Long-term effects of Ménière's disease - Online interview

Meniere's disease is likely under-diagnosed. I was diagnosed with MD in the last couple of years, but now know that it started showing symptoms several years before. But the symptoms weren't the complete symptoms that are used to diagnose the disease. I now get all the symptoms. Previously, I'd have attacks, some vertigo, some varying hearing loss & some fullness, mostly vomiting, but very little tinnitus. I now have all four of these symptoms, with tinnitus and fullness roaring in my ear. Vomiting should be considered a major symptom as it seems to occur to most people that have MD. And it is one of the worst symptoms inline with severe vertigo. Many of the personal testimonies of people with MD suggest that most of the invasive therapies, including steroid injections, don't work. Or, don't work for long. This seems to be true with people that have found relief through more natural methods. They often say that they wished they never had any invasive procedures. As they were costly and didn't help much. If these doctors that downplay the serious impact MD has on the the lives of sufferers, had the disease themself, they'd understand much better and stop suggesting that there are easy cures. Or, that much relief is possible with medications and procedures. MD is not easily treated no matter what this guy says, especially if you are older, as you've likely had it developing in your for at least a few years.

Living with it for over 40 years.....

Just dx'd with Meniere's disease after seeing many different doctors (including Neuro and Gastro) to figure out my vertigo symptoms and nausea. I started having weird ear fullness/pain and tinnitus so I made an appointment to see ENT. They diagnosed me pretty quickly as I had all the classic symptoms. It can be debilitating and has affected my life because it is unpredictable and the vertigo can last for hours! Often times, I am left feeling sick for a good part of the day.

1st stage, vomiting, not being able to move you just freeze, 2nd stage dizziness cant walk sickness having to rest sleep, 3 all of above then,, falling no warning could be crossing a road, smashing your head off the pavement, being told by dwp that you can still work,

I was diagnosed with this 60 years ago from age 10. All early attacks were severe and came on with virtually no warning. Lots of vomiting and then I'd lay down and stare at something to alleviate some of the spinning. Exhaustion would eventually let me sleep. Only from my own observations I think the vomiting helped get through attacks quicker. From about the age of 30 most attacks were just much milder dizzy spells and I learnt to recognise them in time to take a single panadol which ended attacks pretty quickly. I haven't had a severe attack now for at least 20 years with most just being a bit of dizziness. 60 years ago medicine knew nothing about this disease. One Doctor said they could cure it by taking out the inner ear. That horrified me back then but with what I know today I'm sitting on the fence about the procedure. Sure I'd be deaf in that ear but I'm as deaf as a post anyway from the disease and having the inner ear removed would stop the tinnitus. I haven't had a hearing test in many years but today the tinnitus in my bad ear is so loud it's making hearing with the other ear very difficult. I had a few Doctors note down my use of panadol. I've heard mention that the disease could be inflamitory and I wonder if the panadol worked on that. I hope this was informative for someone. For everyone don't let it stop you living a normal life. Sorry this is all over the place but a definite trigger for the disease bringing on an attack for me was heat/cold. Sit side on to a bar heater or with the sun on one side of my head.

I have recently been diagnosed with 'Secondary' Méniére's disease after first having the symptoms in 2018. Despite the medication (Serc and Cizzarizine), the vertigo attacks keep coming (on average, one a week). It's brutal.

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A friend of mine at work complained about ear ringing, vertigo and Meniere disease for a very long time, I told him about Dr Madida on YouTube that gave him a treatment he used. We were recently discussing at work when he told me that the treatment worked that he don’t longer experience the ringing, eye spinning and others anymore. I was so happy for him.

Probably real good information, but wow this guy is hard to understand.

I've been slammed for many many years to where Meniere's has become a PTSD!! In a Capitalistic World I'm damn near broke all the time and am basically institutionalized by SSI-D (I am however very grateful as without this who knows where I'd be). FYI: I once upon a time had a $135k education and an impressive resume including was a Marine... most things for me ended in 2008. 2008, I was 45 years old when this started for me. My life was incrementally destroyed to the point I eventually lived in Subsidized Housing with ZERO Income for years. After time, I found out how to outmaneuver some of the fears that come with severe Meniere's disease by doing stuff that worked for me (baby steps or tougher yet - dove into the deep end) - trust, there is room for some "Mind Over Matter" After a long fight, I recieved SSI Disability 11/2017. I am currently well enough (sigh, but it can be a battle at times) - I try being grateful for the things I have and for what I can do!! I tell people this... spin in circles for 10+ minutes and then try to do anything; noting, you've spun around knowingly. Then, realise this, feeling like that at any moment with minimal (at best) notice ...and having it last 1 to whatever hours!?! * my longest attack is 30 hours with a 2 day sluggish recovery period to get my equilibrium back. During an attack it is like being assaulted and then left lying on the floor for hours knowing NOTHING will be helpful nor can someone lend a hand until it corrects itself... you have to find a way (your way) to overcome the panic, spinning, screaming tinnitus and lie completely still - basically trying to achieve an emotionally calm stable state of mind - wow!! easier said than done... yet possible!! Menieres symptoms are oftentimes defined by how the individual reacts and or is susceptible to the intensity of the early ONSLAUGHT of the disease. As well as what support systems are available (family, friends, associates, aquaintances, doctors). Attacks are sporadic and at some point even sparse yet like a monster hiding under your bed... it will eventually get you and IT WILL DERAIL anything you had planned; hell, your morale may take a huge setback too!! This is where Meniere's can be more of an individual experience... the how it affects your mindset, ability to recover and the moving on. .

The healing rate of my Tinnitus the very first time I apply and use Dr Madida medicine gave me a good impression that it is gonna work and it did work because right now I don't longer experience Tinnitus Effects anymore that I use to experience because the conditions is completely gone.

That's really a terrible disease to have. My life quality drop into the drain 😢

It gets worse every year

My sister is 32 years old and she has suffered from meniere disease for years and she always complains to me that I had to bought her Dr Madida herbs I saw on YouTube and she is telling me last month that she is cured completely and don’t long have the symptoms like vertigo or dizziness, feeling of fullness in the ear or ringing, hearing loss, imbalance, motion sickness, nausea, or nystagmus🎉🎉

My sister is 32 years old and she has suffered from meniere disease for years and she always complains to me that I had to bought her Dr Madida herbs I saw on YouTube and she is telling me last month that she is cured completely and don’t long have the symptoms like vertigo or dizziness, feeling of fullness in the ear or ringing, hearing loss, imbalance, motion sickness, nausea, or nystagmus