Ehlers Danlos Syndrome?
11,165
Published 2022-04-22
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Bob interviews Jeannie Di Bon about Ehlers Danols Syndrome. Jeannie is a Movement Therapist specializing in Hypermobility, Ehlers-Danlos Syndrome, and Chronic Pain. She has spent over a decade of experience supporting clients with their pain management and guidance on the path to health and wellbeing. Jeannie is the author of two books and she is a writer for the Huffington Post, The Mighty, and Thrive Global on the topics of chronic illness and invisible disabilities. She also regularly presents for the Ehlers-Danlos Society at their international conferences.
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All Comments (21)
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Be sure to watch the other part of our interview with Jeannie Di Bon https://www.youtube.com/watch?v=DFdT26-2AZk&t=95s
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Thank you SO incredibly much for covering this!! I have this- type 3 or Hyper mobility type ( HEDS.) I can guarantee there are people watching your channel who likely have it, and don't know it, that are in chronic pain, in the process of struggling to find answers and treatment. So this will very likely help someone out there. So seriously as someone who it took 20 years to get a diagnosis- thank you for covering this!! Cause it very likely will help someone!!
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Vibes for continuing healing Bob.
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Thank you for making this video. There’s not enough education on this and many misdiagnosed. This is so informative. 🙌🏽
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YES THANK YOU SO MUCH!!!! You guys have helped my back and knees so so much. I have EDS type 3 and it means a lot to see how much work you guys put into helping people like me
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Thank you Bob & brad for interviewing this gem of a woman and bringing awareness to this! Here’s to hoping more doctors learn about this!!! 🦓 💪🏻
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Thank you. Thank you. Thank you. Thank you all!
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The majority of my pain comes from nerve damage. I have EDS and am 43, I was very active and pushed myself when I was young and didn't know what was rong with me.
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Thank you for this! You are teaching me valuable information to save my poor wife's life. 2 days after finally finding out what causes her so much pain I fell like our problem just became a lot smaller!! Understanding is so rewarding
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I suffer from EDS runs down my Mothers side. Thank you thank you for this program today! Because I was so flexible as a child I was a ballet dancer and a varsity gymnast. Sadly no one knew this then. I had c-19 working as a nurse and it exasperated my EDS. Now I can barely walk on a bad day.
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Exercises that don’t hurt. Backwards walking outside uphill with tones of breaks and a paleo style autoimmune diet seems helpful
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Thank you for exploring the topic of EDS despite a feeling of discomfort around the topic. Even if you don’t work with EDS patients, your willingness to learn more about EDS showed that you care about learning and growing as clinicians. You now have more awareness for the condition and that can help someone on a path to diagnosis if no one has been able to put all of the pieces together. My dad was looking for videos to treat a leg issue and my dad saw this podcast. My parent decided to watched it. They told me that it really helped them understand a bit more about what I deal with on a daily basis with EDS. It can be really hard to explain what EDS is in a nut shell. My parents are supportive but they have had a hard time understanding. Thank you for helping share this content so that my parents could learn more. They have said many of times that it’s hard for them because they don’t understand, so helping them understand makes a huge difference!
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Glad to see this interview. I have recently been following Jeannie...haven't been diagnosed...I do find her suggestions very helpful. At 66 I have had a lifetime of injuries and chronic pain, wondering how to get tested for this. Through the years I have had PT's tell me I am hyper mobile. I am a very active senior....but the pain seems to be taking more and more out of me.
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Much appreciated. EDS is not much talked about , even though it’s one of the challenging conditions !
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I have type 4. I’ve found that keeping my salt levels up and magnesium soak tubs really help.
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Thank you Jeannie and Bob and Brad!!
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Thank you for this. Are there any exercises which can help with loss of proprioception? As I've got older severe osteoarthritis means I'm not as hypermobile as I was but have become extremely clumsy, which is very frustrating.
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I have hypermobile EDS and now I have developed a small aortic aneurysm. Because my father and his two brothers died of aortic aneurysm I am on it and watching it with ultrasounds. EDS hypermobility explains why I was terrible at sports, my joints would dislocate, and I tend to be a couch potato. Which isn't good either. Thank you for covering this.
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I've been doing Jeannie's Zebra Club for 1.5 years now. What a huge difference. Like night and day. Movement is CRUCIAL for people with EDS.
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Thank you so much for this!
