PODCAST - LOSING your MOBILITY to #MS _From Walking To A Wheelchair In a Matter Of Months

It's hard to believe that she's 44. I thought she was in her late 20s.

Such a beautiful lady, I also like the approach when she says still very active, that’s the way to go! Keep strong , you’re great person! 😍😍

Really enjoyed this conversation! Anne`s sense of humour and intelligence came across so clearly - what she said about being pyschologically ready for mobility aids was really interesting. I imagine that so much of the stigma and embarrassment of being in a wheelchair has to do with the fear of being pitied. But I think that the more visible they are, the less of an issue that is. Ideally, we would get to a point where public spaces are designed with the assumption that wheelchair users will be able to do anything that able-bodied people can do. Once that is the case, there is far less reason to pity a person anyway. Everybody in life faces their challenges and the only difference with someone in a wheelchair is that theirs is so visible. But the better designed public spaces are, the less reason there is to see being in a wheelchair as this big impairment. More of an enabler to do all the necessary and enjoyable things in life. Thanks so much for the great discussion!

I have had MS since I was about 10 I am now 72. It has been a constant friend even though it has taken so much from me. It has given me so much too bad attack was at 21 with a four month old baby. I had a lot to get better for, I have taken none of their drugs as their drugs for MS have made me horribly ill. I am now in a wheelchair after falling and breaking my hip having a wheelchair is not giving up. It has helped me have a better life. It has its challenges but so does life. I’ve learned over the years to embrace whatever happens as it is just life no one said you were gonna walk the rest of your life. No one said it was going to be easy, believe me it hasn’t been, but it could be worse. You have to remember it can always be worse and thank God it hasn’t been. It’s all doable. I have found that MS takes and gives back but not all the way.

I think this is a great video conversion. Yes absolutely about Dr.'s and how they handle giving news Myself being diagnosed with both brain tumour (cancer) on my cerebellum and MS same-day, I got the it's not that bad from dr.'s. Come on, it's cancer and MS, 2 major illnesses.

Ha - loved you using the word cripple. Had my seven year old niece and her Dad over for the day a little while ago. I always use the word cripple about myself, in a self-deprecating way. Imagine my horror when my niece turns to me and goes "what's a cripple". I never tripped over myself trying to explain that it was a word I could use, cos I am one, but that she could not use!

That was great. Thank you.

This was hard to watch. She couldn’t even finish her sentence without being interrupted. It was still a good topic. And I mean no hate.

Thanks!

I have tumefactive MS with seizures can anyone here relate

I was extremely lucky in terms of speed of diagnosis, I fell n my feet (pardon the inference) in that my GP had a friend from University who was now a consultant Neurologist. Diagnosis came in less than a year but it progressed through Demyelination through progressive to primary to secondary. I was using a stick in less than a year and in a chair just after two. Yes. I've had people try and push me without asking, I threatened them with assault charges; they soon left me alone.