Joint hypermobility/EDS and ME/CFS

2,728

86 0

Published 2022-10-19

RME (The Swedish ME-Association) holds a yearly conference, inviting among others, scientist from all over the world to talk about their recent finding.

In this video Professor Peter Rowe,
Johns Hopkins University School of Medicine, Baltimore,
talks about joint hypermobility/EDS and ME/CFS.

All Comments (5)

@amiih.b1128 1 year ago

This is refreshing to see on my suggested page. I have hEDS and developed ME/CFS from mono when I was 21. I felt like my hEDS became much more pronounced after I got sick, I only started dislocating things and developed PoTs after that and 7 years later I am fully disabled and still have significant crashes. I do struggle with some internalized ableism and am trying to find a way to juggle my health and being able to build my own income or find an empathetic employer. I'll save this video!
@annak29 10 months ago

10:56 "Pesogenic papules" Thank you for this information and putting all the pieces together!
@CLove-mo7cc 1 year ago

Thanks for putting this up, I have CFS and am currently seeking a hEDS diagnosis. I wished you could talk more about treatment plans
@emo333vampire 8 months ago

what happened to the Long Covid aspect of this seminar?