuralgia. Diagnosed in 2013. I need health insurance. It was never made affordable

My best friend killed himself because of this disease. It is the worst pain a human can experience.

My daughter has this and has been living with it for 18 years. It takes seizure and pain meds to stop it. I hope one day they have a cure for all those who suffer this life altering and debilitating issue.

I have TN caused by MS and surgery is not an option for me for those who commented like we didn't know about micro vascular decompression surgery. No meds help and I am in constant pain 🙃 Until they release a new remylenation drug I have to deal with this horrible affliction. God help those of us suffering from this disease 🙏