PICC Lines For POTS

those cats in the background lol

My port seemed so much easier. It was surgical, I only needed a driver there & back (well actually only back home). But my port failed 9 mos into the process. I wish you all the luck and strength to persevere. The big guy is on your side. Glad everything is helping you function better. Your coming out with more content on channels which is proof your doing better. Keep your chin up girl! .... You can do this!!

Also! It’s incredible you went through all this last year and still never missed a beat with your main channel. Glad to have such a good role model

I also have pretty severe anxiety and recently had to get an IV in for the first time, like you said it barely hurts but I was near passing out and having a panic attack because of the feeling of something in my vein. Hearing about your PICC made me woozy > v <;

That was very interesting! Could you make a video about your EDS? Also... Your video ideas are amazing! I wanna see this

Thank you for sharing! I'm sure that your willingness to share about your experiences really help a lot of people learn more about our healthcare system and treatments. Take care!

Omg love you!!! So glad that you posted!!!! Sending you well wishes!!!!

This might be weird to say, but I'm really jealous! I also have POTS amongst other conditions, but saline infusions aren't an approved treatment here in the UK except in emergencies, because they say the risk of central line infection is too high. If I could get one I absolutely would, I really think the saline would help me

Thank you for sharing your story and the helpful information. I have Dysautonomia and EDS as well and I have been through TONS of medications and different treatment options but nothing really seems to be working. My doc prescribed me saline infusions but I can’t find any company to do peripheral IVs at home (I don’t feel comfortable driving far because of how mich worse my symptoms have gotten). My doc is so against PICCs and Ports because of infection and won’t give me a referral for one even though he said “we are running out of options.” I think docs need to start thinking about how devices like these can really change a persons life and that the pros outweigh the cons. I can’t even take care of myself without being bedridden the next several days. Sorry for the rant. I’m a little frustrated and depressed. I haven’t left my bed in 2 weeks because of my symptoms. I hope I can find something that works soon.

If you want to know more about ports go to “The Frey Life” here on YouTube,and look in the playlist.

The cats are hilarious! Great video!

Do you have an organic heart problem? So the valves etc other than POTS?

Would it be possible to be put to sleep for this procedure or no?

Wait I just watched you newest bunny video and it look like you have a Port did you get a port?

Love you Hailey, But my inner grammar police just can’t 4:59... “due” not “do” Lol, but honestly love these videos and getting a behind the scenes look at your life!

Do you have EDS?