Dystonia. Rewiring the brain through movement and dance | Federico Bitti | TEDxNapoli

I am a neurologist. This video brought tears of joy to my eyes. Every neurologist should see this. Bravo to Mr Bitti

Thank you for this speech and I'm glad that someone is talking about it publicly❤! I have been suffering from dystonia for a year, and I was diagnosed after 6 months thanks to a private visit to a neurologist who referred me to the hospital. If that haven't haopened, I would probably still go from doctor to doctor. I live in the UK and I have the impression that general practitioners are uneducated, at least in most cases I experienced disregard for my condition. Once, during the visit, when I started crying from helplessness and pain, the doctor wrote a note saying that I was tearful :/ when a few months ago I asked another doctor for sick leave (I work physically in a factory and I have trouble turning sideways, even washing dishes, sometimes drinking) she refused, thanhfully another private visit saved me. But my savings are shrinking like my muscles and I don't know what will happen next... There is no NHS physiotherapy here, and my doctor told me that I shouldn't exercise and I have botulinum injection, which doesn't help, so I read and look for information myself. All hope lies in scientists and people like you❤❤❤

Awe bless his heart moving to Vogue made me cry. No one truly understands dystonia unless you've experienced it.

Thank you Federico. I'm Irish and have lived in Milan for 27 years. I have Dystonia and have become not a victim, not a survivor, but a thriver. Like you, I have learned to turn adversity into opportunity for 11 years. I'm a published author, language consultant and singer, dancer and courageous liver of life, even during these challenging times 💚💙❤️

I started with dystonia in my mid twenties and it started exactly the same way. But I was lucky in that it lasted for around 5 years and then for whatever reason it went away. I always say that being able to relax and positive thinking made me better but whether that is really the reason I will never know. I find it very difficult to watch videos that dystonia sufferers make, as i start to get the urge to turn my head again. I still think that it is still there inside my head and I have to keep it locked away. It is not just a physical condition, but an emotional one that is, in my case related to Anxiety.

I'm truly overwhelmed with tears! It's such a moving experience and to see him dancing joyfully is the best. My brother suffers from Cervical Dystonia for 7 years now and this is like a light at the end of the tunnel. We shall try it too!

😂 Tears of Joy! Cervical Dystonia It's like someone telling my story. Thank you. I'm 9 years Dystonia , botox didn't help not 1% , dry needling, lost with Anxiety and Paninc Attack disorders am wrecked with pain. Music is and trying to be positive is all that lets me get a breath from time to time. So few affected, so many of us feel alone. I still don't know my diagnosis all are. I have always been big music listener but I didn't fully realize why it's so hard for me to turn it off. Thank you!

Found this video a almost a year ago when I could barely walk or breathe. It didn’t look like much at first but I figured out there was something there with dancing. I found I could move just a little more with music on. It took a lot of work, but my whole right side has come back online! Through a lot of healing modalities I’ve actually been able to sort out my vision and hearing from my proprioception and motor functions! Starting to learn how to bring them all together with the right parts of my brain and will and by golly my body works by thought again!

As I lay demoralized by insane spasm flare over last 48 hrs...I found hope...❤

Thank you. I have ST for over 50 years. It stopped me from having the career I wanted. Now I’m focusing on exercises. It’s too bad there’re so few therapists specialized in dystonie. I have to travel outside my home in Amsterdam. And it’s expensive. Because of TS I don’t have very much money. So I’m watch YouTube exercises. Now I’ll try dancing. I love music.

Thank you Frederico for you are an absolute inspiration.I have had Dystonia for thirty years and it has got worse recently .You have given me hope and I will certainly try dancing and movement ❤Bless you xx

Thank you for this video! I have been recently diagnosed with cervical dystonia and have dystonic tremors of the head. I am receiving treatment with physical therapy and dry needling which has helped some. Seeing your improvement and how you have overcome your symptoms has brought me to tears. Tears of joy. To know that there is other treatments that could be done and tried rather than Botox injections and just learning to live with the condition. You have given me hope of improving! Thank you for sharing!

This video totally changed my outlook on my CD. Thank you for giving me hope.

He should get millions of thumbs up so inspiring.

Thank you! You are an inspiration ❤ My spasmodic torticollis began in my early 30's. I am now about to be 58 & symptoms are getting worse, increased spasms/tremors. I stay as active as possible & love to dance. There will be more dancing ❤❤❤❤

Even ahead of his real dancing scene, he is dancing with hands & arms, with his voice while he talks. Wonderful!

MUSIC is key. Movement, concentration, mood, all regulated by music. This makes the ultimate degree of sense to me. We need more music and dance therapy, not drugs!

Big man, and going on stage with that causes even more stress - simply impressive, and thank you to be active for the community..

ive had Dystonia in the left half of my body for 26 years...this vid is amazing ..inspiring and tearful for a dystonia suffer like myself that has never had help like that . .it makes sense that a movement disorder is treated by specialist movement experts , dancers know about movement in a expert way ...doctors know needles and pills and scapels , but is that the only way ? ...🙏 thankyou ...dance on forever

Goosebumps. This is phenomenal. Movement is medicine!