Final Thoughts.wmv
Published 2010-09-21
www.ldnresearchtrust.org
All Comments (14)
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Best of luck with the new Dr & the LDN. The folks in Canada have been an amazing resource & a big inspiration for me :)
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I appreciate your openness. I am pursuing having the treatment, hopefully soon. . You have a Great attitude. Keep it up, it goes a loooonnng way.... Prayers and Blessings on your behalf. I don't know where you live, but there may be a clinical trial near you, if you have it again.??? Tracy
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good videos Andrea! xoxo I thought I had failed everyone when my hands didn't get feeling back on the table, I wasn't even the one who noticed my first improvements. then I over did it, had a bad spell, then good, now over doing it again... rest is so important, oh, and grand babies that don't share their cold germs! hang in there!
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Thanks for your honest update. Remember CCSVI is still in it's infancy, and I suppose there is still lots to learn. The external jugular vein drains the face and superficial cranium, so it's not likely involved with damage to the blood brain barrier. With spinal cord lesions, I 'm not certain why they don't check the vertebral veins as they drain blood from the spinal canal to the heart? You may have to be reevaluated, but give your body some time to heal.
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@damizia I agree about all the peeps in Canada, they are amazing!
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@notapplicable66 I totally agree, I have been doing my research on this! Will discuss it all the the new GP. Thanks!
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@Tracylaws Thanks Tracy, if I have to have it again I am hoping my IR would be willing to do it. I won't know anything until my follow up with him.
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Wrote a comment yesterday but don't think it worked... I'm sorry to hear you haven't had the instant relief you were hoping for. A four hour operation is a big deal for anyone - you may still be recovering from that. Also the stress of things not being as you expected can take it's toll. Sounds like this has really given you the motivation to take control of this thing yourself though and do whatever it takes, from a wholistic perspective, which is wonderful. I'm not surprised you are emotional
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Andrea, I'm so sad & sorry to hear how much pain you experienced during the procedure and that you haven't even felt any benefits as yet. 4 hrs sounds like an unusually long time. I thought most took around an hr. I think mine was under an hr. It is quite poss. that you're pain sensitivity is more acute due to muscle & nerve improvement. My back injury has been excruciating since having it but my MS symptoms have paled into insignificance by comparison. Hang in there. It just might take time.
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If you are starting LDN I would recommend you start out low at 1.5 or even 1 mg's and slowly work your way up to 3 mg's and then go up to 4.5. The easiest way to do this is in liquid form and with a marked syringe. When I first tried LDN I was on 3 mg's to start with and it gave me a bad reaction the next morning. It gave me a temporary relapse. Which made me stop the LDN and start over at a low 1.5 dose. It could have been the pharmacy's fault and not making it a fast release.
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@gtube22 Thank you! I have heard that it has taken some people up to 2 months before they see any improvement, so I am still hopeful!
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@sandyCanada56 I am really excited about meeting the new doc. I really hope I like her LOL.
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@BrendaRaven1 I have been getting a lot of private messages from people who have not seen any improvement yet. I am still hopeful and time will tell. I want to be like you and wear some sexy high heels!!
