How can people recover from ME/CFS, Fibromyalgia, POTS, PVFS, MCS - WITHOUT a Cure?

After a long history of depression, anxiety, and complex PTSD, I believe I've experienced debilitating ME/CFS for the past 18 months, though it probably began decades ago. It has been hard to get recognition from doctors that it's more than a simple manifestation of poor mental health. When I began to recognize post-exertional malaise, I realized it wasn't all in my mind. Over the years I think some therapies for depression were counterproductive because they focused on behavioural activation, but it seemed like my body sometimes punished me for doing things I enjoyed. After a busy time I would always need to crash. Eventually it became more debilitating and persistent. More recently I've received some benefit from tools like mindfulness that acknowldege body sesnations, and radical acceptance focusing on not judging or fighting the feeling of fatigue. The stress not only affects thoughts and emotions, but also has a distinct effect on the nervous system. I look forward to learning more about neuroplasticity and recovery from ME/CFS.

Thank you. 42yrs old female 2 yrs chronic fatigued from ptsd stress and over exercising. feeling “partially” recovered but still have triggers. Appreciate finding this channel

Very new to the whole ME/CFS community. I have not been to a doctor about my symptoms because from what I gather reading/listening to countless articles/podcasts/studies/lectures on the subject, there isn't much that traditional western medicine can do and there is often dismissal and stigma involved. SO I am searching for answers elsewhere. I came down with a severe norovirus infection about 8 months ago and it is since then that ME/CFS symptoms have steadily appeared. Prior to the soul-crushing fatigue I experienced following that illness, ME/CFS wasn't even on my radar. I am recognizing the triggers as time goes on, and how they affect me. Hoping to learn more and head this thing off at the pass before it takes over my life.

Hi Dan!!! It’s so great how much you’ve done to educate people about CFS -ME. My doctor told me I only had a 5% chance of ever recovering. I was so demoralized. I was ill around the time you and Raelan were ill and there was little to no positive information. Now hearing all of the positive stories, it’s remarkable to see how many people recover. The medical establishment doesn’t do us any favors setting already hyper vigilant nervous systems into a tailspin by saying such things. I’m about 85-90% recovered and just started working with a doc on brain training. I’m very excited to see how it will hopefully help me gain the last part of my recovery. I can honestly say I don’t know if I could have done it without YOU, Toby M, and Raelan Agle. You are all wonderful people and I am so very grateful to have found you. 🙏🏻🙏🏻🙏🏻👍👍👍

This makes so much sense. It is such a pity and a commentary on our microwave way of life that you need to make a video explaining there is no one size fits all easy fix. Where are we that we expect this? Exactly where doctors want us. If we are prepared to LISTEN to our OWN bodies (and minds) and study ourselves we can apply wisdom from others who have gone before us and FIND OUR OWN WAY. I am currently 2/3 of the way through CFS unravelled book and have to admit I was frustrated in the first 1/3-1/2 wondering when you'd just TELL US ALREADY! But now, I see. I understand that there is gentle work to be done to make my way back out of this labyrinth I have found myself in. Thank you Dan for your hard work helping people through your content, courses, books and resources. I appreciate the hard work and effort you put in. It is obvious that you are passionate about the well-being of us PEC's. Thank you again and God bless.💝

Thank you for the information and stories you share! More vital than ever is spreading knowledge about chronic illnesses, especially now that others are developing it post-Covid. Another fantastic video!

This is amazing info. As I am aging - I’m 72- I have been experiencing changes that I didn’t even realize are a part of my fibromyalgia. Especially the brain fog. When my physician at the time brought it up, I really wasn’t experiencing that. Boy am I now. So thank you so much for sharing this. I am subscribed, but was overwhelmed and couldn’t read or listen to another explanation. Your info is so easy for me to understand . I will be back. One more “ thanks Doc”.💜

I have just discovered your videos, thank you so much. I've been suffering for about 40 years from what has now been diagnosed as fibromyalgia. Before the diagnosis I dared to ask my doctor whether I could have CFS. He looked at me over the top of his glasses and said "My dear woman (he is the same age as my children!) There is no such thing. It is the product of the imagination of neurotic middle-aged women who want an excuse to give up work" and that was the end of my treatment. Thank God such ignorance is mostly a thing of the past

Pain free you is a good channel also.. very helpful 🙏✨

Thank you, Dan. Your observations seem quite responsible and sane. My hope for some recovery may flourish again.

I do like the video as it makes a lot of sense! I'm feeling desperate to find answers and hearing the information in this video gives me hope! Thank you!

Thank you very much for this easy to understand and informative video.

Thank you for the information And the stories.

Thank you so much for your insightful videos! I truly appreciate them. I've had CFS for 7 years, which began after a colon infection. It was only three years ago that I discovered certain foods were triggering my symptoms. By avoiding these foods, I've seen a significant improvement in my well-being and stability. Additionally, I've found that certain types of puer tea have been beneficial for me. I've now reached a point where I can work, though my energy levels aren't yet back to normal. I'm hopeful that your videos will guide me towards a full recovery.

Thank you so much for the insight and clarity

Great explanation and food for thought. Thank you!

Thank you for this

There's not cures but there are recovery programmes. Cures come from the outside, recovery comes from within. Entirely different things. With a cure it's the Dr's responsibility to give you something to heal you. With a recovery programme you're the director.

Thank you:

What you are daying makes compete sense, only everything is a trigger for me, the cold the heat the light, smells, sounds, lack of sleep, everything is unbearable,, i was perfectly healthy until 4years ago,;since then ive constantly suffered, i did enjoy this video + get what youre ssying, 👍