Gait, Balance, and Falling in Parkinson's - Living with Parkinson's Meetup: November 2022

I walk into things, or try to go too fast, misjudge where the door is. I do shuffle. I like your sense of humor,Heather

Thank you to all the panel members. I look forward to your sessions each month. I'm 'down under' in Maroochydore, Queensland, Australia 🦘🐨🦘

Putting music on definitely helps keep you from freezing

I was diagnosed August 2020. Like everyone, I know I've had Parkinson's about 10 yrs. earlier due to falls, balance. I was out in the yard pulling weeds. I had put my cane by the fence and phone on the ladder. BAD move. I fell into a large planter with a bush planted in it. My bottom went in, legs went up, cane and phone out of reach. Being who I am, I laid in the planter looking at the cane by the fence and phone on ladder, and just laughed! I tried to roll the planter over; didn't work. Not good upper strength, so I just laid there, legs and feet in the air. About 20 mins. later the neighbor came out. I yelled to him, "Can you help me? I fell and I can't get up!" Immediately I thought of that commercial, again laughing. He helped me out!😂😂😂😂😂 My thoughts, YOU should ALWAYS carry your phone .Make sure you have a cane or something close by in case you need it! I LOVE ALL OF YOU❣ I have learned SO MUCH! THANK YOU, I AM ONE 66 Y/O BLESSED LADY❣

.music is the last sense we have that stays with you even with dementia at the end of the disease. I find I can hold on to my walker to exercise to music much easier. Keep active. I fall backwards and I am unaware until I am down. That's why I wear that necklace that will call the ER guys if I don't answer or can't get up. Be safe

7:45 Friday 2/24 . I have a DBS . I wish I could have the new gloves. My husband and I both have PD. He passed last year. I am in my 13th year and my biggest problem is freezing. Yes I have had many galls

Again❣️ A fantastic panel❣️

Thanks 🙏 to all of you 💖

Great discussion. My mum's gait and freezing issues have improved - very significantly - with the introduction of citicoline (4 x 250mg)...If you look, it's there in the literature. Has enabled her to reduce her Sinemet dose too.

I have had many falls. Luckily only have had 1 fracture (my wrist) but had a serious injury. I fell getting into bed one night. My face hit the metal bed frame and I had a ruptured iris and needed surgery 11:47

Even talking on the phone while walking can cause falls. Don't ever do 2 things at once

I take Rosemary leaves steeped in boiling water, let it cool to drinking temperatures this definitive helps the falling tendency

I was Dx'd about 5 yrs ago. I try to stand still for a minute to get my balance

Just discovered this Q/A program. As 80yo , retired MH Therapist, blind Parkie Diagnosed 5 years ago. Slow progression. Enjoyed this discussion tremendously. If there are other such discussions I would love to hear them. Watch for you in January. Joyce

Where can I fill out a form or email something to get on one of the groups that are working with the gloves that are supposed to help Parkinson’s patients with tremors etc. I’ve seen them a couple of times but they never tell you when you can get onto there Trial teams is there anything on when these will be out and ready for sale and how much they’re gonna be can you send me information on it?

I highly recommend keeping a phone on you. I fell last year before diagnosed. I was outside alone yelling for help. That's a very scarey situation

Does anyone know if those balance boards with a ball in the middle that makes minor tilts in every direction, it’s supposed to help with balance. When I first saw it they had people who had balance problems and this is supposed to help you regain balance. How long till balance becomes an issue, how long with PD. My mother who’s 82 was diagnosed when she noticed her balance was off, she was always a busy woman who when the last time I visited I told her to slow her roll because I couldn’t keep up with her, she was almost 80! My mother is the last remaking member of the family I was born into. This is freaking me out, I’ve been to many sites that didn’t teach me anything till I came here. If anyone has it in them to help I sure could use it now please 🙏

Just visited my mom and was disheartened to see her in bad way because of parkinsonism (and other issues ). Started looking into things that might help her and came across Vitamin B1 therapy for Parkinson's by Daphne Bryan and Elliot Everton ( Original research by Costantini on Vitamin B1) . I have bern hugely encouraged by reading the book and have asked for my mom to be put on Vitamin B1 HCL tablets as she is in hospital. Finding the correct dose for each person is the main challenge as u will see if u look into it but many seemed to have had positive results. I seemed to have gound some hope again . Wish to pass on the same hope to people who are fighting this disease. Good luck to all . Please do try a ray of hope for all 🙏🙏🙏

I have a problem with one of my legs is shorter than the other due to a hip prosthesis I’m always limping which makes my short leg tire quickly. Plus I believe that problem also causes me to lose my balance and it of course affects my gait. I have been wearing heel lifts on my short side and that seems to help a little. Is there anything else I can do to overcome this issue.

I have a question someone may know the answer. My mother who’s 82 was just diagnosed with early stage PD. Has anyone tried psilocybin in Micro doses? I have nerve damage from an accident, that I was put on Permanent/ Total Disability, at least I was hurt at work and was making a good living. I tried it for pain, depression and electrical shock pains that would shoot down my leg and go into the other leg, extremely painful. Point is it worked and helped a lot with depression, pain and sleep to be honest. Please I’m trying to learn as much as I can she is my only living family member left, besides my family. I’ve lost way to much already. Your advice would be appreciated…