Finally have an update from the neurologist...

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Published 2022-11-25
So have just received a letter from my neurologist explaining my recent MRI results. So I thought I would share this with you, after giving you an update from my MS Nurse, this is more the official line.

As you can see from the video I am much happier now with the further clarification from the neurologist!

Let me know in the comments below if you have any further ideas for future videos, as I would love to put them together for you, to help others suffering with Multiple Sclerosis and other autoimmune conditions.

All Comments (18)
  • Great news. I had a MRI of my brain in August of this year, had naot had one since 2012 and my neurologist and I surprised that there a MRI small change in one lesion. I haven't taken any MS treatment since 2013. My main problem was/is my spinal cord lesions. Didn't have MRI on it. Haven't really done anything but relax and live a grateful stress free life.
  • So happy for you! Keep going! I am 15+ years in and doing well!
  • Thank you Tom....in going be diagnose but I know I have MS ....I would love to see your vlogs....and see what changes I can make to help me out ...
  • @beastywild
    Delighted to hear Tom. Been following your journey from the start, have my MRI in February, please God it goes well. I've been following the Wahls protocol and other lifestyle changes so hoping it'll work for me
  • @forkums
    In the US it is the day after Thanksgiving. For me it is not a single day, I am giving thanks daily for the blessings I have in my life. I don't know you other than watching your videos. Even so, we are in together. You are close to my sons age, don't like to see a young person dealing with this but It appears you are handling it like a champ. Happy for you that the results are better than you first thought. Keep doing all the things you are doing. Off to watch the World Cup US vs England. I am getting my Ocrevous next week, ready to roll. Best to you and all with #MS
  • @TheUKurban
    Amazing news! Keep up the videos, they are certainly inspiring for me! 👍🏼
  • @Durace11Bunny
    Great news Tom! We'll look forward to some lifestyle videos. Maybe do some videos unrelated to MS to show people that life goes on with it like hobby videos? Vlog some day trips, do you like certain places,foods, restaurants,cars,gadgets,films,books,gaming,gym etc. Then related MS videos, do you know others you can have a conversation with. What impact has it had on friends and families, what do they know about MS? What are your life goals etc. Wish you all the best dude!
  • Wonderful news! Hope you get even more clarity by speaking to your neurologist face to face. I've just got my scan results after 1 year of diagnosis and nothing has changed, so I'm super happy about that. I'm also in the process of changing from Tecfidera to Tysabri because I have some pretty bad flushing as a side effect, so hoping the transitions runs smoothly. Great to hear you're doing well and I would love a day in the life type video! All the best
  • @__Wanderer
    Amazing news Tom :) Congratulations👏 - must be a big relief / vindicating feeling :) Having my next scan in Jan next year 😅 My nurse was definitely a lot worse than my neuro. I was supposed to receive information on treatment from him but he went on holiday for 6 weeks just after I was initially diagnosed, nobody took over the case and I ended up having to try to figure out which medicines were available in NL xD Long story short: don't trust my nurse at all. Currently on tecfidera / vumerity so really hope it's working its magic. Otherwise I would like to swap to ocrevus asap, in NL they also don't allow Ocrevus as a first treatment...
  • @juliette1884
    This is wonderful news Tom Your back in action Have a Happy Holiday season 🌺
  • I was diagnosed 2 years ago and I am still confused as to what is actually happening or supposed to happen. I understand the particulars but with the lack of follow up after my Rituximab infusion treatments..I have had 3 so far. I feel good for the most part but have really learned most of what I know from what people share…so I just want to thank you for sharing your journey and look forward to you day in the life video….